Coeliacs disease

Sarebear - I'm the only one diagnosed with Coeliac. We think my brother may have it but he refuses to get tested. (he doesn't want to give anything up!)
Yes I do make two meals. My DH doesn't like my meals and he is a big meat eater. I guess if he wasn't so fussy we could eat the same but it just won't work with him.
My DS is 5 1/2 months old so I will be watching him when I introduce gluten into his diet.
I agree with you Caddie. I would have much preferred to have been diagnosed young. I got to eat all the good gear for 20 odd years!
Good luck with the shopping. I wish we had more places where I live:-(

Hi ladies

I have a 19 month old son, who is 76 cms tall and weighs 8 kg and has weighed 8 kg since he was 12 months old. The paed thinks he may have coeliacs. can someone tell me what the symptoms are please?

He eats really well and has been breastfeed, doesn't drink much cows milk but loves cheese, yoghurt and custard. He is also very active.

thank you for any advice xo

Hi bearymum!
The symptoms vary from person to person. Some may not even show any symptoms.
If you google Australian Coeliac Society they have a great website with heaps of info including symptoms and also how they test for the disease.
Symptoms include constipation, diarrhoea, flatulence, being tired, vitamin deficiency, weight gain/loss (can be either), stomach cramps, smelly stools.
I felt really lethargic and it felt like I was carrying a brick in my stomach - very uncomfortable.
Does your ds eat alot of gluten? Ie cereals, bread, pasta, wheat, rye, oats, barley?
Hope this helps. If you have any other questions, ask away!

Bearymum, the doctor had told me to watch out for diarrhoea particularly when I asked about my little boy. He said that he recommends that DS be tested when he is around 4 years old if he doesn't have any symptoms before then. Like bluesky said the symptoms can be so varied, I hope you get it sorted soon.

Bluesky, if you are looking for more variety, the gluten free shop that I went to (thanks Feeb) has an online store as well. I haven't looked at it properly but it might be worth checking out. I don't think I can put the link here but I can PM it to you if you like. Or if you google gluten free werribee you should 'absolutely' find it.

Things are going well here, I did join the coeliac society and that was really helpful, I still have lots of info to read from them. I found a local italian restaurant that does gluten free pizza and pasta, we rarely eat out but it's good to know.

I made gluten free bagels yesterday, not perfect but they taste better than the bread that I have tried so far. It took me about 3 hours to make 4 bagels but it was so worth it! I almost had a tanty in coles when I discovered all the good lollies have gluten in them, luckily Aldi wine gums are safe, so that crisis is over :) Phew.

Thank you for the reply bluesky and sarebear, it is much appreciated.

To answer your question bluesky Does your ds eat alot of gluten? Ie cereals, bread, pasta, wheat, rye, oats, barley? He doesnt really eat cereal but he has 2 slices of bread per day and pasta once sometimes twice a week. He does poo at least 2 - 4 times a day but i thought that was from the fresh fruit he eats.

He has a paed appointment in may so if he has not gained any weight by then they will be doing the coeliacs blood test.

Thank you very much for your help and hope you are all well.
may be back later if the test results are positve.

Hi girls, just checking in to see how everyone is going.

Bearymum how is your son?

I made a discovery recently, bread that actually tastes like real bread! :leap:
It's called Schar, our local health food shop has it, and the gluten free shops have it too. It's so good, and comes in lots of varieties of sliced bread, rolls, pizza bases etc. Not cheap but so worth it!

Hi SareBear,

My son had his blood test last week and we find out the results tommorow.
He has been putting on weight since being on cows milk but instead of pooing 2-4 times a day, he is now pooing every 3-4 days.

Hope everyone else is doing as well as can be.

will pop back tommorow and let you know the results.
xo

Well the test results are back, apparently they only tested for the iga antibodies, which was negative. He is low in iron so has been put on an iron supplement once a day for 3 months. after 3 months they will check weight and iron levels again if no big change they will do the genetic blood test for coeliacs. So no real answers yet.

Anyone with suggestions on how to get a 2 year old to put on weight? He eats everything.

thanks x