Whoops - Happy New Year too!!
Corelly :lol:
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Whoops - Happy New Year too!!
Corelly :lol:
Thanks Guys - I definately get lots of hugs in during our brace free time, but its more when DS is upset and I want to hug him close and sooth him, thats when I wish the most for those brace free cuddles .....
Wishing you all a wonderful Christmas with your precious babies and children. I wish that 2010 brings us all to the end of our DDH journeys and we get to see our babies crawling, walking and running freely x x x
Happy Christmas and NY to all. For anyone that goes to the RCh Melb regularly a parking tip for you, instead of parking in the offical RCH carpark, Chapman St runs parallel with Flem. Rd towards Nth Melbourne, always has 2 hrs free street parking and there is always parking (well whenever I've been never had an issue) and the bonus is its free. Our Orth Surg had his offices in the street so that is how we found it and used it ever since.
Hi Everyone!!
Sorry I have been MIA lately, just been soooo busy with Christmas and looking for a new car! To fit everyone in, lol. We found a new car though and DH will be picking it up Monday sometime, so cannot wait, we have a Nissian X-trail atm and it's just not big enough for all the kids, it's fine atm cos Lahni is in the capsule but as soon as she is out of it no room will be left haha. So we have brought a Holden Commodore Wagon 05 VZ with 80,000ks on it. Sooooooooooo much more room!!
As for Lahni she enjoyed her first Christmas and got oh so spoilt by everyone, slept like an angel through meal times hehehe. and just really enjoyed herself... well she looked like she did anyways :) Everyone calls her "The lil' hip angel" hehe I think its pretty cute. all the family learnt how to hold her and they all think she is just beautiful :) It really ment a lot to me that they didn't see Lahni as different to the other kids and babies. They were blinded by the brace and didnt even notice until I changed her nappy (although they all knew she was in a brace) hard to explain.
We go for her next ultrasound on the 6th of January. And we see her peds straight after. At her last ultrasound her left hip was 47.7% and her right hip was 57.7% with shallow sockets... I so hope everything has improved because her doctor said if this brace doesn't work for this 6 weeks then she'll have to go back into the pavlik and to no baths again... so fingers crossed this brace has done the job!!!
erybery - thats awesome that the US lady said it has improved. Have you seen your pediatrician yet?
wiggs - that is awesome news that Chloe is crawling backwards in the brace!!!! Go Chloe!! It's amazing how babies adjust to things hey :)
MummyNaomi - I'm glad you are feeling a lil better about the brace, I know its hard seeing your lil' one in it. I keep telling myself, Its only for a short time, but then I see a pretty dress and I cant put Lahni in it without putting leggings on.. I cant wait to dress her in things I want to dress her in without the worry about the brace rubbing on her. But I do agree with the other girls we all have our days.
wysiwyg - thats fantastic news about your x-ray! yay for no brace!! whoohoo
Well I hope everyone had a fantastic Christmas and I hope 2010 brings the best news for us all.
Hey mummy naomi,:
Its a bit of an issue now with rear ward facing seats. Royal childrens in melb are still using the maxi rider which is forward facing but an issue now with new laws. We are told that the safe and sound meridian fits babies in spicas and braces. Currently we have hired a seat which is an amercian seat and can be forward and rear ward facing and made for kids in spicas. Hope this helps.
Thanks Rarni - I solved the car seat issue - with a saw!! LOL - we cut out the plastic moulding on ours where Baileys legs were pressing up against, worked really well, so we can keep him rear facing until he is big enough to move as we would have normally :)
Hi everyone,
Hope everyone had a nice Christmas and New Year. I spent it at home with DH and DD. We seem to be going into a new benchmark - DD is trying to crawl in the brace. She's lifting her body up, and starting to rock, like she would if she didn't even have the brace on. She's managing to scoot around the lounge room, by rolling over and over, or by pushing herself backwards. I can't wait to see what she can do once the brace is gone!
Mummy Naomi - how's Bailey going and how are you? I was thinking that maybe to combat being able to hold him in lieu of bathtime - have you had a bath with him? I jumped in the bath with DD just before she had surgery and she thought it was the best thing ever. She loves being in the bath and it allowed for plenty of bonding time too.
Hope everyone is well and all the bubs are smiling and spoilt with their new toys!
Corelly ;)
Hi all, we have our second ultrasound tomorrow morning at 9.20am.
then we see Lahni's doctor at 10.45 the same day..... kinda nervous about the whole thing.
i just want her out of the brace but trying not to get my hopes up...
she has now been in some sort of harness/brace for 3 months 4 days (no im not counting hahahha)
Jess - GL for Lahni's appt, will be thinking of you and I hope the brace comes off tomorrow - I understand about not wanting to get your hopes up, I think its a bit of a defense mechanism in case you have to go a bit longer with the brace, either way sending good luck your way
Corelly - Thats a great idea re the bath, I have only had one bath with Bailey (we filled up our spa in the ensuite and he had a ball) so I think I might do that again, thanks for the idea, I am going to do it tonight!! I am much better about everything, thanks for asking. My SILs mum was asking me about the brace at christmas and for the first time I was able to tell Bailey's story without tears, so thats a step forward I think :)
Hope all the other parents and bubs are doing well, Our next appt with the ortho surgeon is on the 14th, but there is no chance of the brace coming off, its just a checkup so see how things are progressing
Naomi
well we had her ultrasound today and saw her doctor and he wants to keep her in the brace for another 6 weeks as her left hip still isn't the best, but its not bad.
he was actually tossing up whether just to take her outta the brace all together, but thought its best for her to be in it for a little bit longer.
im just annoyed cos she was only ment to be in the brace for 12 weeks max... now shes gunna be in it for 19-20 weeks!! not how i pictured her the first few months of her life but hey its the best thing for her hey.
Sorry to hear you have another 6 weeks to go Jess, bummer mate!! I look forward to seeing that post in 6 weeks time when you get to bring Lahni home brace free :hug:
Hi Everyone,
It feels like it's been ages since I've been on here. Christmas was really busy for us and Chloe has been SUPER clingy latley which has been exhausting me. Her sleep hasn't been the greatest, she has had a very bad cold and is now frustrated that she can only crawl backwards and not forwards in her brace. This is exasperating the normal seperation anxiety phase although I think I am begining to see the light at the end of the tunnel. DH is on holidays this week and has been trying to hold her at times, today, for the first time in a week she didn't scream for me when he was holding her which was a huge relief. We also took the kids to the pool today and my little water bub loved it she kicked like anything.
Jesska - so sorry to hear that your LO is still in the brace. That really sucks! I know what you mean about not getting your hopes us. We go back to the RCH for scans, apts etc on the 19th of Jan and at my last orthotics apt my orthotist mentioned that they might just reduce the brace down to naps and night sleeps. Now I can't help hoping that this will happen and am worried that I will be really disapointed if it doesn't. My clinician did originally say that she would be in the brace aprox. 4-6 months so i really shouldn't be expecting anything to change so quickly.
MummyNaomi - great to hear you are feeling better about things. We all have our moments as mums and this brace just makes me have those moments more often, as it complicates an already MASSIVE job.
Anyway better be off and get some sleep while i can.
Hugs to everyone.
Hi all,
Wiggs - my DD is experiencing separation anxiety too - but only at night. She won't settle until I'm holding her again, and she grabs my face, ears and hair to convince herself I'm still there. Aaaahhhhh to get some sleep!!! Hope it eases for you soon.
I've been thinking about my last appointment with the surgeon and he gave me some measurements, saying DD's hip was at 31. Can anyone tell me what that means and what measurement is a good one?
Cheers!
Corelly - if he meant 31 degrees (eg the acetabular angle), then I think thats pretty good, I know our ortho said they only tend to brace babies if the angles are over 30 degree's (assuming the ball and socket are stable etc), so sounds like DD is getting very close to the normal ranges. Bailey was put in a brace as both his acetabular angles were over 30 degrees, his right hip is worse than the left, HTH
Naomi - Oh boy, I hope so!!!! It's so hard not to get hopes up though!
Thanks,
Corelly
Hi,
I am new to this forum. I have been reading bits for many months now whilst pregnant and in the early months but had found all the answers I needed from existing posts. However, I now have a specific issue that I wonder if anyone can help with.
My son was born at 36 weeks naturally and at the time his paed noticed a clicky left hip. An ultrasound indicated grade 2 dysplasia so we were referred to Westmead childrens when he was about 8 weeks old. On our second visit they put him in a DB brace (about 3 months old), for night and day time naps. He had gained the coverage of the joint but is was cartilidge and they wanted to help rest the joint so bone could form.
This has continued for over 3 months now and are next appointment is the end of February when he can also now have an x-ray.
Liam is now 6 1/2 months old and has taken to rolling onto his tummy, especially at night in his cot. He's fine for the first part of the night but in the early mornings he must wake up a bit and plays around. For a couple of weeks now, we've been going in when he cries to find him on his belly at the other end of the cot, sometimes with limbs stuck out the bars. He can roll in his harness from his back to front but then seems to get stuck and can't roll back. During the day without his harness, he isn't very good at rolling from his front to his back and doesn't do it very often.
Apart from disturbed sleep, its not been too bad. But last night, for the first time his movement monitor alarm went off. This hasn't happened before. I raced in and Liam was on his tummy, just breathing. I think the alarm noise had shocked him to breathe again.
We wrap his arms tight at night and pin him down with the sheet to help prevent him moving but clearly this doesn't work for the whole night. We also put rolled towelling nappies under his legs to support the brace and stop him moving, but he's a strong boy!
Has anyone experienced this problem of rolling in the harness in the cot and do you have any suggestions for managing it?
Thank you in advance
Oh Karen, that must have been very scary! I haven't experienced the same as Bailey hasn't worked out how to roll in his brace, but a though could be to rewrap him half way through the night - eg if it is taking him some time to gradually get out of the wrap and sheet, if you wrap him firmly again at say midnight would that 'secure' him again for a few more hours?
Thanks Naomi, we may try that. We also plan to swap cot ends as I wonder if he heads down the other end for a reason.
I was surprised when he managed to roll in the harness. I would have thought it too hard with his legs stuck out wide but its like now its a new trick and he keeps doing it.