And then there was 4 - Mateauz journey with Cerabal palsey

Happy Birthday Mateauz!!!!!!

Maz, What a fantastic day for everyone. To think about Mateauz's achievments over the last twelve months then to top it off with walking independently, his skills can only get better and better every day. What a clever little man you have.

Sjl

Happy birthday for yesterday Mateauz!

Maz - I have just read this post from beginning to end today, and I just wanted to tell you that I think you're amazing :hug:

Maz - I sat here and have read through this through the tears. :hug: to you and your beautiful family. Mateauz truly is a gift to you all and you are just so amazing hun.

:kissing: :hug:

Maz Hun I have been offline for WAY too long. I was thinking about Mat all day on his birthday, but have just been so busy and needed to get things done.

You are amazing hun. February will bring some good news for you. Mat will WALK into the paed's office. Hun he is taking steps earlier than many catalogue kids!!! You go Mat!!!!

If you are having one of those horrid blaming yourself moments, or 'I should have noticed' moments, TELL SOMEONE!!! You do not need to shoulder that burden hun. We are here to help. I know I notice things and fob them off as my imagination but I am making sure I mention what I notice now.

FYI hun, Em will see the DAP in Feb too ;) I hope they can figure some things out for both of us!!

maz,
you are truly a amazing women...strong...loving and always there.
mat - you are a amazing little boy...and a inspiration...a true fighter.
all my love rach xxxx

You story shows just how strong a mother's love can be.

You are amazing.
Lv spring

Thank you for sharing Maz. I have smiled through tears reading your story, such love and strength!

I'm not a terribly emotional person, but as soon as you were talking about missing your other kids while in hossy with Mat - I began to cry and I'm still bawling like a goose!

I suddenly feel very VERY blessed to have never had that scary 'will my son live' moment. In comparison, I barely had a ripple in the road compared to your rollercoaster. Thank you for putting life in perspective.

I hope you'll share this story with the Breastfeeding association as it is so well written they may like to put it in their magazine so you can inspire even more mothers and nursing staff.

Words can't describe the awe I feel for your journey and how determined you've been. Not even to do the best for your kids, but to do this post.

We thank you Maz. :clap:

ONE YEAR AGO

I sat in my brothers car feeling overtired, numb and like I was in a tv commerical. My brother was trying to be chatty (as he does when he's nervous) and I was a silent cold fish. All I could do was look out the window, staring into the sky behind us to see if I would see a glimps of the airplane that was taking my baby boy to the Mercy.

So much had happened the in the last 12 hours. I remember sitting in the gutter out the front of the emergency department, ringing Sam and baaling my eyes out. Dont ask me what i said...I just remember how calming her voice was and how it felt like a warm light compared to the cold I was feeling.

Yes...today one year ago our lives changed for ever. My beautiful baby boy was about to go through the most horendous time of his life and I couldnt stop the landslide coming.

The friday before hand Sammi and Trev (along with Caleb) came up to our place. Sammi took the most beautiful photo's of my little man....I never realised how much those pics would mean to me until after the dust had settled. I look at those pics and wondered how much pain he was suffering on that day. He was crying so much and I kept saying to Sammi...look at how blue he looks....Im pretty sure that you can see how blue he was in some of the pics. I also worry that I made him upset when taking the pics. But there's only so much cotton wool in the world isnt there.

So this morning I was in the lounge and in bounds my little red head...He didnt see me at first...I just whispered his name...Mateauz...and he instantly turned around and ran for me with his arms out and his big cheese eating grin on his devine face.

Today's the day I will reflect on the last year.....I'll thank who ever I can in my mind for the comfort, the support and love that we had over the last 12 months.

Thank my hubby for being not only a pain in the butt but for being my strength and tower of support.

Thank my gorgeous Nikolaus who has not only had to deal with an autistic brother but now a baby with so many different needs that he puts his own aside and helps when he can. Thank him for putting up with a maniac mother who flips at the worst times and yet he still says nothing. Thank him for his love and his midnight cuddles and thank him for being so patient to us all.

Thank my devilish Wilhem who loves his 'little guy' to pieces and tried his best to be patient with him. Thank him for being as beautiful in nature as his daddy is and for reminding his big brother what a pain he can be.

Thank my darling little Vyolett who chases 'teauz' and gets what he wants...showers him with kisses and comes and gives her 'mama' a cuddle when she is crying. Thank her for being a mini me..in so many ways and for making my life interesting on so many levels.

And thank you to my little Mateauz. My little miracle...you were the only baby we didnt intentional 'plan' you were our surprise baby who has bought so many positives into our home and hearts. Yourve taught me to be patient...to see things on the flip side.....to see the bigger picture....to strive for the impossible..to believe in myself. Although your only a year old...you have given me so much more then you have realised.

I live for your smile, your hugs,the sound of your voice......the feel of you. If I had to relive the last 18 months, as hard, as scarey and as life threatening as they were, I wouldn't change a thing.

I love you sunshine boy.......more then words can say.

Oh hun, you've come such long way on this journey. You've grown stronger and so has the rest of the family. He is a miracle in more ways than one and hes so lucky to have so much love around him..
Enjoy today and reflect on the good times xoxoxoxox

Maz - you're a truly talented writer.

Thank you ever so much for sharing your story. I am so glad you found it within yourself to do this. You are very courageous.

Maz - you have written your story so beautifully - you are an inspiration to us all

oh Maz, that is just beautiful. Today must be such an emotional day for you. Remember we are all thinking of you.
And I want to say also that Sammi, you are such a wonderful, caring person. Maz speaks so highly of you. I am so glad you two have each other :grouphug:

I hope one day you give this to the kids to read when they're older and can understand it. I'm sure they know how you feel towards them, but if there is ever any doubt, this will put their mind at ease. You are such a brilliant mother, you should be very proud.

Now go give each and every one of them a big kiss and cuddle! :D

:cry: that's beautifully worded Maz

simply beautiful Maz....
i think i have someting in my eyes....*very dusty here..sniff sniff

There is nothing more to say than :comfort: You know we are here for you babe.

:hug:

maz, i would be so very proud to meet your gorgeous little boy

xxx

:hug: