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Hi Ell
I was just wondering if your daughter has learnt to crawl while in the hip spica? I was told by the doctors liv would probably learn to crawl but hasn't yet, it's been 2 weeks.What kinds off things does your daughter do to entertain herself. My daughter has bilaterl hip dysplacia also, but wasn't diagnosed till about 2 mths ago. Anyway hope everything goes well for you and your daughter.
Lucy
Hi Mis_tree
Olivia is adjusting well. She is back to her normal self. She does pretty much the same things she did before tht spica but does them sitting on a chair at a table. We bought her a bean bag as it is the most comfortable for her to watch her tv shows in. She off cause has her moments when she gets a little frustrated but all in all pretty good.
Glad to see everything has worked out well for you and your baby.
The first time when she was in spica she did learn to pull herself around quite well. But this time she has no interest in being on her belly. Though she is a lot heavier this time and has the stabilizing bar across her legs which makes it a bit difficult. Sierra entertains herself with drawing and playing with playdoh her tea set watching dvds. We have made a table for her to sit at and she loves she sits there for ages and just plays. really with anything that will fit on the table that she doesn't have to move much to play with.
Hi all
Scarlett is only in her brace at night, so she doesn't get much practice, but I've noticed that she can crawl around in her brace now if she's on the floor. She has also mastered rolling over in it and can even stand up in bed sometimes!
At 14 months she is almost walking! She takes a few steps and then falls on her bum or grabs onto something. I am quite excited that she will soon be able to keep up with all the other kids at playgroup!
Nicole
Hi Moss-tree, am glad that you got some good news.
Well we went to the MCHN yesterday for dds 18 month check up and shes not happy with the way dd rolls her hips when she walks and wants me to get in to the orthopaed earlier than next May. GGgrrr. So will call and see if I can make an appointment.
Minimatron - can I ask what dd is doing when she walks, did you notice anything yourself?
DD has only been walking for a month but I think she sort of funny (hard to describe) but sort of turned to one side. But it just be her still learning to walk.
Hi all,
Sorry havent been on for so long, life has been hectic the past weeks (as I am sure it has for everyone)I hope everyone and their babies are doing well.
I hate to dive straight in for advice, but am a bit worried and could do with some reassurance or reality check. Harrison is coming up to hist 1st birthday on 24th Oct, his next meeting with our Orth consultant is 17th Oct. For now Harry is in the Rhino brace (at night only) and the consultant was extremely hopeful that the operation & spica would not be necessary after our last meeting in August (but wouldnt commit or give any guarantee). But my husband has noticed a consistent clicking in Harry's hip every time he holds him, I cant feel it but he swears it is there. Has anyone else noticed this in their little ones?
I promise I will follow the thread and catch-up with everyone, sorry for the flying visit and hope everyone is doing well.
Laura
hey laura, i think cluncks are just the ligaments....
Bridee- since Olivia started walking at 12 months, her feet turned in, so we have been to physio and have orthotics in her shoes. It hasnt really worked, but the mchn said that she seems to be rolling her hips when she walks. I dont know what she really means but I do know she walks funny. I thought initially it was her learning to walk, but its been 6 months now. Am waiting to hear back from the clinc on Friday with an earlier appointment. Hope they can do it before I have this next one. Maybe if your worried go and get a review. I am hoping that all is good though, think I would be devistated if she needed to go under the knife.
Will let you know what happens though
Hey hope everything goes well with harrison. My daughter used to walk swinging her legs around in front of each other with a real arch in her back i also found she could not run like other kids tends to fall over a lot Compare her to other kids her age see if there is a huge difference in how they walk that might give an idea if she is walking completely different. Sierra is supposed to go into spica shorts next time i was wondering what anyone done for pants. While there child was in this spica. It bit cold in Tasmania at moment to go just dresses.
Hey mis tree, I asked at our 20 week u/s and the lady said that you have to wait til birth to see if she has the same thing.....my biggest fear is that the new one will have to go into a harness and Olivia will have to have more treatment. Fingers crossed.
We got our appointment for Thursday November 6th. Better than waiting til MAy next year. Am so nervous. Hope it comes around quickly with good results.
Hi all,
A quick update on my dear Scarlett. She is now a confident walker and has even attempted the odd run when she gets excited. I can't keep up with her anymore. It's like now that she can walk she won't sit still - ever! I must say she is sleeping well at night though!
I hope everyone is going well. Not long until your appointment now Melissa. Hope it goes well.
Nicole
Everything went well with Sierra her right hip looks good and for the moment she won't need further surgury. She in spica for further 7 weeks and then into a brace.
Thats great news ell.
I also have great news:) The specialist was happy with Olivias hips and they are considered 'normal'. In regards to her feet turning in, he said its coz kids with hip dysplasia are more flexable and and as they get older and taller, they will correct themselves.....phew. Now i can have my baby without having to worry about Olivias hips. Oh he did say there was a slightly higher chance the next one may have problems and to reques an u/s within six weeks of birth. Ok, good luck everyone....
melissa
Melissa - that is great news about Olivia. You must be so relieved. It is good to be aware of the possibility of the next one having a higher chance of having DDH (especially being a girl) and at least you will be prepared.
Ell - glad to hear about Sierra too. Good luck over the coming weeks.
Nicole
Hi guys,
Just found this site and have been reading your messages. I am a first time mum with a beautiful little girl - Eleni. We found out she had a dislocated hip when she was 4 1/2 months old. She is now almost 8 months old. We have had 2 hip spicas, and both were unsuccessful. We were then told Eleni would have to have an open reduction on her hip 2 weeks ago. Broke my heart. Ended up the doc in Sydney (who was a different doc to what we had previously seen) was able to put it in rather easy, no operation!! We are a little worried though as this is what we were told the first 2 times!!!! This doc seems to think it will work this time though. Eleni has her spica on once again. We have opted to have a CT scan tomorrow just to give ourselves piece of mind that the hip is still in. Fingers crossed!!!! I can honestly say this has been the most traumatic time of my life. Here I was thinking that you just have a baby and everything will be ok. Eleni was 6 weeks early, so the fun started there. She spent 2 weeks in hospital as she was not able to feed so was fed by a tube. I have a very loving husband and family who I am just so grateful for. I know that everything will be ok and she will get there, but I am just feeling like she is missing out. Stuck in plasters all the time cant be much fun. I am having a hard time getting past that!!!! I think I am feeling a lot worse than what she is to tell you the truth. She is such a brave little girl. How do you guys do it!!!!!????
Thanks for your reply mis_tree,
We had our scan today but of course will not find out the results until tomorrow. So I will be crossing everything I have in hope that it will come back ok!!!
The doc said Eleni will be in this spica for 6 weeks, then back up to Syd 11 Dec for a spica change. That one will be on for another 6 weeks and then if all goes well Eleni will be in a brace for 9 months. So all up 12 months before she is in the clear (cross fingers).
I have read some previous messages and noticed that you seen Dr Bellemore at Westmead. That is who we are seeing and from reading your opinion on him and some of the other mums, I feel we are in good hands!!! He is obviously the guru at this kind of thing. We live in regional NSW, so we have to travel also. We were seeing a doctor here like I said for the first 2 spicas, and were kind of let down both times. We were told that everything looked good. But it obviously was not. I am really worried we will be told the same thing again this time.
So your little boy is doing well? And his first Christmas - how exciting!!! Elenis also.
Summer time with the spica on is going to be interesting. If anyone has any hints on how to keep it clean on the inside, that would be great. I am finding it almost impossible to keep the little dribbles from going up the back!!! I am double nappying. Also, any ideas on different activities I can do with Eleni. I am so cautious with her back, maybe a little too much!!!
Reading this forum you guys sound like you have it all under control. Isn't it amazing how much these little bundles of joy mean to you. I think that is what makes this so heart breaking.
Hi Tammo
I am sure you will find this forum a saviour as we all have. It breaks my heart to read the stories of new members each time as I recall how hard it was in the early days with Scarlett. I too have been lucky that Scarlett has not been in a cast - ony a pavlik harness and now a dennis brown brace (at night only). I hope your scan comes back with positive results. The waiting is the worst part.
I'm sure you know that kids who go through this are so resilient. I feel it has made Scarlett a very patient and accepting child. Of course she has her tantrums like most toddlers but having gone through what these kids go through I'm sure in the long run it has a positive impact. As long as you look at the bigger picture it makes thing easier.
I don't have any ideas for activities either I'm sorry. Scarlett spend a lot of time on her back while in the harness but she was so young then (under 6 months) so she didn't mind so much. I'm sure you will get some ideas from the other.
Take care
Nicole