ohhhh!!!! Full-moon time!!! Maybe they have more fluid on their brains???
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ohhhh!!!! Full-moon time!!! Maybe they have more fluid on their brains???
hmmm i hav eno idea but garanteed in 2 - 3 days Wilhelm is going to be on a rampage!:
That's so funny Maz - I remembered you said that last month when we were all having problems and last night I was outside feeding the dog (at midnight - poor bugger) and I noticed that bloody moon and thought - Maz was right! How did that month go soo fast BTW????
Aww maz :hug:. Just remember that as they grow older and mature their traits will become less and less severe/noticable. Well that is what happened with DH. Many people who know him don't even realise he's any different.
I would be interrested to know whether any of you can trace autism/aspergers back to a parent/grandparent or beyond? I definately think that it's possible there is a biological link but also I've read that sometimes there is a link between it and traumatic birth. My Dh apparently had his oxygen suppy cut off for a short time during birth and so did a friend of mines son who is autistic.
Sarah - yeah were the hell did the month go??!!!
Spice - No autisum on either side...BUT my neice's daughter and son (who is 8 days younger then Mateuaz) are both on the spectrum. I always knew 'somethime' was wrong, right from the time I feel pg...he was a happy little baby, nice and quiet...BUT he didnt want me to hold him then at 6 months when he had his needles my smilie baby looked like he got slapped in the face adn the look never went until he turned 4 and learnt to smile again. He screamed 20 hours of the day..slept only like 5 hours at night...only wanted me..but we wont go there!
Oh dont tell me that about having oxygen cut of at birth...mateauz had the cord wrapped around his neck 3 times and the last month of my pg his HB was all over the place. He was born blue and put into NICU due to lack of oxygen...... he's not like Wilhelm though, he's got different super powers ;)
Spice I've heard that there are definate links to genetics and to traumatic births. In our case... thats about right. Matilda's birth was traumatic and yep my BIL has Asperger's.
BTW BIL is in a long term relationship that is wonderful.... there is hope!
Spice - v. interesting looking at where autism comes from.
my nephew is ASD and we think his sister is probably on the spectrum or at least has some sensory issues.
Both my SIL and I hd pre-clampsia in pg and were induced which at one time was linked to autism but as Maz (I think) said on reflection Xander was very different even in the womb. He nearly broke my ribs with his kicking and one night after seeing a very loud movie I had to leave the cinema as he was kicking that hard! I could barely move the next day. If you could see him in action these days you can understand exactly what he was doing in there as he craves deep pressure stimulation (lots of hits, running into things, pushing on others, headbutting) As a child also he was very dffernt to my DD - which was a big reason why we pursued a dx so much once she was born as we could really see the difference then.
On that note - anyone else find they are slightly paranoid about their younger children? Ariya is so different to DS, she is talking, hit all her milestone (mostly early) seem more coordinated, seeks out mum and dad and Xander, plays beautifully ect but she is not overly fond of being touched/held and walks on her toes a lot? Is this just a normal toddler/baby thing that I am reading too much into? I think so as they are just so opposite in terms of behaviour and likes/dislikes
Saram - yep totally paranoid. Jovie was twirling her wrist the other day... for hours and I just sat and watched her....
Girls... I have to gloat! I got my village!!!! We moved to Sydney to be closer to our village but I guess we didn't expect this much support. We've had friends stop by the shops for us so we don't have to go, neighbours watch Matilda for 30 minutes so we can run to the shops, and today a Nana of one of Matilda's friends came & took Matilda with them to the park! :o I'm at home, Jovie's asleep and ... I don't know what to do with myself!!! Matilda's just 2 doors down at the park and I can rest??? This is unheard of in my world. I've always had to do everything and here people are helping me!
**** Christy..ive got tears swelling in my eyes...that is friggen awesome!!!!! You'll have to sew them sheets you were talking about :). Jed left Wilhelm at a birthday party with NIkolaus and he was perfect...I totally shiat myself when I found out...I was in Melbourne and couldnt come and rescue him if he needed me :(
We also have a break through....Wilhelm got his hair cut!!!!!! his carer is a hair dresser by trade and when I told her about him not wantingto cut his hair she said if it was alright if she could try...I almost kissed her when he came out 3 days later with noticably shorter hair!
Saram - I watch EVERYTHING mateauz does...nto so much Vy but defently Mateauz...high risk of having a son after a spectrum kid having the same IFYKWIM...but Mateauz now pulls himself up on the couch and has started cruising :)
off to go fold washing...ah there Christy...come fold my washing for me :ROFL:
and YAY at the full moon coming and going without any avents this month ;)
On the down side, Matilda hasn't used the toilet today.... when she was at the park she wee'd behind a tree because she didn't want to ask Julie (aka Nana) to bring her home to the toilet. Then this arvo on our way back to the car she could hold it & wee'd all over her shoes. *sigh* She's not been listening the past two days and I think there is so much going on in her head with the move that this maybe our result... unfortunately she won't be able to start school while not using the toilet.
Oh Christy that is so awesome - about the village, that is! That's exactly why we are trying to move back to Brisbane. How has matilda coped with the move? Hope you sort out the toileting issues. I think i saw a discussion on aspect about toileting.
Maz - woohoo on an incident free month! that's awesome news!
We have some good news too! Xander has started trying to read! He has a play station game that involves a lot of reading and after years of us reading to him he turned around the other day and started "reading" the stuff on the screen - just goes to show you just need the right motivation hey :-)
NOT GOING WELL :( I can't even get ANY help from agencies or autism support because we can't even go through another assessment until MARCH!!!
My friends are trying to help, but its been extreme the last 5 days. Let's just say there has been more screaming than not :( . Today has been so awful and a friend came over but there was nothing she could do because Matilda just screaming, kicked and scratched me. ATM its 9.30pm and Matilda is in her bed thrashing her body around screaming & keeping everyone up. I'm so over it... I don't like her right now. I could never say I didn't love her, but I really wish she would just go away for a few days and give me some time. I don't know... feeling pretty low atm.
oh bloody hell Christy...you poor chicken!!!
Do you think the change has caught up with her?? Delayed rection??
My only suggestion is to totally ignore her babe....as hard as it get up and walk away from her when she does this to you. Calmy...without talking and without looking at her. Sometimes those little things can triggen them of worse IFYKWIM. I cant make any eye contact what so ever with Wilhelm at his agro stages and revert to this which 'cools' the situation.
And what your feeling is totally normal when this happens..dont you ever doubt yourself or think your a bad mum for feeling like this. We are aloud to feel like shiat...we cant be happy happy joy joy 100% of the time, especially when our childs are hurting or frustrated.
oh another thing I found helped when Wilhelm was like this was a liquid Iron suppliment called incremin...yellow label with a giraffe on it... I use to hide it in his milo but now he knows when he's bad and ask's for his 'headache' medicine
Give each other some space babe......I wish I could come over and she could kick me instead of you.
Oh Christy :grouphug: I second maz, somethings are best ignored. There have been days where I have taken myself and a cuppa outside as far away from the house as I can possibly get for 5 minutes of peace (as long as he is safe)
We rely a lot on sensory stuff, Xander has a hidey hole under his bed where he goes when stressed, a weighed blanket for deep pressure and I'm hoping to get some mattresses/gym mats to throw himself around on.
Hope things get better:-)
Well yesterday I had to work, my new job is Tuesdays - 10 hours and Saturdays - 10 hours.... So I work a 20 hour week, but only over 2 days. Its full on, but its amazing...
Matilda went with MIL for a few hours and then a friends for 5 hours and then back to MIL here at our house until DH got home. They all had dinner together & I got home while they were in the bath.
I think it did me a world of good being away from her. She was very well behaved for everyone but once DH got home she disolved for 30 minutes. But its been the best day in a week. Today has been okay. I've spent the first half of the morning on the phone trying to get us somewhere. I got us into a private OT starting on next Wednesday, then I got a respite service to come here for 2 hours on a Thursday arvo so I can do our shopping. I can't even park in the car park without issues. She won't put on earphones for the ipod we got her... she won't wear the ear muffs... she won't keep the sunglasses on... so I just think the respite will help.
I felt like a failure calling all these places trying to get some help, but then I thought that it was going to help. I called MIL and asked her to come over tomorrow for an hour and a half so I could go to the shops... there's a chinese massage place next to Woollies so I'm going to duck in there for 30 minutes before doing a power shop I think. I can't handle the hours of screaming so I think I need a recharge before I keep going. Its not going to stop anytime soon...
Hi there,
I really hope you don't mind me dropping in here. I am pg with my first and have been cruising around BB forums. I stopped in here as I am a professional in the area and am passionate about my work with kids and families living with ASDs. I am provisional psychologist and I've been working in home-based therapy, and now an early intervention centre over the past 8 years. I also work as a counsellor with parents coming to terms with diagnosis and dealing with behaviour issues, family stress and the impact on siblings, marriage and life as a whole. I know I will NEVER truly grasp what it is like for families from the inside (that is, assuming this little bump doesn't end up 'on the spectrum') and I have endless admiration and awe for the mothers who nurture these gorgeous kids day in, day out. I do however know a bit about ASD's and just wanted to say...
Please feel free to PM me if you get really stuck with general questions. I DO NOT have all the answers and cannot know or assess your child, but there's a chance I might be able to point you in the direction of a good website or give some general suggestions. I'm not offering my professional services, just someone to chat to who would love to help if she can.
Blessings and big hugs to you all.
Kat - thank you for your offer, it's interesting there are quite a few professionals on here who help with asd and sensory issues which is a great wealth of information to draw on. All the best with your pg.
Christy - Don't ever feel like a failure! These services are there to help us because we need them! We found the only head phones Xander likes are these huge ones Dh got to block out noise on the little ariplanes he used to fly in out west :-) Not exactly 'blending in' material. Does Matlida like electronic games? We got DS a leapster last year for Christmas and it is what he absorbs himself in when we are in stressful situations. It is starting to die so we have him a Nintendo DS for Christmas (from Ebay) It's funny because I caught up with some other people whose boys were on the spectrum and they were all playing on these DS systems - mainly pokemon. Is she interested in anything like that?
As for us - we are not having a very settled week. DS is all over the place like a dogs breakfast - speaking of which our dog was killed on Sunday and we are getting 2 new puppies (yes just to add to the chaos that is our life) but I don't think that has upset him. i think it's more getting close to school holidays - he is wanting to know what we are going to do and when and what day he is going back to school and which class is he in. OMG he is seriously stressing! Holidays are always horrible as he hates the spontenaity. I really should sit down and make a plan..... might help him settles :-( I just hate being so planned out all the time! On the upside we finally started getting some money back through medicare for all the OT sessions. It has taken us 5 months to jump through all the right hoops! Thankfully our bank balance is looking slightly less sad now :-)
oh I hear ya, since school has stopped Matilda needs me to write out a routine everyday and put a timer on for what happens next.... ARGH I'm so not organised enough for that!!!
Tomorrow I have a few things to deal with, but its mainly a home day. I think I will be dropping something off another suburb away. Than we are home for nap time and during naptime MIL is coming over so I can run to the shops... Matilda doesn't nap, but has "quiet time".
Somehow I have to get a rhythm going in our house to help instigate "calm". ARGH!