Long Term TTC & Assisted Conception 2012 July

n2l - ooooh, new FS - be sure to fill us in... i am still contemplating seeing him too... ;)

myturn - hate it when you hit a vessel, those bruises are nasty. tend to not hurt afterwards so much, just look impressive! glad you're feeling a bit better today. xx

PS - yep, usually feel full before epu. only time i didnt was last stim, which i had more eggs collected - go figure. best of luck for friday. :)

emma - always good to get a couple embryo's squirreled away for later... hoping you wont need them though. xx

hi miss b, mrs mac & everyone else. :)

afm - technically i am in the tww, looks like i ovulated tuesday (cd 17). i dont go in there on a natural cycle though - it would seriously be the 8th wonder of the world if i got pregnant naturally. (i hear you all though, 'you never know...'!!) xx

Okay, saw the new FS.

In his words, he is a "cowboy" :lol: He recommended the following -

- NK cell biopsy in his room on 23rd July (like a pap smear)
- Four months of DHEA, melatonin, stem cell therapy (costs about $2k)
- Use of G-CSF (a cancer drug) which has had some really, really good results for women who have repeated IVF failure or recurrent miscarriage.
- Stim cycle using colorado protocol, also an experimental thing of injecting hcg directly into the uterus at time of transfer.

He didnt seem that concerned about my weight (although he said it would be good to lose some kgs) and said that, given my AMH/FSH I have about one to two years left of ttc.

Oh, also, I read my file. My current FS wrote I had a chemical pregnancy last October. It was weird reading that because I never thought of it like that. I have to admit it made me a little teary :(

Geez... I'll have to hit google to find out what some of those things are - good that there are 'things' out there to try though?

You glad you went?

(And omg - injection in to uterus!)

Sorry, on phone & didn't get all your post - hugs too. Xx

Im glad I went but then I am scared I am going to get my hopes up again. Terrified in fact. Then if it doesnt work I will be devastated. So it's your job to kick me if I start being positive and optimistic :lol:

DP is worried about the side effects of all the drugs. I'm hoping one side effect will be a baby!

FS said he had a woman just get pregnant on her first cycle with him - treating for NK cells... SHe had had done 29 cycles with other doctors :o

Oh yeah, he wants me to up my dosage of coQ10 from 300mg a day to 600mg a day.

Great news N2L! I understand the not wanting to get your hopes up. It sounds like you will be doing exactly the same as I am on this time. I hope it works for you:) after such a long journey already:)

dont worry, you have a friend on the realism boat here. ;)

29 negative cycles, & a positive with him - that's not just coincidence. did he tell you her age? could be i guess, but not likely. maybe you could just start out slow - dont have to jump straight in to the serious cancer drug treatment/jabs in the uterus etc. you could try the nk cells thing, see how it goes... add the other stuff in later if you have no luck? its a lot to take in atm, and im sure you have some serious dr googling to do - but at least you got some info that you didnt already have. there are options/alternatives to try, if you decide thats what you want to do.

(btw - im glad he was able to treat you for all your issues, repeated ivf failure/infertility, rather than getting hung up on the weight thing.)

Wow N2L! That's a lot to take in! Kinda nice to know that there are some other options out there - guess it shows how it is important to get a 2nd opinion sometimes.

Whether you get your hopes up or not, it will still be a kick in the guts if it doesn't work. Try to enjoy the 'hope' while it lasts xxx

How did you get onto him??

Wow, 29 cycles? That's unreal, I love this lady's perservenience and finally getting someone that made it happen for her . I'm glad this new guy has got some new strategies hun, and there is no reason why you shouldn't get your hopes up. I am feeling a bit lost in my cycle, I am thinking if it doesn't work I will either have a really serious chat to my FS or I'll change to someone else. I just don't see how this guy thinks that doing what worked in the first cycle 4 years ago is going to work now. I did my homework and suggested a few things but he still said to stick to what worked. The thing is, my eggs are much older now & my AMH is very low.

PS - Are you doing something similar???

my turn - both my oncologist and my current FS recommended him. My FS did the referral. He is at Monash. I am currently at MIVF. I can PM you his name if you like. He is known as a bit of a maverick.

MissB - Dont give up yet xxx

Andie - It's good to know I have a fellow realist in here :lol: ;)

PS The woman was 39

N2L yes most of what you mentioned I am doing.

Stim cycle using Colorado protocol & my first cycle I had an injection into the uterus at transfer did your FS mention what it was actually called?

I take 600mg CoQ10, Vitamin D, fish oil, elevit, progynova & melatonin. My DH laughs at me when I say I should rattle! ;)

Oh & this time I am taking the G-CSF injections daily it's pricey but when you look at how much a cycle costs, what's a bit more if there is possibility it might work! (I'm in the optimistic part of my cycle sorry!)

Wow PS! You are my guinea pig :lol:

The injection is just pregnyl (hcg).

Can I ask how much the G-CSF is? Is it Filgrastim? Do you have any side effects???

Does your FS have the initials NL??? :lol:

Lol I feel like a guinea pig sometimes;) happy to share with you.

Pregnyl that's it I couldn't remember the name:)

It is filgrastim, it is priced per vial I get 2 at a time & it costs me $345. How many injections you get per vial depends on your weight & it has a short life span so I can only pick up 6 at time. I havent noticed any side effects but I have been pretty lucky in not getting any in either of my previous cycles.

I can say this time I have had cold (I don't usually get sick so I'm guessing the meds for NK cells are working nicely :roll eyes:) I have also felt really full & bloated, which didn't happen last time. Will find out if we are good for EPU tomorrow.

Surprisingly yes my FS does have those initials;)

I think I've still got a couple more cycles up my sleeves with my current FS for now - but PM me his name (googled Monash and I think I know who you mean... but send it to me anyway....) and if nothing happens this year I will have his name up my sleeve ;)

I do have a couple more years until I will REALLY freak out about my age..... I just hope I get ONE soon, so I have time to fit in another in a couple of years.

It is reassuring to know that there ARE options, at the moment, it just feels like we do the same thing, and up the medication - I'm not sure how that's going to make things stick...???!! when it's 'sticking' that seems to be the problem.... they fertilise well... really well! so it's just implantation.... my FS even agreed with me when I said, at this stage I wouldn't feel so bad if I HAD miscarried, at least I'd know I CAN get pregnant.... (although rationally I know that would suck BIG BIG BIG time... and I am sure I would NOT actually feel better about it.... but YKWIM??)

Hi N2l, I am always reading how you all are and the info you share while I am on a break and wanted to ask what your AMH level is, I have been told mine was very low and had no time to wait. Was just curious as no one has given me an estimated time of how long I may have.

I know like all the other girls I so want this to happen for you, you give great advice but also keep it real which sometimes we also need xo

Nawwwwww thanks Kerbear xxx

My AMH is 9. My FSH was 6 last time (a couple of months ago). It's not too bad for an old chook.

Friday 6th July 2012

Waiting for EPU/O/IUI/FET or just something to happen! :wiggle:
N2L – CD5
myturn – CD6 US 10/7/12
PlanetSasha – CD18 stim
Andie – CD20
Super_lost_mumma_of_one – CD24?
Me4ever – CD29

Waiting for Transfer :happydance:
Mrs Mac – CD22 Trans 09.07.12

Hanging out in the TWW :crossfingers: :goodluck: (Stalk them here....https://www.bellybelly.com.au/forums/...ek-Wait-2012-4)
Miss B – CD23 3 dpt 1 x day 5 embryo BT 13.07.12
Emma09 – CD28 6dpt 1 x day 5 embryo BT 09.07.12
Sarah4kurt - CD? 7dpt 2 x day 5 embryos BT 06.07.12

Got Their in July :cheer:
ReeRee 02.07.12
Jane 02.07.12