Just diagnosed with PCOS. Please help!

Well, success at last hopefully. Please note this doctor is my family's GP and he has known me since before I was born. The only reason I had went to other docs before is because he was on hols when this all happened a couple of months ago.

He is requesting that I have the bloods again for FSH, LH and also checking thyroids and a blood pregnancy test (Pffff, I wish!!) THEN from their if he thinks that the levels are the same as when I first had them done nearly 2 months ago, he will give me e referral to a specialist.

At least he was willing to admit that he is not an expert and said that I should be visiting with someone else who is better qualified to explain everything. AND he didn't think that I was being impatient with the arrival of AF.

So I will have my blood test tomorrow morning at 7am! and then hopefully see whether they show up anything new.

I have heard that Metformin can get PCOS sufferers ovulating regularly after 4 - 6 months of treatment. Maybe you won't have to wait that long. Must make the waiting a little worse now that you definately know AF should be coming soon. I suppose once you're ovulating, you don't want it to come!!!

I had a bugger of a day at work and am just glad that I'm getting closer to seeing someone that knows about my problems. Best of luck tk1999, hope AF visits you soon.

Keep me posted, xox

You must have typed your message while I was typing, I'm soo jealous I just burst out into tears. Congrats to you, I'm sorry I didn't mean to put a downer on your news. I'm just green with envy

Pooley, sweetie, I am so sorry... I didn't mean to upset you... after I had posted the message I thought how would I have felt reading that. Then after reading your message, I welled up...

OMG I am a dil, I should have been more considerate especially as you have been waiting 2 months (I think) longer than me... no downer on my news... I am just sorry to have been such a dil.

The GP sounds much more positive. I hate going to other doctors when your normal one is not available. Best of luck with the tests tomorrow... I will keep my fingers crossed for an answer.

xoxo :hugs:

Hi Ladies, sorry haven't been around for a while.

Good to hear tk1999 that things are starting to happen. Another positive note for you that it will happen for you is that I miscarried the yr before having DS and I had so many friends that were so sad, but I just looked at it as my body can do this. DH was always positive that it would happen and it did. I wasn't so sure until then. I found out I was having DS 9mths later.

Pooley hope your GP gave you the referral. I know it's the last thing you want to here but give your body time. It wll happen..... I came off the pill in Aug '03,diagnosed with PCOS Dec 31st '03 and didn't get pregnant until April 06 which ended in miscarriage. But I wouldn't take the medication I just new I had to loose the weight once they explained how PCOS worked. Stress is also a big factor with PCOS it means there are alot more hormones surrounding your ovaries.

My cycles were regular before going on the Pill and then when I came off it I didn't get a cycle for 6-9mths. I was told that PCOS usually rears it's ugly head after a lifestyle change. Mine they believe was due to moving to Australia and being in a different environment. Not eating the same, being homesick and not being as active as I was (found it a little daunting when I first arrived esp being 20 with no fam). The gene lies dormant, but they are not sure exactly what it is that triggers it.

Thinking of you both it is a very daunting time and it's the unkown that drives you insane! :rolleyes:

It's ok, it's not your fault I'm just super emotional atm. My hubby just left for work and won't be home til Thursday and I just hate being by myself because I just worry, worry, worry and make myself sick.

I can't talk to anyone else about it because I haven't told anyone in my family that we are ttc. I know the stress and worry is not helping me either but I can't help it.

Nights alone are just depressing. I was gonna go get off my arse and excersise my frustrations out but I can;t be bothered to get up. I just hope that soon,for me the tests and c.r.a.p will be over and I can start on the journey that you are on. Instead of the "someone help my body function normally before I go mentally insane" one I'm on now.

Really, tk1999,I'll get over it eventually it was just my initial reaction because I saw it in your signature first before I read your post

Pooley, we must be living parralell lives... my DP is working away this week also! He is working about a 4 hour or so drive from where we live but is not sure what day (if any) he will be home this week. I too hate nights alone and HATE sleeping alone. I hardly slept at all last night just tossed and turned until I got his pillows and put them in the bed as though he was lying there. Sad I know but it got me to sleep... ok off to get some dinner organised.

Hmmm, had my dinner but i should go and watch some telly. I don't know if I'll sleep much tonight but I have nothing much else to keep me preoccupied. My hubby was away in Mackay when I was first "diagnosed" that was an interesting couple of days.

At least when I'm at work I'm distracted. I hope you can sleep a little easier tonite knowing that things are going in the right direction. Everywhere I bloody turn there's babies, driving me madder than ever, again, probably only cause I'm jealous.

Won't be on again tonite, but will let you know what the tests say probably Fridayish. I don't think there will be much difference but then I can at least make another appointment for very early next week for that referral. Something to aim for I suppose.

Nite nite, (I won't say good incase I jinx it for you!)

Thanks for your support, it's funny how you can feel understood and connected to someone when you've never met them before. And there k's away.

Talk soon

I dont have much advice since everyone else has given you plenty of ideas :). I just wanted to lend my support to you during this time.

Thanks haleyscomet.

I am a little disillusioned atm. My GP rang me today with th reuslts of my bloods. I had tests done about 2 months ago that "confirmed" PCOS. Now my GP left me a message on my voicemail to say that there is "NO" indication of PCOS in my test results. He knows that there have been ultrasounds done of my ovaries and they have been confirmed as "polycystic".

So, when I rang back, his wife is the practice office assistant and she said he hsd left for the day but told her to tell me something he thought was important. She said that "ovulation was iminent" and that I should expect a period in the next 2 to 3 weeks.

So according to the tests, and him, I should be ovulation soon. So......

Forgive me for not jumping up and down with excitement that I "don't" ahve PCOS but I am a tad sceptical. I only went for a 2nd opinion to get a referral to a gyno ABOUT my PCOS because my other doctor wanted to wait and see.

Now I have a completely different diagnosis??? What am I suppose to believe??? I really want my GP to be right but of course i do..... he told me what I wanted to hear!!!!!

I'm completely and utterly confused right now. If my FSH was 6 and my LH was 11 in the previous test, how do I know that they aren't just seeing the same LH surge in this test, but thinking that it's to do with ovulation.

I'm so sick of doctors and I wish I could've spoken to him but I feel like I can't believe him.

I think I will wait another month, and then if my period hasn't come. Off I go back to him to ask, "well, where is it???"

I swear I'm going insane with this, you have it, no you don't, yes you do crap.


Lord help me.......

I am so sorry you are going through this right now. I do know that you can have polycystic ovaries without having polycystic ovarian syndrome. I would definately go and see a good gyno who can perform a bunch of test and will be able to confirm if you have PCOS or have polycystic ovaries and not the syndrome itself.

Sorry it doesnt help much but I am thinking of you and I hope you get some much needed answers in the near future.

Take care.

Hi Pooley,
I haven't been online for very long lately so haven't been able to write a message to you... how are you feeling now? Have you had any further discussions with the GP rather than his wife? I really hope it isn't PCOS... but I agree with you, I wish they would make up their minds!

Well as for me, AF may have returned which I thought would solve everything but now I am told that it may take several (and they can't define what several means!!) cycles before ovulation... so I feel that AF really means nothing now.

I look forward to hearing some good news from you soon.

Hey,

After having the doctor tell me ovulation was iminent on Friday for a test I took last Tuesday, I THINK I may have AF. I thought it would be a bit soon because they said 2 to 3 weeks before AF but I think it's here!!

Very very light, strange colour and absolutely NO PMS symptons whatsoever!!! (Did have some cramping today though) Does anyone think that this could be an ovulation bleed?? I know it's rare and I've never ever had one before, but the timing doesn't seem right...

I know, I know, I'm thinking about tooo much but even though my AF may be here, it doens't rule out PCOS u still have AF but they are just irregular and I would say that waiting nearly 4 months ISN'T regular.

I started temping the other day so I will keep continuing with that, but should I just keep charting my cycle and see what happens??? Hope that I get one next month??

Hmmmm, anyway, I will keep you posted about how this AF or whatever goes. I'm guessing it may take a couple of cycles to get my body going. I just hope that I don't have to wait 4 months for the next one..... Which would also mean that PCOS wouldn't be a likely diagnosis.

Fingers crossed. Thanks everyone goe putting up with my ranting and raving.

No problems Pooley, we need to stick together in these times of need. My first AF was also a bit weird at first, it wasn't red but it wasn't brown it was just well... weird but later on it was more red and was not at all a heavy AF. Maybe it is the first sign of AF... did you have any AF whilst the Implanon was in? Maybe it is just your body getting rid of the build up over the time the Implanon was in???

It could be an Implantation bleed but I would think very uncommon - I have been told that it could take several cycles for any person after finishing on the pill or Implanon... sorry to burst the bubble but it is likey AF which is still good news as it means everything is waking back up!!

I have my fingers crossed for you!

I do hope it's AF as well, I know it's ridiculous to consider implantation bleeding, or ovulation bleeding but my minds not thinking straight at the moment. Just trying to find out what my body is doing since no one else is seems to be getting it right!!!

So tk1999, how did your AF go?? Was it a long one?? HOw are you handling the "several cycles before ovulation" stuff?? Now that you're on Metformin, do they keep track of your ovulation somehow, or whether you've actually ovulated??

Let me know.

Any progress on the AF front for you, Pooley?

AF was… well um… it was an experience. I had really bad cramps the first two days. AF started Tuesday afternoon and the cramps were in full force by that night – the cramps continued through Wednesday but the flow wasn’t too bad as I said it was a bit odd in colour at first but by Wednesday morning it was noticeably red. It was a lighter AF than what I expected and only lasted from Tuesday night to Friday night as Saturday morning there was nothing at all and nothing by Saturday afternoon. I can’t for the life of me remember how long AF used to visit for before Implanon but my sisters and best friend all say that they have AF visit for about a week so maybe the cycles will build up in intensity… I don’t know anymore – I really wish I had enquired about life after Implanon prior to having it put in but hindsight is always 20/20.

The several cycles issue well… I don’t know that I am handling it very well, it was such a come down after AF arriving that I just cried, it was all I could do. But I started charting my temps when AF started, so hopefully that will give me some sort of an indication if ovulation is occurring. I read somewhere that persons on Metformin (or other meds) should not use OPK so I suppose temping is my only hope at the moment, it takes a bit of getting used to but if it helps confirm ovulation then I am more than happy to chart!

Yes, seems like it is AF visiting me for the first time in 14mths!! So when the doctor said ovulation was coming, most likely it had already been. I suppose something that he checked for meant that I was/ had ovulated?? So hopefully I won't be getting AF without ovulating.

Stupid me had stopped temping cause I had cracked a wobbly about everything and I just didn't bother. So, I have now started again, but I missed this morning accidently, and will see if it happens.

Now, the question is do i continue taking Virex, that's the stuff that some gals talk aabout on here that helps your AF to come and make them regular and stuff. I DIDN'T tell the doc I was taking it, it is a nature's own brand tablet. This also helps reduce symptoms, which may explain why I had cramping on first day of AF and haven't had anything since?

I get what your saying about come down. I was more ****ed that the doctor told me I o'd, that i was spewing I missed a chance if there indeed was one!!! Things are at least moving forward for you, atm I am still unsure at what my diagnosis is, or if there is still something to diagnose!!

I think the hardest thing that you're thinking about is the time it's gonna take to get your first bubba and that your life plan didn't take into consideration problems with conception. Cause i know mine didn't!!!! Anyway, try and keep your eye on the prize and take things as they come which is all I can do atm. Good luck, no doubt I will be asking for your help in the next couple of weeks post AF to see make sure I son't miss my next opportunity, if there is one...

oxo

Sorry I haven't written, this week has gotten away from me. Yeah whoo hoo... AF finally showed up! How has it been? It is such a feeling of relief once she shows up. Hopefully she is kind to you on the PMS, cramps etc. I am so glad for you... we can now both 'truly' commence the TTC journey. I am currently on CD12, my temps have been fairly consistent no major increase as yet but hopefully soon - at least I will have an indication of whether or not I am actually O'ing or not.

Temping is hard... well not really but trying to wake up at the same time every morning is doing my head in but I am usually in a range of half an hour so I figure that is close enough (well at least I hope it is)

I am not sure about Virex, I hadn't heard about it before you're post... what have the ladies on BB said about it? If it is going to make it regular and not interfere with TTC then I don't see a problem with continuing it.

Have the doctors made up their minds as yet re PCOS? What is there latest stance?

I completely agree re life plan... mine definately did not take into consideration any problems with TTC and I like to be in control and this is something that I have to accept I cannot control... at first it did my head in but I have just accepted that if things take longer I can always reduce my studies from 2 subjects to 1 (in addition to full-time work I am also completing uni studies part-time) which will alleviate some stress.

Are you taking any pregnancy vitamins? I have always taken a multi-vitamin and have now switched to one that doesn't have vitamin A (because it is a no-no for TTC) but am not specifically taking a preg or TTC tablet... do you think it makes a difference?

Again, I am so happy for you and your AF visit!! Here's hoping that we are both pg soon!

Hi Guys,
Im in this thread now as I have had to leave my belly buddy group because I have just had a miscarriage with bub #1. Pretty shattered as was so excited I fell pregnant naturally as was just about to start clomid tablets to get me ovulating. I just feel like my body is totally out of whack, first endometriosis, then PCOS then a miscarriage. What other gyno problem do I need??? any way just need to vent. The gyno said he doesnt want me to TTC till after I have a normal period again. But who knows when that'll be? probably months like before!!!

erybery,
I am very sorry to hear of your loss. Glad to assist with a vent whenever you need. Both Pooley and I have been doing a bit of that lately as we both had Implanons removed and only just recently got AF - so even though we are in different circumstances we understand the whole waiting to TTC thing.
I hope AF visits soon so you can start to TTC again. I am sure all the lovely posters on BB will be here for you when you need us.
Love and hugs sent out to you.

Ery, bery,
I am sorry that you miscarried. You are quite welcome to vent in here whenever you feel the need. Waiting seems to be the hardest thing to deal with. Waiting for the docs, results etc, waiting for AF (which was my particular problem) waiting to see if you o'lated, then the ttc wait!!


tk1999,
I am yet to speak to the doctor again after the phone call last week. I think he thinks everything is a ok because I got AF, BUT, as I've said repeatedly, i could still have PCOS even though AF has arrived. I think I will wait to see if AF visits me next cycle and then take it from there. I think that will be a good indication of whether my body is working properly.

I have been taking Elevit since coming of Implanon and Virex only about 2 months ago. There have been some posts about it. I think the only thing that concerns me is that some say that it can cause a miscarriage in very early pregnancy so you're suppose to stop when you find out your pregnant. I still have had no other AF symptoms since the first day so am dealing with that really well!!!

My temping has been fairly consistent. I missed the Thursday just gone but I generally do mine within 1/2 hr time slot in the morning. I hope it doesn't matter too, I'm not being THAT anal about it yet. I think AF will be gone by tomorrow. I hope so, then we can just get back to DTD and crossing our fingers.

Nice to hear from you, chat soon. oxo

I agree with Pooley waiting is the hardest thing EVER... so maybe we can all wait together!

Erybery, how long did AF take for you previously? I hope she arrives really soon!!

Pooley, I hope your doctor gets on the same level as you soon. If he doesn't think it is PCOS simply because you got AF maybe point out to him that people with PCOS still get AF it is just not always regular and for some it is regular but they do not ovulate. I know you are frustrated with your doctor lol recently so have I! I love that I get so riled up about a person who lives a great distance away but they are having issues with their GP! Yeah I think the wait for next AF will be even harder than waiting for the first AF because we know when she should arrive so there is an expectation where as the first time it was waiting for the unknown. I might look into actual TTC & pg vitamins rather than just the one I am currently taking. I want to assist TTC as much as I possibly can.

I am now waiting for my temps to show any chance of ovulation but my temps seem to jump a lot... CD13 and no sorts of signs or real patterns (well compared to other people's charts anyway) but as I have said before I may not even ovulate just yet... argh to waiting.

Tk 1999,
when I came off the pill the end of march it ook 76 days for Af to arrive, then the next was 60 days. Both of those cycles the Doc didnt think id ovulated by looking at blood test results and then the next cycle I fell pregnant and lost it. It looked like id actually ovulated right on time, so very weird. The gyno thinks my cycles could go haywhire again so said I could be waiting awhile. I know what you both mean bout waiting for everything, its ridiculous. I get terrible cramps when I have Af but now I really want it regulary to get preg and I dont get it!!!

erybery,
my oh my... very long cycles then! My first cycle following Implanon removal was 10 weeks (or 70 days) to the date - I don't really remember the last cycle I had whilst the Implanon was in (think it was March 08) so rather than counting from then I just counted from when the Implanon was removed so I have no idea how long it will take for my next cycle, I am currently CD13 so will wait and see if by simply getting AF back all has gone to normal.

Has anyone been able to give you any sort of indication when she might return or is it a matter of wait and see? Maybe the tablets Pooley is taking might be of use to you... Virex... I don't know much about them but Pooley has said they are discussed in the BB forums.

I'll keep my fingers crossed for you.

Oh, goodness

Aren't we a bunch of stressed out, impatient mothers-to-be!!!! Our bodies are truly screwed up. A reminder today of how easy it is for others was my sister-in-laws daughters christening. (I didn't go though but hubby did)

She conceived her first within 3 months of being married, then popped another one out 20mths later. THEN no.3 18mths later. She's only 24!!! Anyway, I don't dislike her because of her children, her personality is enough.... That stuff just adds fuel to the fire.

Anyway, that's my whinge for the day... TK1999 I'm guessing CD13 is close to the time that you should be ovulating?? My AF lasted 5 days so I'm not quite sure when I will be expected to ovulate??? CD14??? Any ideas?? Or do I just go crazy DTD in the next week and a bit?

I'm sure hubby won't mind. Anyway, hopefully christmas will keep us slightly distracted in the next couple of months.

erybery, how did they diagnose your PCOS? Ultrasound and blood tests?? I am waiting to see whether my AF comes round next cycle or whether I may have PCOS. I had a ultrasound in Aug that showed cysts and then the blood tests also came up positive but a recent blood test apparently showed no indication of PCOS, so as you can see I am still very confused atm.

:rofl: I think Pooley has described us in one!!

Pooley, well we are mostly told that ovulation should be CD14 or so but I don't think my temps are showing anything of any significance... so will wait and see. I think CD14 ovulation is based on a 28 day cycle and I don't really know how long my cycle is going to be. It is that dreaded unknown again.

We are both in the unknown re cycle lengths but if you have a significant rise in your temps then it may be ovulation so :bd: like crazy around any temp rise! That is what I plan on doing anyway... DP doesn't know I am temping (well I haven't told him) so if I see any rise I will just be enticing him any which way possible and I don't think he would mind either!

God christmas, it is fast approaching, I remember when I had my Implanon out I was thinking yeah, I am going to be able to announce I am pg by christmas (ie the 12 week wait would have passed) but alas the TTC is taking longer than I had anticipated!

He he :D It just makes me cranky that men don't have the same rubbish to deal with!!

I thought with temping you're looking for a low in the middle of your cycle, that will be followed by a high? Oh my god, do I even know what I'm doing?? :o

How is it that you are keeping the temping a secret??? You must be very sneaky! I'm very obvious with mine. Though I am sneaky about coming on here because hubby thinks that I'm obsessing. Poo poo to him tonight 'cause he's not here. :angelic:
I've got to talk to someone because he'd get sick of it if i gabbled to him about ttc rubbish, so I'm really doing him a favour!!

Re temping, from what I can gather you have low temps and then once they spike and stay that way for a few days that is ovulation and then the temps may lower after but it is better if they stay high as that can indicate pg is underway. Mmm maybe I should read up on it a bit more so I know what on earth it is I am looking for.

DP leaves for work before I even attempt to start waking up so I have the thermometer next to the bed but he doesn't notice it (or he has and hasn't mentioned it) I record it in my book and then onto FF later that night, I am a part-time uni student so am able to covert my FF entries and BB online time. DP also thinks I am obsessing slightly but as I have said to him several times I like to feel in control of some things and even more so for things I really cannot control.

Lol it amazes me how similar we are - I also feel that I am better talking (typing) these TTC issues out rather than knawing DP's ear off to no avail. Yep they should both consider themselves very lucky that we are sparing them the intricate details of TTC.

Indeed, we could be annoying them much more than we really are!! Just recently my DH (I hate using that shortcut) has started asking about how my temping is going and what it means.... and when we shold be DTD, how strange!! NOT Anyway, I think his mind is not quite on the long term goal that mine is right now, but that's men for you.

My temp dropped today to the lowest that it's ever been. I hope that's a good sign, below 36. It was never that low before AF returned. Don't know if I'm being anal but I guessestimated a cycle length and added it to an online ovulation prediction website and had a look. So hopefully IF, and that's a big IF my AF is meant to return then I have something to plan for in the next couple of days.

Fingers and toes crossed big time.

Yeah long term goals are not DP's strong point either!

I still have no strong indications of an impending ovulation - and today is CD15 so there goes my 28 day cycle theory... oh well will have to keep an eye out for any temp rises etc. We are just DTD when we can and fingers crossed at the moment. I also have my fingers (and toes, arms, legs etc) crossed for you for something in the next few days.

As we have said before the waiting and unknown are the hardest part and I am really getting over it - it is so hard because there are 3 pg people in my office and different days just do my head in.