Long Term Tube Feeding of an older child (toddler)
Has anyone fed their (older) child by way of nasal gastric tube and/or gastrostomy tube?
Fergus is 16 1/2 months and has never really recovered from his difficult start to life. He's chronicly underweight and undersize for his age and an absolutely appalling eater. :frown:
This time he's been in hosptial for almost 2 weeks while he's force fed by nasal gastric tube. This followed a two week period of completely starving himself of all solids and taking only the smallest amounts of fluids. Anyhow after 2 wks of tube feeding he's now weighing in at a mighty 6.5kg.
Our various specialists are advising that he's going to need a semi-permanent gastric tube so we can force feed him overnight for a few months. Poor little man.
At this stage it's not confirmed, but it looks like Fergus may have an operation next year to have a more permanent gastrostomy "bung or peg" put into his tummy. This will allow us to remove the nasal tube and liquid feed him via a tube inserted via his tummy.
The plan is that they will continue tube feeding him for the next 6 - 12 months. Each night (7pm - 7am) he gets hooked up to a pump which continually feeds him overnight and then he's given bolus push through feeds via the tube during the day around regular meal times (in addition to offering him solids and milk feeds).
So far the tube feeding is proving pretty tricky as he's so good with his fine motor skills he pulls the plug on the tube attachments causing the feeds to spray everywhere. If the current plan holds, he'll be well over the age of two and still being fed by tube. Not sure how we'll go as he will no doubt only get more cunning with the months ahead. We bind his hands every time he goes down for a nap to try to prevent him from pulling out the nasal tube, but this doesn't seem enough to stop him disconnecting his tube from the main supply overnight. Tis very frustrating.
Has anyone had experience with this type of feeding with an older child? Any suggestions on how to make it less tempting/more difficult to disconnect?