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I have just seen this thread, sending much strength to your sister during this difficult wait. It all seems so very strange, the way it has been handled! I am glad she had the option to have an amino as she certainly should. Praying for clear results xx
Praying she can get some answered ASAP and that it is good news- my results from CVS were back in 48 hours
Hugs to your sister and what a terrible and traumatic time for them both.
Just another one jumping on to say that Tri 18 babies are compatible with life. My step sister is tri 18 and is 16 years old!
If you need any more information PM
Oh Lisa! Will be thinking of you and your family. The way it has been handled is horrendous.
Will cross everything for the tiny girl.
Thinking of your family :hug:
FX they get the results quickly and that the news is good. :crossfingers:
Your poor sister :( what a horrible situation to be in for all of you :hug: crossing everything that the results come through quickly and everything is fine :hug:
**Sent from my phone using Tapatalk.
Still thinking of your family Lisa (and you too, as this can't be a easy reminder :hug: ).
Thoughts and prayers with you and your sister and her family.
I'm such an anxious mess. I wish I was able to get up there and be strong for them both but my stupid car is due for rego. I hope when I do get to go up there it is because we're celebrating!
I'm so annoyed at the 2 Drs that have failed my sister. She was supposed to have been told this stuff at her 14 week appointment. And to be told the way that she was is horrible. I sadly know how my sister would be feeling right now. I'm worried for her so much too as she suffers from anxiety real bad. I just want the news to be good. I feel like they will be. I just hope it is.
I'm just so thankful to everyone in here who is thinking of us all and wishing for the best too. I truly don't have the words to tell you just how much that means to me. Thank you all so very much.
From my iPhone.
:hug: I hope you know whats happening soon. I don't understand how they told her the baby would be still born without doing further tests at all? Did they even try the doppler??
Nope, nothing. All she was told was that she was likely in labour as babies with the condition that hers has are usually still born between 20-24 weeks. That is when my sis & BIL asked "what condition" and the Dr said "has no one spoken to you about this?"
It's all ridiculously bad handling of this information. Apparently things were supposed to be stamped and signed 3 times and haven't been. The midwife was appalled. My sister was a mess and couldn't think straight. I got my BIL to go back to the hospital maternity and ask for more info, which he did which is why she was then referred for amnio. You're familiar with the area my family are from (SWR) and the hospital I'm talking about. It's just insane.
From my iPhone.
I've only just seen this thread but wanted to add my hugs and also to reiterate what others have said, that this treatment your sister has had is appalling and I hope that when everything is settled down and they know what is happening that they put in a formal complaint so that no other mother is put through the same treatment in future.
Traveller - The midwife has gathered the information for her. There will definitely be a lot of complaints made in regards to this.
From my iPhone.
From what you have said I to really feel like everything will be ok. There is nothing to indicate that the baby has this chromosome abnormality, if baby can appear healthy on a 20 week scan and did look healthy how can they possibly say that they have known for so long of this problem without investigative testing.:
I was told with DD2 that the professionals had no doubt in their mind that she had down syndrome, her nuchal measurement was 10mm, massive! She does not have downs syndrome, she did have CHD and required surgery at birth however apart from those 16 days from birth she is not likely to require any further surgery, much different to the initial diagnosis (the one prior to my CVS)
I will continue to send you, your sister and your loved ones strength during this difficult time xx
Sending my thoughts and prayers. :hug:
xox
Sending thoughts and well wishes x
sending love and hugs!!
Hugs Lisa -this must not be easy for any of your family. You and yours are in my thoughts.
I hope today is a brighter day for your family xoxo
Thinking of your sister today xxxx.
Regards,
Dianne
I thought I replied to your thread, Lisa, but mustn't have hit submit.
Your sister, her hubby and baby girl ave been in my thoughts.
Xx
Thanks so much everyone. I'm just so nervous for my sister right now. I barely slept last night. I can imagine how she'd be feeling right now :-(
From my iPhone.
Thinking of you all!
Hoping for a positive result.
xxx
Hi Lis, I've been thinking of your sister this morning. I hope they get the results quickly. :hug:
Thinking of you all.
Thinking of your sister and all of you as you wait through this anxious time.
Gah! I called mum to see how she went today and apparently it was pushed back until 2pm. At least it is still being done today.
From my iPhone.
Thinking of you all
Sending prayers to your sister and family xxoo
I hope it all goes well today. Thinking of you all :hug:
How could they push her back after all these screw ups? :o That is so wrong! Really hope you come back with good news Lisa.:
That is bloody terrible :(. Sending big hugs to your family.:
So, I have great news, but you're not going to believe this!
So, my sister got to the appointment today and was waiting for ages. They had to move around a lot of people to fit her in today and one just wouldn't budge, which is why she had to wait until 2.
Anyway, the Dr who would be performing the amnio called her and BIL in and had a bit of a chat to them. When the hospital faxed through the ultrasound results and my sisters blood group, apparently there were other results there.
So, it seems that they must have given my sister the risk of 1:108 based on the NT scan alone and then when the bloods came back, her risk is actually 1:39000!
However, her risk of Downs Syndrome has come back at 1:234. The Dr told my sister that the risk of miscarriage from amnio is 1:200 so they decided that they don't want to risk that happening and chose to not have the amnio. The Dr agreed.
Like my sister said, she would be blessed to have a DS bubba; It was the fear of imminent stillbirth that had her on edge.
Thank you to everyone for your prayers, well wishes, love, advice & support during these last frantic couple of days. I am so thankful to be a part of this community that will rally around to support people they don't even know. From the bottom of mine and my family's hearts, thank you all xxxx
That's so so so so great. I've been stalking for updates.
You must be so relieved.
So glad to hear :)
Oh my gosh, what a turnaround!!!!! Such great news. Sleep well tonight Lisa!
That's great news! 99.6% chance that she doesn't have a DS bubba. Sorry they gave her such a scare :( is the preterm labour risk over now?
My sister thinks she must have had a tummy bug that was going around as she started to vomit when she got home from the hospital - Sunday morning - and was feeling a bit off for most of yesterday but ate dinner last night and breakfast this morning and is feeling fine. She has had no pains since Sunday evening.:
My sister & BIL are still going to be lodging complaints about the handling of all of this. Like she said, she would hate for someone else to go through this stress.