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Oh Infinity I hear your pain and it is so unfair. You have been so strong when you probably just want to cry. She is a tough cookie and I'm hoping with some assistance she will quickly pull through this current rough patch and show you just how tough she is. You deserve more happiness right now, I hope you and your DP can keep it together for each other and your DS and DD. Much love and hugs xx
infinity, have been following ur journey. Just wanted to send you some love and strength.
Heidi is a strong little bugger and she will get through this latest set back.
i cant even begin to imagine how hard all this is to deal with.
Be strong, be positive, one day you'll have ur growing girl at home with you and this will all be a distant memory.
Will pray the NEC goes away as quickly as its come on
xxx
What a journey you are all on :hug:. I hope you get to spend as much precious time with Heidi and your DP as possible today, and that she recovers very quickly from this latest bout. Thinking of you xoxo
Oh hun :hug: :hug: :hug:
Keeping your family and Miss Heidi in my thoughts and prayers, my heart breaks to hear she has NEC again, it's not fair :cry: here for you hun for a hug, cry, vent, or just to listen.
Be strong Miss Heidi, we are all behind you little Miss, sending you all our strength and courage to fight this battle :comfort: xxoo
Infinity :hug: I feel for you - it's so hard. Hope Heidi has a better afternoon.
:hug: hun. I am so sorry that you are going through yet another difficult patch :hug: The NICU rollercoaster unfortunately is a long and trying journey. I know this from my friend who has a healthy 4yo that started life as a 24w+2 premmie. Despite the fantastic result, I wouldn't wish the stress of the first months of his life on anyone. I so wish that you had the start to motherhood that you were expecting :hug:
Infinity, I don't know that any words will make today easier for you, but try and hang in there. Heidi has been a fantastic fighter so far, and after such great weight gains she is in a stronger position to face this next challenge. You are all in my thoughts and prayers hun, I hope there is better news soon :hug:
Oh Infinity. I'm so sorry you're facing this again :hug:
You are right, that is sooo unfair. She should be safe in your belly and instead she is fighting for her life again. There is nothing that will make this okay, it's just crap. I am sooo sorry you all have to go through this again. Heidi is a tough little cookie though, so hopefully with a bit more weight behind her this time, she will come through it AOK.
Thinking of you, as always....
:hug: It really isn't fair - sending Heidi lots of strength and get well vibes, and big hugs for you :hug:
No words for you hon.... just quietly here holding your hand :hug:
Infinity - last time I lit a candle for Miss H she had a positive improvement in her wellbeing; tonight I shall light that same candle for her in hope she improves her health rapidly. I will also light a candle for you to send you strength.
Massive hugs hun!
Ahh far out darling one. :hug: You are absolutely right, this is just not fair at all! :crying: Please know that you can say anything you want here on BB, we are all here to support you, offering love, warmth and understanding.
Please know that I think of you and your family often and I am always wishing your darling girl strength and healing. :comfort:
:hug: I am also sending your little girl strength and healing. Know that we are all here holding your hand every step of the way.
wow infinity, what a roller coaster ride you and Heidi are on. I so hope she comes through this fighting fit. Sending lots of strength to you and DP and healing vibes to little Heidi.
Oh Inifinity, I have no words, my thoughts are with you ...sending lots of strength & healing your way, to your little girl & to you. Big hugs :hug:
:hug: Infinity, I'm so sorry to hear Heidi has had a setback. I hope all that extra growing and the healing she did last time hold her in good stead now.
You really are on such a rollercoaster ride. :pray: for little Heidi and for you and DH for a speedy recovery for her.
Thinking of you all, hope that Heidi is battling well :hug:
Thank you all for your hugs, they were much needed. I'm just feeling so bloody helpless right now, its so deeply frustrating. And to see her unwell and so so flat is just terribly hard. Its always hard when your kids get sick, but such a tiny little girl who has been through so much already doesn't need to be going through all this again. She's barely moving, just sleeping away and hardly manages to wiggle around at all. When she's well she's normally very active & responsive. She'll open her eyes every so often, but just doze back off again. And she's not really tolerating being handled very much either, wincing and crying when the nurses go in to do anything. If she's left alone she doesn't seem to be in too much discomfort though which is somewhat positive I guess. Her poor little tummy is so round & tight.
She was stable enough overnight and things haven't got significantly worse which is reassuring. She's more bradycardic than she normally is (dropping her heart rate suddenly) but she manages to self-correct most of the time and its normal for them to do it when they're unwell. And they haven't ventilated her again yet which I am surprised about, I think they're just waiting to see how she copes for another day or two, and respiratory wise she isn't quite as compromised this time so I'm hoping so much that tube doesn't go back in. The treatment is much the same as last time - antibiotics, rest her from feeds for a good while and just see how things respond. They're xraying her tummy regularly to watch for any damage and the surgeon is popping back to see her just in case we need to go down that road. I think if she keeps having episodes like this we'll have no choice but to go in and have a look.
Lots of hugs and positive thoughts for you and your tiny little fighter xxx
Sending out lost of healing vibes to your little girl! She's been through so much, it's not fair that she's so sick!
Also sending out huge hugs to you & your hubby & family too!
Infinity my heart goes out to Heidi and you and your DH. I always check up on how you are doing but do not send you my well wishes enough. But you are often in my thoughts. I hope that she keeps stable and improves and does not require surgery or any other intervention. It is horrible seeing them so defenseless I know.
lots of hugs
Hold on to all the positive signs hun, I can't imagine how difficult this must be for you all, having only just passed the recovery period for the first hit of NEC, I pray that Miss Heidi remains stable and takes steps for improvement.
You are such a strong an amazing Mumma, who shouldn't be having to go through this rollercoaster, but you are doing so in such an inspirational way.
Thiking of you all often, and sending more strength and stability to Miss Heidi xxoo
I'm sorry sweets that Heidi is going through so much :hug:. i reckon Beema is right...hold onto those positives when the darkness comes down as i reckon they will help when light comes up again xx
There is good news (i can guess) that she is self-correcting...and that this is a 'normal' reaction to a difficult situation itms. and i can only imagine that the time off ventilation even when during the illness is a positive for her and a reflection of her strength.
These must be such scary times, know that we are thinking of you and sending all our love and strength :hug:
:pray: that she recovers quickly and doesn't need extra breathing assistance. I hope you have good news soon.
Hugs, Infinity. Thinking and praying for you, Heidi and DH and DS.
Aaah darling it's so hard & my heart is hurting for you. :comfort:
Right now you are her strength. So sit there & talk to her. Tell her how loved she is. Tell her your plans for her. Tell her everything. Pray. Visualise.
Keep pumping those breasts. When you're low plug yourself into the earth below and the sky above. Just KNOW that you are supported. Heidi is supported.
This is a living hell for you - but you will live through this & you will tell the story one day. Some of the story will be told with a smile & a giggle & some through tears. But know you will get through.
So many loving hugs coming to you. I have lit my candle for Heidi & it's burning brightly. :hug:
Infinity, it just isn't fair... sitting here in tears for you and just cannot imagine how you must be feeling. Please know what I wish I could give you a big bear hug.
Inanna has said what I feel so much better than I could have :hug:
poor little Heidi Im so sad she has to go through this fight again and it must be terribly draining and hard on you guys.
Sending her all the strength to push through and get back on track soon.
Sending you all strength and hope. keeping you all in our prayers.
What a shame to lose some of this thread....I was thinking of printing it out for DD to read when she's older to tell her how many people were cheering her on. Is there anyway to recover it? Oh well.
Heidi is going well, we're hoping at her weigh in tonight she'll hit the 2kg mark! What a milestone. She's breathing completely unassisted now, not even oxygen required and they've taken her chest leads off too so less monitoring! Her stomas are going beautifully and she's really looking like a different girl compared to the weeks where she was unwell. Its truly amazing. We had another great breastfeed today. They may also take her central line out this week and the next step will probably be an open cot :o when these bubs are doing well they move them quickly - a bit disconcerting for us but great for her. All steps closer to bringing her home.
this is amazing news infinity! and yeah, like total wow, on how fast they can improve and make leaps and bounds...so amazing.
i too :pray: that we can recover some stuff...lost the BA and birth story stuff from my end...bit sad. had grand plans of also printing it out for DD...
very very cool news on the BF front too BTW! i remember in the part of the thread that is lost that you had trouble with BF last time so this must be an extra special moment for you xx
Oh Wow *Infinity* isn't she a clever little girl, breathing completely unassisted, central line coming out and talk of an open cot, wow some very big milestones, and bring on the 2kg!!!!!
It can be overwhealming when it all happens at once as it can often do :comfort:
I keep all my notifications so I have all the posts for this thread that I am more than happy to send through to you, so you can compile it all together and fill in the gaps, it just won't have the pretty Avvies and smilies. Hopefully there is a chance it can be recovered :hug:
Take care xxoo
What wonderful news! This was the first thread i thought of when i knew data had been lost. Would be great if we could piece it back together. One of the other threads said something about being able to find lost posts on google by using the thread title.
So great that Heidi is feeling better and looking stronger.
That is fantastic Infinity!! She is such a little fighter - I'm sure she will be home with you all soon.
:hooray: :hooray:
That is beautiful news Infinity!! Breathing on her own and nearly 2kg!! Must be time for another cake and party!
That is such wonderful news Infinity!
Heidi is doing such a great job! :)
That's such fantastic news, Infinity!!
How exciting will it be to see her in a proper cot for the first time. Well done to everything you've done to get her this far, and to the drs and nurses who've done their best with her as well.
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September 2, 9:50pm
Heidi has had a restful day today and she is recovering well. Still on morpheine for pain relief so she's fairly drowsy but still managing to wriggle around and respond to us.
I'm wrecked, no other words for it right now so I'm off to bed.
Sorry these are the only two I can rescue for you honey.:
September 4, 11:04am
DD is still going well, nice & stable and recovering nicely from the op on Wednesday. She is still ventilated and they have weaned her off the morpheine today so she may come of the ventilator shortly too which will be great for her. Once she gets more alert & active when the pain relief finishes, she is not going to like that tube down her neck!
Well I afforeded myself a sleep in yesterday which I desperately needed but back to the around the clock pumping today. The only way I can sleep longer is if someone else is in the house to watch DS while I pump and shower and get ready in the morning. Otherwise I have to be up super early & get it all done before he wakes. Arrrrgggggh. DP is working for about the next 5 days so my stress levels are at the max right now, I think I'm about to have a meltdown. I don't have any baby sitters around - my family are all either working or away for the weekend. And of course it means I cant get down to see DD which is really stressing me out. She needs me, I need her. And DS is unwell again too so he's miserable. I just feel like screaming & crying. I'm trying my best to suck it up and keep my mind & hands occupied. DP will be home later, that's what I keep telling myself.
Thinking of you and hoping someone can rescue some more for you. Hugs.
Clever little girl Miss Heidi! Here's hoping that she's turned the corner now and is well on the road to coming home to her Mummy, Daddy & big brother! It all sounds really wonderful!
*Infinity* I have got a copy of all of the parts of the thread that were lost over the past couple of weeks, so you will have all the precious memories to show the beautiful Miss Heid when she grows up :D
Thinking of you and hoping you have had many wonderful cuddles BF's and precious time with your little girl :hug:
Take care xxoo