hey sweet, i just saw this post... i pray that she makes a full and quick recovery and the dr's know exactly whats going on here. Big hugs to you all.:grouphug:
hey sweet, i just saw this post... i pray that she makes a full and quick recovery and the dr's know exactly whats going on here. Big hugs to you all.:grouphug:
Beema :hug: I hope that you get some more answers today and that DD starts to feel better soon. Here's hoping for a speedy recovery. I hope you can all get some rest soon.
Dh has been brilliant the last two days, he looked after her while I went to work as I had someone over from Melbourne that I couldn't cancel and he did so well, he tried so hard and I think he really feel like he had failed, but we both tried as much as we could :(:
They are now thinking it may be a delayed reaction to her immunization 2 weeks ago :rolleyes: I think they are really stumped as our we... her throat is red but not bad, tonsils inflamed a bit but once again not bad, no diahorrea or vomiting - except for when they put the NGT in, and no more old blood is coming back up the NGT so that is good :)
No luck with the drinking yet, she is sleeping atm but we are going to have to wake her shortly as it has been 6 hours since we stopped the NGT fluids, so if she doesn't drink we need to start them up again.
I have a bottle from home and we have an array of drinks and cups, custards ready to go, in hope of intising her to drink something :D Surely one will work. We are letting her sleep as long as she needs to, even though it risks the dehydration again, because if we wake her it will shift her straight back into a negative cycle, as everytime she has been woken here something "bad" happens or upsetting.
We are going to give it a really good shot and if it doesn't work another round of the fluids, then we have to wait it our and trying again.
Drink baby girl Drink! Please :D
Thankyou all again :grouphug:
Sending lots of :hug: your way.
Come on Baby Girl - You can do it!!!! :)
You and your DH have done an amazing job and I know you will both continue to do so.
xxx
There is always another chance to catch up ;). Getting Nikita better is first priority.
How is Miss N going now?
And how are YOU going? :hug:
You guys have done an outstanding job trying to help out your little girl. I really hope she starts to take fluids soon and feels better.
Spring xx
Thinking of you and hoping things improve soon!
Thankyou again :grouphug: it is really great to have wonderful people thinking about you.
She drank some milk, just enough for us to come home :leap:
I am a little concerned with the suppositries, we did a lot this morning and 45min after she screamed and cried, a real blood curdling scream, arching her back and completely inconsolible, until she fell asleep. I didn't think that it was related to them, then this afternoon we gave her another dose just before we left, and 45 minutes later the same thing, I had to leave her on the floor and just lay down and just be there for her, she was arching her back again, crawling all over, but haphazardly, rolling, writhing in pain, it was a very painful cry.
Has anyone seen anything like this before?
We are going to try her next dose as an oral dose, but if she refuses we will have to go and get some suppositries as we really really want her to drink more.
If we find that we can't get the fluids into her again, we take her back tomorrow, her Paed/Dr team are on again @ 3pm, I just hope she hasn't developed an aversion to all the different things we tried earlier to get her to drink. As putting her through it all again would be terrible.
I am pretty tired, not a lot of sleep, especially as we got setup at 10:30pm in a room (private which was nice), with hourly OB's and the proceedure at 3-3:30am to collect the urine and resettling after each thing it was pretty exhausting. Then up at 6am for the day for her with napping/playing/getting upset and worked up all morning and afternoon.
I am hoping for a good nights sleep all around tonight :crossfingers:
Thankyou all once again :grouphug:
Hope she's on the mend now hon.... xxx :hug:
thanks Pix, I really hope she is.
:cry: :cry: :cry:
Nappy has been bone dry for the past 7 hours, we could only get the suppository as a 125mg done and she was on 185mg in hospital, and she has drunk 100ml since 1pm and that is all. We have already spoken with the ESS (Emergency Short Stay), I just don't want to have to take her back through it all again, it was a horrible night last night, just horrible.
:cry: :cry: :cry:
oh goodness Beema *hugs*
I've never used suppositories for DS but hope she takes the oral dose OK. Here's for a good night's sleep for all.
She refused the oral dose, we tried letting her do it, going gently, in the end holding her down, what ever went in came straight back out again. So I had no choice but to use the suppositries :(
Oh, Beema :( I'm so sorry that little DD and you are going through this still :comfort:
I really hope that the pain and severity passes really soon so that she can start to take fluids and medicine again in comfort. It must be so difficult right now. Sending all my healing thoughts, hun :hug:
just letting you know im thinking of ya vic and hope she gets well real quick :hug:
Thankyou girls :hug:
Last night was a bit more improved (probably as we didn't have the hourly OB's) and proceedures like the night before :D N woke at 3am screaming and upseat again, I managed to get "some" Panadol into her orally, not sure how much made it....most of it ended up on the bed
I took her in the spare bed (Queen) and we cuddled up and she eventually went to sleep snuggled in, and we got up at 7:40am - which was a lovely sleep in :D
Her nappy this morning was about 70grams for 13 hours, so pretty dry (and very dry considering she usually soaks through min of 500gram, but up to 700 when leaking). So it was pretty clear that all of the fluids she had in hospital were just absobed back into her body. I popped her on the scales and she has lost 800grams which is what her weight was before we took her in for the fluids. But we know that the loss is mostly fluids and the fact that she has hardly eaten for 5 days. So she should gain it back reasonably quickly
But a little celebration this morning she drank milk without Panadol first!!! :leap: She had 80ml, which isn't a lot, but it is a great start, she also ate some peach, a milk arrowroot and a few teaspoons of yogurt. So a marked improvement.
She now has a rash over most of her body, I rang up health direct and it is the ending of a viral infection, and it will stay around for up to 3 days. So little Miss is still miserable and a bit itchy, I will go off the the chemist again (I should buy shares in them :lol:) and get some hydrocoartizone and and antihistamene (sp?), which should make her feel better.
We have had to cancel the photography session tomorrow and we have rebooked for March, which was the earliest day we could get in :o so now to make sure that she doesn't get sick again! Also she missed out on another prem friends birthday party today :( and we won't be going to a birthday BBQ tomorrow, and MIL isn't coming by today as we can't expose her to anyone while she has the rash.
She has just woken up from a morning sleep and she wanted another peach, so she is sitting in her high chair picking it appart, and nibbling on a little bit of it, most of it is just mushed on the tray, she might make another tower like she did this morning, she LOVES cheese and had a bit, then broke it all up, created a tower and placed all the peach pieces on top. At least she is occassionally having a sip of water. I would really like her to get some more fluids in, but she wasn't interested in the milk this time, but we will keep at it, she seems to drink a little more if we just leave her to it.
Her nappy was dry with a loose stool, which maybe just because she has really only had some milk, so no solid foods.
Hopefully I can report back later tonight wilth news she is drinking a lot more and we have some wet nappies, I really don't want her to have to go through it all again :(
Good to hear she's having some food and drinks Vic.... :crossfingers: it all gets a lot better from here!
:hug:
Glad things are getting better.
DD2 spent 5 days in with the NGT as after an hour & a half the drip wouldn't go in & she was choking & bringing up panadol. She had tonsillitis & glandular fever, so had a really sore throat too. Its so hard to get them to drink. It took 4 of them to hold her down just to look in her throat. She's still scared of it.
DS also spent 2 days in with a viral infection. Same thing. Completely clueless til the rash at the end when we were on our way home.
:hug: Hope nothing else happens for a while :)
Big hugs to you and your family sweets, just saw this thread :cry:
Oh, the dreaded hospital visits.........Sounds like she might be on the mend though so fingers crossed it is manageable at home now??
You have both done an AMAZING job with her, it's so hard not to get really frustrated when you KNOW all she has to do is drink and she will feel better !!!??!?!? Being tired and overwrought doesn't help either..... big, big hugs to you both
Thanks Pixie :hug: onwards and upwards :D
BJ I hope so too, I have already told DD that she has to stay well this year, and no more hospital visits or stays :)
Thanks Sal, yeah it is all good at home now, we had out first wet nappy this morning and she ate dinner tonight which was the first time in 6 days :o, she has a rash all over her body still, but hopefully it is clear in the next day or so.
In reality we probably should have stayed another night, as it was pretty horrible Friday night, but we got there in the end :D
She was toddling around the house today and qas quite chirpy and ate solids :leap: I am soo looking forward to the solid poos and not the runny one's ont he cloth nappies :lol:
DH and I were saying when they get well you really realise how sick they were as they get better, and brighten up.
Thankyou all for your lovely messages and support over the past week we really appreciate it all :grouphug: