So we begin our NICU journey....

I'm so pleased that things are starting to fall into place now. :hug: hopefully not long now and you'll have your darling princess home with you where she belongs xx

Always thinking of you Infinity, and your amazing DD. :hug: So glad to hear of her progress. Wishing you all the very best for her surgery. :goodluck:

What a big chubba! :D
All the best for the surgery. It won't be long now and she'll be whole and home with you all :hug:

Woohoo on the weight gain and getting back to bfs!!

Will be thinking of you both as you lead up to her op next week and at least when you do bring her home you have one less thing to worry about. It's really a testament to what a great job you and her other carers have been doing that she's ready for the op so soon.

Yay for your chubba bubba & booby juice! A big turn around in her treatment for you all next week, sorry she won't be home for your birthday but it's great they are so pleased with her they are going to do the surgery. Hopefully ICU will fly by this time.
Lots a love xx

That's fantastic news Infinity! Yay for boobies!! And yay for the reversal op so soon too. She is such a little trooper that I'm sure she will come through with flying colours and be home with you in no time. She is doing so well with her weight gain too.

Goodness me, its been so busy for us. I haven't had time to breathe this week, never mind coming in here to post! Finally I find myself at home for an evening with some time to sit down. Ahhhh bliss.

Its been a very busy and interesting week for us. One of the more *interesting* paediatricians that runs the Unit has kept us on our toes for the past 5 days or so in relation to DDs surgery. Whilst her surgeon is ready to operate, this paed didn't seem to agree - so we've spent the last few days getting mixed messages, poor communication and lots of stress at the hands of people following 'hunches' would you believe. Essentially this paed wanted to let DD keep growing for a bit longer before they close her stomas. She had a few days last week where she stacked on lots of weight quickly and he though if we could keep her growing like that then we'd be mad to operate now. But those few days of growth seemed to just come out of nowhere and it was almost a fluke because it hasnt continued. She's gone up and down and plateaued again so that argument doesn't really stand anymore. Cut a long story short, today it all came to a head and after another small weight gain overnight the decision has been made to go to surgery this Wednesday as per the original plan. DD is ready, her stomas need to be in good shape and one of them is starting to prolapse out a bit so that's a risk to her bowel. Her growth is being stunted because of the simple fact that she has an ileostomy - once she's back together her growth should get back on track and we can't afford to see her weight remain static.

I've feel like I've been on this merry-go-round of opinion, advice, emotion all rolled into one. We really didn't need the diversion but I guess they're just being thorough. That's the way I'm looking at it through my delusional rose coloured glasses right now so that's ok LOL! I'm just glad we can prepare for Wed with more certainty now.

Didn't help either that some twit crashed into me in the hossy car park last week either. All her fault, she just reversed straight into my car while I was waiting for a park, despite me beeping my horn A LOT to alert her that I was behind her. Major pain in the bum but in the grand scheme of things it doesn't really rate a mention right now. My insurance co organised a hire car for me which has been a great help.

So keep DD in your thoughts for Wednesday. Unsure about timing as yet but we'll know more tomorrow when the surgeon & anaesthetists come round to brief us about everything. I'll try and pop in to let you all know.

Thanks all again xo

I'm sure she will come through the surgery just fine - she's already fought so hard to get where she is, and she is so strong now she's not going to let surgery stop her now :hug:

best of luck for wednesday - we'll be thinking of you all

Thoughts and prayers will be with you and Heidi on Wednesday. :hug:

what a big (and momentous!) day for you guys coming up! although no doubt nerve-racking it no doubt will also be a good step forward in 'normalising' this situation and getting her ready to come home... thinking of you all xx

that's such amazing, wonderful news!!!

thinking of you all, for Wednesday xoxo

:grouphug:

Will definitely be thinking of her on Wednesday - and you Infinity! Hoping everything goes beautifully and she can start packing on the pounds again.
Another step closer to taking her home for good :leap::loveshower:
PS. Sorry about your car, I saw that on FB :( You so didn't need that.

Thinking of you and your precious girl. I hope everything goes smoothly on wed.
:hug:

xox

Will be thinking of your little Heidi and you and your family on Wednesday. another step closer to home. Take care of yourself as well at this time.

I hope the surgery goes smoothly tomorrow and Miss Heidi's recovery is quick and gentle.

It is truely amazing to see how far she has come and hopefully this is one of the last big steps that she will take to come home :hug:

May the light continue to grow brighter and stronger everyday :comfort:

:wall: For the car accident :( Some people just never look.

Take care and you will all be in our thoughts tomorrow and the days that follow os Miss H recovers, although you are in our thoughts every day anyway! xxoo

Thinking of you and Heidi and hope that everything goes well tomorrow! :hug:

Will be thinking of precious Heidi, you and your family as you all take the next big step forward on your journey tomorrow.

Sending special thoughts, prayers, strength & smooth recovery vibes Heidi's way.

:hug:xx