Scared & SOoooo Confused!!!

Just before I read this, just wanted to let you know I've been thinking of you, and preying it's good news, no I'll read...................

You are so amazingly brave!! I really hope the next week flies by for you and that you can enjoy a wonderful party for your DS this weekend.

I hope they have some answers for you next week and I pray for the best possible outcome.

Wow, what a couple of days for you. I bet it still hasn't fully sunken in yet. I'm sorry that the findings weren't exactly what you were wanting to hear. My heart goes out to you and your family and hope that you can get through this weekend and enjoy DS birthday.

For what it's worth you sound very calm and confident in your words. I hope you realise how strong, brave and what a wonderfuly mother you are.

Will they ring you before your appointment with the first results tomorrow?

I'll be thinking of you and send you all my courage and best wishes during your wait and for your next appointment.

Take care of yourself and have a great time with your DH and DS and your little belly baby on his/hers big brothers birthday.

Sorry should have added that I was told I will be called with the first part of the results but I don't know if it will be tomorrow of Monday, I guess it may depend on what time of the day the results come in???
Fingers crossed I find out tomorrow, also forgot to add that since the scan was done mostly in 4d I was looking to see the sex of bubs and I'm pretty sure its a little boy, I'm not a Dr so obviously i could be wrong but dh doesnt want to find out yet so i couldnt ask them to confirm so I've kept this to myself for now to respect dh wishes.
xxx

I hope the wait for the results goes quickly for you. I found the wait for the amnio results very difficult. The 24 hours I waited for the FISH results seemed like forever, then the days til the final results dragged too. Please take care of each other while you go through this very difficult process.

i hope everything is ok huni...i can only imagine your feelings at this time...you and your family are in my thougts...let us know how you go.
take care
love rach xxxx

Dear WBM,

i'm glad you have good support people around you, and the doctors seem to giving you as much info as they have.

When i was born, my feet were twisted up the sides of my legs with the soles kinda touching the bottoms of my legs. I had surgeries and plasters and although my feet aren't perfect, i walk on them and only limp when i am tired.

I know your baby's feet is just one thing they are looking at, but i just thought i would share my story.

Look after yourself as you wait for the results and your next appointment,

take care,

k

WBM,
Thanks for the post we have all been eagerly awaiting your results. Another tough wait ahead of you all and I will again pray that it goes quickly for you all and that you get some reasonable answers. DH cousins first child was born with VERY bent legs. Very is an underestimation. The Dr said that in tim they will straighten. They went from Dr to Dr begging for someone to fix them. But in the end the Dr's were right and she is now 6 and you never had known she was born with bent legs. I pray that is the worst thing you have to deal with. I really do hun!

Hi WBM,

Any news yet??

I hope no news is good news. Hope you all had a lovely day with your DS on his birthday.

Hi ,
I am sorry for your bad news but Hun don't panic now....My daughter was born with Sacral Agenesis she is missing her spine from the bottom of the rib cage down. she has nothing nadda zip there. My daught has no butt muslces you stand a frog on it's back legs and that is my daughters torso.
She can't pee or poo by herself she has to cath herself 6 times a day.
We were told she would never walk she couldn't servive past 18mth etc.
But you want to know something, Heather walks she may not run but she damn well tries and she will be 7 years old next may.
She also had talipes on both feet and has frozen feet that can't move at all.

PROVE THEM WRONG, If we had have given up and did what the dr told us to do we wouldn't have our little spitfire.

Our problem is genetic so they say 50/50 each pregnancy I have 4 kids and she is the only one so far.

Please don't give up on yourselves and your child, They get their strengh from you if you beleive it can be done then damn fire it will be done.



Best wishes and if you need advice let me know I have been there kick them if you know what I mean.

Hugs
Kris

Hi Wings of A Dove

I have a mate who was born with sacral agenesis. She is 35 years plus, has been a world class athlete, holds a couple of degrees and is currently completing her PhD while teaching at university and is a great mate.

Kate

WBM- I haven't posted but i've still been following. You are so incredibly brave and i hope you realise just how strong and amazing you really are. I cant imagine, i can only offer support :hug:.

Hi Kate,
Do you think your friend would mind contacting me regarding her condition etc as Heather is one of a very few with spinal loss from t1, They honestly didn't know what to expect with her so we are taking one day at a time.
Heather can walk for a limited time and is now getting her first custom made wheel chair PINK of all colours......lol She is very small she weighs in at 12.5kg and is 89cm high.
But what she lacks in body parts she makes up with her mind she is in the top 2% of her class and is very bright.
I think this child is going to go far in her education as she has a never say die attitude.
Heather doesn't see herself as different and is treated like any other child.
We went through a DIVA stage last year when she started school as everyone wanted to help her do things so she just sat back and lapped it all up.
I kicked that in the butt you get nothing in this life for free.

So if there is anyway you could contact your friend and if she has the time. I would love to talk to her about how she coped growing up and her linits if any on what she can do.


Thanks
Kris

Hi Kris (wings_of_a_dove_x_2)

I have asked one of the moderators to PM you my contact details (e-mail).

I think high intelligence and determination must go together with missing body bits.

Feel free to e-mail, and i will give you contact details for my friend. She is happy to chat with you.

take care,

Kate

WBM still got everything crossed for the best possible outcome. Thinking of you and DH during this terribly hard time.

hi all sorry its been so long since i've been in contact, so say its been a trumatic week would be an understatement.
I'm not really in the right state to type a big long post at the moment but thought i should let u all know that our beautiful angel was born sleeping yesterday 21/12/08 at 9.26am 16wks & 5days.
We named him James Michael and he will be layed to rest at a burial tomorrow after noon.
post more when i'm up to it.
xxx

oh HUn


I am so sorry for you loss.

Thinking of you an your family at this time


:hug:

Oh No.... I am so so so so sorry. Words cannot express how Sorry I am to hear that. May he rest in peace with his brother/sister in heaven xxx

WBM - I've been silently following this thread and I cried when I read your last post. I'm so sorry that you and your family have to go through something so horrible and sad. You picked a beautiful name.

I am so very sorry for your loss. My thoughts and prayers are with you during this difficult time :hug:.

I am so sorry for your loss. May your little angel fly free and watch over you.

xxx

Oh sweetheart I'm sitting her with tears and a heavy feeling in my heart as i read your post. May your gorgeous little angel boy rest in peace. My thoughts and prayers are with you and your DH during this awful time. We'll keep you in our thoughts.

With all my love, I am thinking of you and your family.

I am so, so sorry for your loss. Please know we are all here for you and thinking of you. Take care and take as much time as you need :comfort:

Oh WBM, I have been thinking of you and am so shocked and sad to hear your angel has flown to heaven. I will be thinking of you and your family during this sad time...big hugs :hug:

Oh I'm so so so so sorry for what has happened, I hope you take as long as you need to deal with your loss. We are all thinking of you, take care precious lady xxx

I am so sorry to hear of your loss. What a terrible time you must be going through. I hope Brock had a lovely birthday and christmas. The Angels must've had a really important job for James, he will be with you forever.

Sincere and heartfelt apoligies for the loss of your beloved son. Take time to grieve and take care of yourself:comfort:

I am sorry to hear of your loss..
My thoughts are with you & your family at this time..

Thank you everyone for ur beautiful words and messages...
It means so much to me.. its been 6 very long weeks for us since we lost our beautiful little boy.

Not a day goes by that I don't think about him and miss him, and wonder what life would have been like, I miss feeling him growing in my tummy.
It's still so hard for me to understand exactly why this has happened to us... but I thank god that i have another beautiful son here with me & if it wasn't for our 2yr old i don't think I would be where I am now...

Thanks again all.
Take care xxx

:hug: BB gets me through some pretty tough times too ;)