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If you want to lose the plot we are here for you hun :hug: and it is ok to lose it, best to get it all out as such :comfort: and we will be there to pick you up if you need it but I have strong vibes that your cervix is going to be a good length let me have a shot at 3.4cm :D:
Yeah 7:30pm seems like nuts, but they had to get everyone in urgently, but we had to have our partners there (gee doesn't that fill one with confidence :lol:)
Beema still thinking of you!
Mamaspice yay for 38 weeks were are getting there!
Crumpet good luck for your scan tomorrow.
I am still here no sign of a baby yet, 39 weeks today and I see my ob tomorrow afternoon. I am getting random ctx but that's all, and bubs is really low so it hurts to sit on sone chairs.
Beema, how did everything go? Hope you're okay hun :hug:
Good luck with your scan tomorrow crumpet!
Blackrose, yay for 39 weeks! Hopefully your little one decides he/she's ready to come soon. How far over will your Ob let you go for vbac? Will you consider a S&S at your visit tomorrow if everything is looking favourable?
AFM, I'm just plodding along. Got to the stage where I'm not sleeping well at night. It's so cruel isn't it! Lol. I have my weekly CTG monitoring on friday. Last week bub had me stuck there on the CTG for 2 hours because he was sleeping the whole time and not co-operating, cheeky thing ;)
I'm looking forward to having him in my arms next week :)
:hello: girls!!!
just a quick HI this morning havnt got much to update till after my scan this arvo so ill jump on tonight to let u know the goss!!!
good thing is she is going off like a fire cracker in a shoe box all the time so i dont have to worry about there being no heart beat this time :redface:
beema im soooo aiming for 3.4 and above now!! :rofl:
Hi Mummies to be :bellyrubs:
So fabulous to see everyone still here and growing fabulous FT bubbas!!
Crumpet ~ Hope everything goes really well for you today, and I am thinking of looooooong cervix vibes for you, I can't wait to here the goss and I am betting over 3.4cm :dance:
MamaSpice ~ Good Luck for your monitoring tomorrow, hopefully this time he is a little more co-operative during the monitoring and wakes up for a bit of a party! Flicker was having a grand old time last Friday when I had mine, kept kicking things, and we would get decelerations, HR would drop then a big wack! And the other way where the HR would go really high, we think he/she was getting really excited and then it was followed by a flurry of kicks. Wasn't too happy with the ctx though. I can't believe you are going to be holding your baby next week oh sooo sooo exciting!!!!
BlackRose ~ Goodluck with your appointment this afternoon, it sounds like bubs is really low, very exciting, I hope the ctx ramp up for you and labour starts to get going, you must be getting frustrated with having the ctx for so long :hug:
AFM ~ My OB also wasn't particularly happy with the fact that my contractions are still around even with the change in the Nifedipine and the rest, and she said she wants to try me on Progesterone to see if that calms everything down. I am feeling a lot better today and have only had a couple of ctx, so now that the events of the last few days are behind us hopefully everything can settle back down :)
I am also super excited that 30 weeks is sooooo close now just 2 days away, and that was one of my BIG milestones to reach this pregnancy, following that 32 weeks and DD's gestation which is 33 weeks 4 days :dance: from there we would be in unchartered territory :o
Well I am glad the last couple of days are over and done with! I apologise for the really long post and if you have read the other thread, but it covers everything. The whole experience was horrible, and one I wouldn't wish on anyone else, and it is horrible to know that there are 20 families involved in it all :(
This is what happened at the appointment:
We arrived early and they were running late, the couple before us came out and the father started explaining everything to his parents or IL's so we had an idea before we went in what was going to happen.
Dissappointed that the OB I had was the one from the WCH, so came with the pretty blunt intro as to what happened. She went through what has happened, there was a change over of software right at the time we had our 12 week scan, so the results went into one program, but should have gone into another, there were glitches in the software. So what it has done is changed our risk for DS from 1:655 to 1:244 and placed us in the high risk category, hence the reason for us getting called in. She then went on to say that we are still able to terminate not here but we would have to travel interstate, it was just so blunt I lost it at this point. In addition I have come back with Low PAPPA.
Our options are to have an amnio which comes with a risk of MC of 1:205, but due to the shape of my uterus and the fact that I am already having contractions, the risks are significantly higher. We have been placed in a position that no parent wants to be in let alone at 29 weeks into the pregnancy.
She went on to do a full scan, growth scan, and almost a full Morphology scan, she took great care looking and measuring the nasal bone, the heart, kidneys, brain, she also did a set of dopplers. She was happy with the growth scan, everything is tracking online, but TBH I don't know if there are any real signs of whether a growth scan is going to give any indication as to whether a baby has DS or not.
I can't believe we have been placed in this position, let alone at this stage, and why on earth did they take so long to contact us all.
We have a lot to absorb and emotions are running high, but this little baby has shown so much fight and I couldn't go through with a termination, so I don't think we will bother with the amnio as we aren't going to "use" the information.
My reflections on it all yesterday morning
That was one of the hardest nights I have had this pregnancy, I feel shattered this morning, neither DH and I slept much at all, both of us waking through the night in tears, I felt so angry, hurt and upset, why did we get put in this position, why did we have to go through this and why now.... I know that life is meant to challenge us, but I never expected to be pushed to such extreme limits.
When I announced my pregnancy it was with vigour that I was going to skip the NICU Rollercoaster and get to Full Term, but I didn't comprehend the rollercoaster of emotions that we have been for the pregnancy part on for the past 21 weeks....
I am calling my OB's office this morning, they open at 9:30am and organising an appointment to speak with my OB. There are questions we have, but I feel that within my heart that Flicker is ok... and as I can't even comtemplate Termination, so realistically the amnio is not the way to go, because of the shape of my uterus and the fact I have been having contractions makes the risk of the amnio so much higher, but it would also give the definitive answer that my DH is searching for.
I have been on the net - I am a careful "Googler ", finding out more about Low PAPPA, which is Low Pregnancy-Associated Plasma Protein A (PAPP-A), this has placed us in the high risk of chromosomal abnormality, but from my reading it can be indicative of a few things which I see are more fitting to my case, I have found a direct link to having a uterine septum and the positioning of the placenta in relation to that. And as we know my placenta is over the top of the septum and that placenta has always been on the smaller size. For these reasons my OB has been closely monitoring growth and doing regular Dopplers, with the expectation that the restriction is growth is more likely to occur after 30 weeks. This is one of the things I plan to discuss with my OB today.
On top of that if there was any retained placenta from the twin, this could also result in a Low PAPPA result, this is what the OB told us last night.
Flickers growth scan results from last night were pretty good, and putting growth ahead by a few days based on my "Official Dates" (or right on track with my dates of 30 weeks yesterday) Weight was 1556grams, up from 1440grams last Tuesday - give or take based on the accuracy of these things.
I have also looked closely at the range of soft markers that can be present in cases of DS, and I can't see any of them present in the scans we have of Flicker, but I will go through them with my OB today.
I know that in time this will get easier, but I know that DH would feel better about a definitive answer, where as I can just live with what ever we are given. And TBH I look at the figures and all of the information, not just the fact that we have crossed the line into the high risk category, where as I don't think he can get past that.
I am sorry if I have repeated myself everything is a bit of a haze right now, but hopefully soon I see clearer again.
Last night we went and saw our OB and this is what happened
I am so so so glad we went in and spoke with our OB this afternoon, it was a great debrief for DH and I. We went through all of the events of the past couple of days, and we asked a bucketload of questions.
We went through all of the results, the original and the new figures, we went through each component of the 12 weeks results and what each meant, we strongly believe that the Low PAPP-A is due to the poor placement and attachment of the placenta. And just one hiccup with a component of the testing can make a dramatic difference to the figures.
We went through the results of last nights scans and each Soft Marker that was looked at and are confident that visually there are no signs of DS. We showed our OB the 3D photo and she had a good look at the facial structure and agreed that the positioning of the eyes on the face, the don't look slanted in and the nose looks just like DD's
We went through all of the risks associated with the amnio, had we had it done early in pregnancy and doing it at this late stage and what we would or no do with that information. The reality is it is not worth the risk to do if before 34 weeks, my pregnancy is far from "stable" and although if a clean amnio was done the history of PPROM, a uterus that is contracting, ther would need to be quite a bit done to actually calm it down, it is just too complicated and too risky. And we have made the decision that if we have the amnio we aren't going to do anything with the results.
We feel at peace with our decisions, we have looked at all aspects and although we can make a decision about the amnio down the track, I don't want to risk this pregnancy in anyway and it isn't going to prove anything.
Had we found out this information much earlier... like when we should have... we would have had the option of an additional blood test which would have given us further information without needing an amnio. But we can't dwell on that.
So while we are still upset about what has happened and how it was handled, it was not the fault of the OB's at the clinic, we need to take our focus and minds away from that and just refocus on growing Flicker into a big fat chubby baby who will be perfect in every way :)
thanks hun!!
i have been following the other thread and im just in awe of how u and ur DH are handling not only the situation but all of the feelings that would be going with it....
i couldnt imagine being in ur situation but i tell u what i look up to u and ur strength and positivness and you give me the hope that i to can do as well as you and get to that 30 week mark if not further along...
thank you for sharing ur story ur a brave chook :hug::hug::hug::hug::hug::hug::hug:
are u on the progesterone pessaries or a cream or injection?
we had to use the pessaries, not the most fun thing but they kept things super calm here!
Awww. look at Flickers latest pic! So cute :)
:hug: Beema, you know what, my gut feel is that you have absolutely nothing to worry about with regards to downs syndrome. But what an emotional ordeal to go through :hug:
Thanks hun, I feel 30 weeks is very achievable now :dance: nothing is going to happen in two days! Better *touch wood* :lol::
She mentioned the cream, Crionome or something similar to that :dunno:
I feel the same hun, we can't see anything that would indicate that there is downs syndrome, and while nothing is 100% we are happy with what we have seen, it's just a pity the process and timing was so horrible!:
The pic is very cute, I guess it was the "highlight" of Tuesdays scan :lol:
30 weeks is definatly achievable now!! i rekon 32 weeks is achieveable for u now!!:
ahh ok, ive herd of it but havnt had to use it...
the pic of flicker is gorgeous i didnt notice it before!:redface:
I only changed it this morning :D:
im back from my scan girls!!!
and well im a bit :D:D:D:D
so baby girl is measuring perfectly, all the right bits in the right spots all that jazz.....
beema this bit is for u.....
they looked at my cervix and its still tightly closed AND
its 4cm!!! :leap::leap::leap: i was a little stunned when she said it was that long, so i think ove lost all of 2mm in 4 weeks!!!
my placenta has moved away from my cervix so i look ok for a VB now as well!!!
god i feel so relieved, i was terrified my cervix would have shrunk!!!
thank you all for u love and support running up to today it means a lot!! :grouphug:
:leap: :leap: :hooray:Woooooo Hooooooo :hooray: :leap: :leap:
OMG hun that totally rocks!!! 4cm YIPEEEEEEEEE!!!
That is just so so cool, I wanted to guess a higher figure but I was scared that if it came in lower it would be dissappointing :redface:
So wonderful to hear you had a great scan!!!
AFM ~ Felt like crap this afternoon, I think I ate something that didn't agree with me so have spent a few trips (WAY TMI) back and forth to the bathroom and on top of the ctx been annoying the crap out of me since 11:30am, so I have been laying down on the couch feeling sorry for myself. Next dose of Nif due shortly and I'll take another booster as well. And work out something for dinner as DH and DD will be home in half an hour, DD is easy but no idea what DH and I will have, probably soup or a frozen meal that we have.
thanks hun!!!!:
i know what i u mean i wasnt aiming high for my cervix from the fear of disappointment!!
my OB is going to fall of his chair tomorrow!! :rofl:
sorry tp hear ur not feeling well :hug: rest up, get hubby to sort out dinner!
Hi guys, sorry I haven't been online and posting for a while, haven't been feeling too good, so haven't been posting. And thank you for all the welcomes :)
Beema - I'm keeping everything crossed for you that flcker will stay put for at least 4 more weeks!
Everyone else - Hi and I hope everything is going ok for you all.
afm - I have constant all day sickness, and constant cramping all day, so I've just been taking it easy on out new recliner couch, keeping my legs up with the laptop in front of me when I'm feeling good enough to be able to surf the net.
I'm also not eating right either lol lots of chocolate, since it's one of the few things other than vegemite on toast that actually stays down, biscuits, very sugary juices lol but it all tastes sooooo good!
Nothing else to tell here.
Hope everything is good with you all!
oh u poor thing hope ur MS goes away soon!! and the cramping too, that wouldnt be much fun! :hug::
AFM: had my OB appt yesterday.....
good and ok news....
he is really happy with most things.....
over the moon about my cervix and stitch, he said it would be unlikely to start shortening but if it did id probably know about it so that was music to my ears!!
baby must be growing well coz my tummy is measuring 3cm ahead of what it should, and my uterus had popped out about my belly button now!! i was fscinated when he told me that!! :lol:
he raised a eyebrown when i mentioned braxton hicks that i get, which are far from frequent, they dont happen every day and only happen in the morning, said he doesnt want me feeling them at all, but until they start coming more often he wont worry yet, but if they ramp up before 30 weeks we will need a plan of action, im guessing nifedepine for a bit again.....
but the ok news.....
my placenta hasnt moved as much as they thought when we looked at the report....
which really isnt bad news but im disappointed i thought i was all good to go for a VB, and now we are back to treating things like ill be having a CS....
OB said we still have time for it to move, didnt sound to confident though, and we will do a scan at 32 weeks to check on it.
ill be getting a referal for another scan at 26 weeks for my own piece of mind given our history so hopefully its moved by then and we wont have to worry.
he also said given my utter dislike for the spinal and cathether he is going to attempt to take my stitch out with a local instead.
from what i gather that means a needle up the hoo harr into the cervix so he can nick the cervix skin to expose the knot in the stitch and then remove it that way, sounds like heaven compared to the alternative!! :rofl:
he has put our aim at 30 weeks, which he fully expects us to pass but said its nice to know u have made it to a milestone, suits me!!
after that he said he basically wont be concerned about what i do, so ill be able to vacum again all that stuff!
all in all a good appt, i think i expected to much from the placenta issue
Crumpet - Glad ou got some good news :) I'm sure you'll make it waaaay past the 30wk mark :)
afm - Just thought I'd update you all on where I'm at as well... went to the doctors this morning as the cramping and stabbing pains on my left side are getting worse and I thought I had a bit of brown spotting yesterday evening, and turns out I have some tenderness on my left side just inside my hip/pelvis and very low in my pelvis as well, so I'll be heading up to emergency around 11-12ish - when hubby gets back from his mates place - have to wait and see if it eases off a bit and find a babysitter for DS first though.
Doctor thinks I might have an ovarian cyst that's being squished, so hopefully I'll get a scan t the hospy and they can find out what's going on. Cramping for almost 4 weeks straight just isn't normal!
So just sitting here, trying to relax and breathing through the pain.
Hope everyone else is doing ok. I'll let you all know what happens when I get back!
thanks hun.....
oh u poor thing!! good luck at the hospital, hope everything is ok and u find out whats going on :hug:
Jenna hope it all checks out ok for you.
Crumpet yay on the long cervix and the placenta moving, that's great news!!
Beema 30 weeks!!!! Well done, I hope the cream helps ease the ctx for you.
AFM the Friday night ctx hit again, they got really strong but I fell asleep and could barely feel them. I walked around to our primary school to vote and we went out in dh's 4wd it seems to have made things progress but not enough to send me to hospital yet.