Post Tubal Ligation Syndrome

rttj2000 ~ Have you seen a doc about them?

Hi girls,
Just a queery for you, not sure if you can answer it or not, but here goes,,,
Ever since having my bub, I have felt a sensation that can only be described as "absolute desolation and sadness" which only lasts for a few seconds at a time,,,, but it can happen many times a day. Almost always as well when i put my son to the breast and start feeding him. It makes me feel awful as you can imagine, and all i can do is take a really deep breath and breath it away.
I have spoken to my gp who says it is probably just me taking on too much since birth,,,, and my ECN thinks it is possible a bit of postnatal depression,, and if i wanted i could have counselling etc.
I thnk they are wrong as there is no reason for the feeling,, it happens without warning, and Idont have any other symptoms of postnatal depression at all. I can be quite happy right before it hits,, then whammo!!
Wondering if any of you have experienced this after birth/ tubes being done?

Lil_Aussie.....I know exactly how you feel. I to was there after i had my last baby when i had my tubes done. And even now i have had the reversal i still get it a little bit.

Thank you girls for starting this thread, I never knew such a condition even existed from TL.

DH has always said Ill be the one to get my tubes tied, I have never been too keen on the idea and now after seeing this I don`t want to go down that path at all so thanks again for making us all aware that you can experience problems through TL.

Hi,
I had my tubes removed as they were damaged from endometriosis so I had to do IVF to have my gorgeous son (after 5 attempts) I too had had symptoms that you explained and have been worried that I will go through early menopause! I think it's just a matter of having blood tests and you can have Hormonal Therapy to correct this imbalance which I will need to do once i've finished having children. Hope this helps.

It is such a shame that our doctors didn't go into this side of TL. They never tell you that so much damage can happen and that you potentially face early menopause or what was worse for me was losing my breastmilk, I have never had a problem with the amount of BM I had when feeding my other two sons, I had ample amounts but with DS3 it dried up despite trying to increase, extra feeds, expressing, raspberry leaf, drinking more water. Losing my milk has been the hardest thing to deal with.

Oh Steph, that's terrible, you poor thing, big hugs to you. I had problems with milk supply after I had Ash but luckily it eneded up coming in and now i'm still breastfeeding. I didn't realise that it could dry up because of TL. I am a bit up tight (hence the reason I was interested in this thread) because I do want to have another baby and have to do IVF for it to be possible and i'm wondering will it ever happen and should I do it early rather than later because of these symptoms. It does mean I have to stop breastfeeding to do IVF (because of the drugs) but i'm torn because I love it so much and Ashley might be my only child. I guess I should go along and see my gyno and have a good talk about it all. I do wish my DR had of talked to me about all of this when I had my tubes removed though.

Hi there,
I also have PTLS. The doctors, hospitals most people actually dont want to reconise that this condition is real, I have been suffering for almost 8 years with it now. Has anyone who has had a Tubal Ligation every suffered with Gall Bladder problems, Jaw problems, Restless Legs,
Would love to hear from others please
Donna:redface:

Donna ~ I don't know whether suffer is the right word but I have had a few problems when I am chewing food, all of a sudden my jaw doesn't sit properly and I bite hard into the side of my cheek or my tongue. It is very weird. What are restless legs? Does anyone ever suffer from pins and needles in lower arms and hands even when they are still?

THATS done it for me - I'm not having one. I was thinking about it as we need something long term.

How do you talk your husband into having the snip ? Mine does not want to know about it.

Barb ~ I think a better long term solution if your DH won't have the snip is an IUD. I am pretty sure they last up to 5 years, they are as safe as anything else really. I am going to get one after my TR. As for talking to hubby, if he doesn't want anymore children then suggest maybe he should get the snip. It is a lot easier for men, a friend of mines partner had one, he was in pain for a couple of days and a little swelling then was back at work day 3 and he is a mechanic. One of my lady friends had her tubes done and was in pain for a week or more and was told not to wrok for 2 weeks. Men probably think they are less of men if they have the snip but everything is the basically the same. They still have an ejaculation when they orgasm only the sperm is gone. You should ask your doctor for a little booklet that your hubby can read. Good luck!

OMG Why dont we ever get informed of these things before we have our tubes ligated or tied??
I had some many of those things it wasnt funny. I have nothing bar PMS - (pi$$ing me off syndrome) now that ive had my tubes reversed.
I still get restless legs and it drives me nuts, like little ants in my veins crawling up and down until I get cramps in my feet and ankles.

Hi girl's, have'nt been in for some time. But I would love to have my tubes reversed, but DH says no way. I had the filshie clips done in 2000. And in 2001 had to have the left 1 removed, it had cut right through my tube. I had it done because DH wanted me to, and I thought I was done having my kids. So I did it. Well a few months after having it done I regreted it. i've been wanting to have another 1 since my son was 2, he's now 7. We have so many fights about having #3 but unless it happens some other way its not going to happen. I've read up on the filshie clips and they are 1 of the best they use. i have spoken to DH about it so many times but hes still not going for it. I've told him how empty I feel, and that I'll never feel complete inside, but does'nt seem to make any differance. I found this site thats says useing a needle and cotton over the left hand thats meant to tell you how many kids your going to have and what they will be. It's like using the ring and hair. Well I did it, and it showed the 2 I have now, G first and B second, then it showed another G, God I hope its true....

I know how you feel rttj2000, I feel empty inside too. Not that I am unhappy with my 3 beauitful children but I always had my heart set on a really big family, 5 or 6 kids. I also feel selfish though cos my older sister has severe PCOS and has a very slim chance of having babies. She doesn't resent me or my children which is wonderful and I have also told her that I will carry for her if she needs me to. Her eggs seem to be fine because she has fallen pregnant but she miscarries easily. I hope you're hubby reconsiders, I know what it is like, my DH isn't too sure about having my tubes reversed but I am sick of having the health problems. He is starting to warm to the idea of having another baby too.... Hope the same happens with you.

I have just read thru these posts. I just cant believe it,,, to say ironic would be an understatement. Wow! I have had so many of the symptoms that so many of you have described. I actually found the site because i was curious about getting a reversal as we are thinking of having another child. I had my tubal ligation done about 9 years ago, and i have had nothing but probs with my period being like a flooding every month, headaches all the time, fatigue, bloating, weight gain, but so many of these things i just put down to other things, but now im sure this is the reason, Even better reason to get the reversal done...lol.
I just read the last post about the price, so may i ask is that around the standard price that everyone has paid on this site......? would love to hear,,, im in melbourne. Im 43.
I know,,, im getting on, dont remind me...ha.

WOW, this is the first time I've read this thread. I've been experiencing just about everything you ladies have discribed for the past 5 years(when I had my ligation done). My DH and I have discussed a reversal and talked to the Dr about it but having more surgery just freaks me out. I'd think alot more seriously about it if I could be more certain of the results. Please can anyone shed more light before I venture back to the Drs.

HEY Vision, got to love that name hehehe. I paid 3500 for my op but some women i know on here have paid up to 8000 to have it done. Come to the other thread called tubal reversal #6 there plenty more girls in there to ask questions and some that have had baby since having the reversal. Never to old darl.
Hey girls.....these men that say NO have just got no idea,SELFISH if you ask me. No women should have to go thru the crap each month that yous do.

I shall go to that thread,,, it was nice to hear from somebody....thankyou so much again..xxxx

No worries mate anytime

I am planning on getting my tubes tied when I have this baby via c/s. I worry I will end up with these problems that are mentioned in here. I have only known one person to have their tubes tied and she has never mentioned anything..

The only other option we have is the mirena and I don't want to do that... also I am the one against my DH having a vasectomy

What else can I do, I plan on breastfeeding for as long as possible so the pill is out I hate condoms and I don't want a IUD and of course abstinence is out to :lol:

do any of you know anyone who has had their tubes tied and been fine?

I had my first ob's apopintment last week and asked about getting my tubes redone after this baby. OB said no way as I feel pg 3 times when my tubes were done and he said that Id the chances are high that I would fall pg again with them done. I have not had any pulling or pain in my 'side' since I had my clamps removed and it was been 1 1/2 years. DH is getting the snip this time round as we really think 4 children is enough
Good luck

Hi everyone, I am new to this but have been reading all your posts regarding post tubal ligation syndrome. I too have all symptoms of this and doctors just don't seem to want to understand. I have been tested for practically everything and everything has come back normal. I was wondering does anyone know of a doctor or obstetrican that does believe syndrome that is situated in Victoria. I am interested in having mine reversed.
Thanks everyone....

Hi Guys :)

I haven't been on since March, and certainly didn't expect to see this thread had been so active!

Well an update on me.
Since my OP a couple of my symptoms have calmed YAY! The one that sticks out is the O pain!
Man it's been great!
I haven't had a reversal, I have been onto DH about going and seeing about one. Although atm is majorly out of our price range. Upside I am back living on the coast, so close to any specialists if in the future I do end up getting my much wanted reversal.
And the other news. We have both decided we might try to have another baby one day down the line. Who would have thought *shakes head* I was so adamant that was it! But my goodness I can't shake it. So in preperation, I have looked into IVF if we do decided yes for sure. Unless of course DH agree to the reversal., and we win lotto :lol:

I did the reversal and some of my systoms went away thank goodness. But after waiting a year and no babies we decided to go IVF which I wish now we had of done from the start(would have been much cheaper). So we did our first IVF thru Westmead IVF clinic in Sydney(heaps cheap i must say) and got twins which was just wonderful. We did lose one baby at 8wks but Im now 22wks and going strong.

When did all of you start getting symptoms? It has been 5 nearly 6 weeks since my tubal and I feel no different to before. Hoping I am going to stay this way

Hi ladies
I had my TL back in January 2007, and even though I know it was the best thing for me(I'm RH negative and my body tries to kill the baby while I'm pregnant!), I hate my side effects. For 2 days before AF shows up I go into cramp lockdown,the cramp starts from my shoulders and heads down to my side! I am stuck in bed for 2 days. It is shocking! It gets to the stage that nurofen doesn't even ease the pain. Is it possible that the clamps can "move"???? I swear I feel mine moving occasionally.

iT WAS A FEW months after having it done. 6 from memory

Its really a HUGE decision

Hi all. I had a tubal ligation after Aston 14mths ago. Nov 06. AF returned when he was 3 mths old (much to my horror! I was expecting to get to at least 9mths, and as not having AF is a possible way to keep endo at bay for a while, i was dissappointed) When AF returned it returned with a vegence! in the past after being pregnant for 9mths, no AF for at least 9mths, when it did return it was not with all the horrible pain that I have endured for years, but relatively easy affair...which would gradually after a couple of years return to the horrid affair. so I was shocked to be in PAIN right away. and the PAIN just go worse and worse. each month. I was convinced the endo was back... the pain was so similar, but at the same time worse. if that can make sense at all!... after I ended up in hospital in october because the pain was so unbearable, being referred to a gyne, and finally having an lap in December...thinking I would have releive soon, the endo would be removed, and I would feel better. But NO... there wasn't any endo, and there is still friggin PAIN, ...

Anyway, the only conclusion I could come to was that the only thing different after this baby, to my other two was I'd had the tubal ligation done. Did some research... and there are other women out there experiencing the same thing??? but when I asked the gyne if this could be the reason for my pain... NOT LIKELY... don't get it, dont get it at all.

after that garble... sorry, but its almost a relief to get that out... I need to know has anyone here had a reversal, and had relief from the pain??? :(:(:(

Hi all. I had a tubal ligation after Aston 14mths ago. Nov 06. AF returned when he was 3 mths old (much to my horror! I was expecting to get to at least 9mths, and as not having AF is a possible way to keep endo at bay for a while, i was dissappointed) When AF returned it returned with a vegence! in the past after being pregnant for 9mths, no AF for at least 9mths, when it did return it was not with all the horrible pain that I have endured for years, but relatively easy affair...which would gradually after a couple of years return to the horrid affair. so I was shocked to be in PAIN right away. and the PAIN just go worse and worse. each month. I was convinced the endo was back... the pain was so similar, but at the same time worse. if that can make sense at all!... after I ended up in hospital in october because the pain was so unbearable, being referred to a gyne, and finally having an lap in December...thinking I would have releive soon, the endo would be removed, and I would feel better. But NO... there wasn't any endo, and there is still friggin PAIN, ...

Anyway, the only conclusion I could come to was that the only thing different after this baby, to my other two was I'd had the tubal ligation done. Did some research... and there are other women out there experiencing the same thing??? but when I asked the gyne if this could be the reason for my pain... NOT LIKELY... don't get it, dont get it at all.

after that garble... sorry, but its almost a relief to get that out... I need to know has anyone here had a reversal, and had relief from the pain??? :(:(:(

Ive had the reversal done and free from any side effects now.
No more playing god for me

mumof5 - did you have extreme pain that I mentioned? I don't want another baby, I just want to get rid of the pain!!

i went back to the gyne for review after the lap I had done in December - my options - go on the pill and see if it decreases the pain, by taking it constantly and having no AF, try the proestergon (sp) IUD... or have a hysterctomy with no guarantee that the pain would stop anyway... wonderful.

Gee Vicky, not nice. I feel for you.
I thought the whole idea of having the a TL in the first place was to avoid taking the pill doctors just have no ideas on what we go through.
I hope everything settles down for you.

Thanks Storm. I am going to try going to a natropath and see if I can get any relief that way.... its so frustrating.

Hi can anyone help me I have 5 children and I am 29 years old . I had my tubes clamped with my 5th child who is 4 years old in August. I did this because I had a rough pregnancy with my daughter in which she stopped growing and finally the doctor took her out at 37 weeks and she was 5 pound 4. I guess I freaked out and as I fell really easily I worried I would go through this again plus she was my 3rd ceaser.
I regret my decision and want a reversal but the doctors here in newcastle say it will cost me $7,600 money I dont have, Can you go on the public list to get it done for free? I have really bad periods since the op and can bleed up to 10 days straight. I also suffer from skin itchiness and this started after my t/L too. I have a dry vagina since the op too and I have gained weight also. I want a baby really bad but cant afford the $7600 and my morgage, any help with the public hospital system to get the op for free???

I dont think you can get it reversed at all on the public hospital free list.
I would love to have mine reversed though, as My son is now 12 months old, and I have had no return to my period at all since his birth, however i get crippling cramping, mood swings, which include sudden waves of absolute sadness, which are not triggered by anything, they just happen, then leave as soon as they hit.
I was not told of any consequences at all of having the TL, and was assured everything would be normal after it. I have since spoken to my gp about the symptoms i get, and she just shrugged it all off saying it is not because of the TL.

Yes I understand the mood swings, some days I can be happy and others really down, my doctor also said that my symptoms are not to do with the T/L and just gave me a referal to have them reversed, I have an appointment tomorrow with the newcastle based private team to see about getting them reversed (they are the ones who charge $7600). I did read on here somewhere that a lady had here T/L reversed in a public hospital and waited 10 months on a waiting list.
The good thing about private is that they said I would have the op in 6 weeks time and that I get to stay in a private hospital for 3 days (public kick you out asap) so I get plenty of time to recover. Just the cost - It's a lot of money and I could probebly get IVF cheaper ?????.....

What I don't get is how the medical profession can proclaim that the symptoms we experience are NOT from the T/L yet there are so many of us who experience these symptoms post T/L. HELLOOOO?????!!!!!!!

I think I need to find a female doctor how HAS had a T/L and has experienced the symptoms herself! and I bet that will be harder then finding a needle in a haystack.

Have we all collectively become Psychotic and decided that we want to manifest pain???? I'm so p!ssed off at the moment - in a world of pain, and are sick of being told that it has nothing to do with the T/L!!

ARGHHHHHH!!!!!! :wall:

Yep they love to pass the buck.....
I have just been Informed from chat tubal reversals #13 that one mum did ivf instead of T/R, and fell first go, it cost her $1440 start to finish with $348 cash back.
and they offered to fix her tubes whilst having the c/s for free as they were already in there But she declined that offer.
I think I might try Ivf and hope that they offer me the same when i have a c/s to deliver (if I fall that is).
I will certainly be giving them hell about it as they never told me of any side affects and think that I would not mind getting fat or mental.....
I have just told my partner bout Ivf and he said do I have to give a sample LOL and I replied if you want to be the dad "YES".... we need to ban together and fight for Justice on the doctors who misinform us about the affects of T/L or dont tell us at all.... maybe we could sue their ARS# they also dont inform you of the cost to reverse it, you cant even claim it with private health Insurance (though maybe the hopital stay).....