And then there was 4 - Mateauz journey with Cerabal palsey

Happy birthday

It had been 2 days since the MRI...the results were in but as the doctor in charge had gone home no one could tell me them. I was utter frustrated and tormented.

My birthday was on the 3rd of February. I told the doctors I didnt want to know the results on that day...I dont think I could ever celebrate the day again if I knew that it was the day our lives changed.

My MIL and SIL's all came to help celebrate...Sammi was there and another friend..yet I really didnt feel like it was my birthday. Their ment to be special occasions....happy times not a day filled with sadness and worry. As hard as everyone tried it just didnt help. All I wanted to do was sit next to Mateauz and felt guilty that I was sitting away from him.

After everyone had left for the day I rang Jed. Tears burned my cheeks as I heard my babies sing happy birthday to me over the phone and just longed for their little arms and warm sloppy kisses to enlope me. So you can guess this birthday I aint going ANYWERE!!!!

I trudged up the hall to the elevator, got in and dame it got stuck! Panic set in as I dont do goo din small spaces...breath maz......breath maz.....I pressed the open door and saw that I was between floors...breath maz......breath maz.......just as I was trying to work out what I should do, the doors closed again and the elevator went down to the 1st floor. I never jumped out of an elevator so dame quick in my life and for the rest of my stay there, I never used that dame one again.

I continued to walk frmo that elevator the 4 min walk to 'green' elevators and up to the 4th floor...were I had to press on a buzzer and wait for a nurse to let me in. 2 stood there chatting, watched me press the buzzer and continued to talk without moving. Another lady was standing with me and couldnt believe it......a doctor came up and opened the door for us......and I polietly said to the nurses that it was alright...I didnt expect them to hurt themselves......stupid woman! blah.

I had to wait outside mateauz room as the doctors were doing their night rounds. Parents had to wait outside as the doctors discussed each child andonly the parent of the child was permitted in the room.

My turn......I stood there not knowing what they were going to say when the head Nuro turned to me and said

you sure have one miracle child there

I asked what he had ment...my mouth went dry and I swear my eye's popped otu of my head. He had explained that the clot had not grown any larger but had infact started to deteriorate by itself. He still defently had brain damage but to what extent they did not know other then it being quiet sevier. There was the chanch taht mateauz could be or go blind, that his speech would be affected as most CP kids lose control over their tongue muscles, he more then likely wouldnt walk let alone crawl until the minimal age of 18 month to 2 years.....LALALA it was my birthday....I didnt want to hear this...lalalalal

BUT ****.......No need for the drugs...no need to make THAT decission...i didnt have my childs life in my hands...he was going to live.....he could come home sooner then expected..**** my baby was going to live!!!!!

It would have had to have been the greatest day in my life....dont get my wrong I loved my wedding day and the birth of each of my children but being told your child is going to live after what he had been through was everything and nothing.

I rang Jed again...bawling....he thought the worst straight away fo course...hearing a looney wife on the phone not being able to get the words out due to a release of stress and frustration....I think we just both ended up crying on the phone together for 10 mins. Although Jed was over 200km away...it was a closeness to him that I had never felt.

Our great news soon turned sour for me the next day. It was something that I didnt tell a sole...until Mateauz turn 3 months old. I couldnt take away the happiness that Jed was feeling and the chanch that we could be happy for a bit.

The clot was quiet large and was breaking up by itself. There was a chanch that a large bit could break off and still cause damage deeper in the brain. It particals would still be floating around until the body disposed of them naturally but there was still that chanch that this could happen again.....the doctor said that when Mateauz reached 3 months that we'd be able to breath easier as the clot should have been totally disinigrated by then. I know...its easy to say I should have told someone...I just couldnt. those who know me well, know I am shocking at keeping secrets...but this is just one thing I couldnt share....I just couldnt stress the people I loved anymore so it was just easier to keep it hush and I made sure the doctor never mouthed a word of it.

We had been given the all clear to go home...... my baby was coming home. He was still sick...still blue and small but he was coming home were I could take care of him and make him better. More research...interesting..I found some new age research that suggested that honey had blood healing qualities to it...hmmmmmm

I rang Jed...

What are you doing tomorrow honey...fancy driving to Melbourne????

jed had told the kids that they were going to buy something special. He rang me as they reached the car aprk. They had no idea. I stood there...bawling my eyes out, watching my boys looking around at traffic...then Wilhelm seen me and his eyes lite up

there's my MUMMY

Nikolaus caught my eye and started crying as he ran for me. I never wanted to let them go. I couldnt stop crying and kissing them. My baby girl looked at me with bewildered eyes.....she was scared...had I become a stranger to her...oh no..i had gained my baby boy back and lost the connection my daughter and I had. I tried to hug her but she cried and lunged for her daddy. I was so upset but so excited to finally have them there. Finally my darling husband scoped me up and planted the biggst kiss and hug on me that it gave me butterflies and made me feel like I was home. God how I had missed his arms around me and the smell of him...even his grizzly adams beard.

Now I had to reintroduce my children to each other again...and start along process of physio and appointments............

Why did I have to drink 3 glasses of wine before reading that!

Mateauz is definitely a fighter. He may have been a small baby, but he was, and still is, a strong baby.

You've been to absolute hell and back maz. And now you have the chance to talk about it. Good on you.

I made it to the last paragraph that time before I lost it. At least Im at home not at work. I really dont know how you do it Maz.

Maz, you are one extraordinary woman, will keep reading xxxx

The description of being re-united with your kids and hubby is one of the most beautiful things I've read in a long time. You should be so proud of yourself and the incredibly difficult journey you and your family have been on.

I can't stop reading.

I saved this thread till I could have a drinky poo with it......xoxoxoxo

*breath* just *breath*

i have no words yet.. im sweating and crying and feel physically ill...
Geez i love that little man xoxo

Gee i just read it all at once... My throat has the hugest lump in it and i just think that you are the most wonderful,strong mother. I havnt got anything else to say...im speachless for once..except thankgod your still hear mateauz.

Maz hun...hugs to you and your family for all you have gone through.

Maz i just read your journey and some stages i couldnt even see through my fogged up glasses from the tears in my eyes. You are an amazing person and you have a wonderful family and a beautiful little man. :hug::hug:

Maz, I've said it before and I'll say it again, you definately are wonderwoman.
I remember at the time of all this happening thinking how terrible it was but reading this and seeing in words just what you were going thru has me in tears and lost for words.
I think Mat has alot of you in him, he is very strong and such a fighter.

Speechless and crying my eyes out. Thank you Maz. Thank you for sharing. I can't begin to imagine what you went through. But your strength, determination and pure guts are beyond inspiration. Although I have read your journey over the last 10 months, to read it in one like this is such a gift.

Wow Maz, thankyou for sharing is all I can say.....

maz iam sat here with tears pouring down my face. what a amazing woman you are...and what a amazing family you have...all my love rach xxxx

a strong woman you are
a strong woman ul always be
the love you have for that child
well all of that is inspiration for me
thankyou

maz you are a a wonderful mum! Your children are so lucky to have someone like you. Jed must be so proud to call you his wife!
Thankyou for sharing. Mateauz has a beautiful family :hug:

There will be more girls...Im just building up the courgage to write it as I find it harder then what Ive already posted

Thank you all for your encouraging words.

I dont consider my self special, an inspiration a wonder mum. I have only done what each and everyone of you would have done for your child. Ive only done what ive been placed on this earth to do...be a mum and try my hardest at doing it.

My children are my inspiration...my means of life, my reason for my existance. I am the lucky one to have them in my life. Each and everyone of them imspire my every day.

Will get back to this in a few days...as I said it only gets better from here so make sure you get the tissues ready agani soon girls :)

thank you all again so much