Tired of endo ....

I have been suffering from endo most of my life. These days it rules my life as the pain I suffer stops me from doing things I should be able to do. Due to the constant pelvic pain I have I find it hard to do house work, shopping, gardening, sex and even interfears with playing with my kids. If I do too much of anything I regret it for the rest of the day.

I have not been taking much for the pain as I found that the NSAID's and panadine forte interfear with my "happy pills" (anti depres). Now that the kids are in bed I have taken some NSAID (naproxin 500 I think it was) for the rest of the night I will have head spins and fall over if I am not careful. I am still in pain and if I take pan forte I will start to get more problems from the interaction with my happy pills.

I have been to see my GP and she said to try an other NSIAD to see how it affected the happy pills, so that is what I am doing at the moment. I went and seen the Gyn about the interactions and was refered to the pain clinic (I am still waiting for appt)

I just feel so frustrated!!! :angry::angry:

I have no "friends" anymore as they didn't understand the pain and everything else I have to deal with on a daily basis.
Does any one else have these kind of problems??? Am I alone in this daily struggle??

Take care
Chris

Hi Chris.
I know exactly how you feel! Not sure if you have read any of my previous posts but I struggle on a daily basis too. I have had endo for about 10 years and am about to have my 5th op. I, too, have given up with the painkillers. I was so poorly a few weeks ago that I went to A&E...they gave me a shot of morphine (which did nothing) and sent me home. Unfortunately, no matter what tablets I have beem givem over the years, nothing works. I have been really unwell for the last 3-4 months. I am constantly thowing up, bleeding, and generally feeling rotten. I truly sympathise with you. As for friends, well, I am not actually from here (my hubby is) and so I don't really know anybody...which makes me feel very isolated. My husbands friends anf family do not understand either. :wall:
So, all in all, I am completely with you...I have now been told after this op, if I don't get pregnant or the endo doesn't improve (?!) then I will have to have a hysterectomy. I was devastated at first as I don't have any children (been trying for 5 years nearly), but I am depressed right now with these god-awful symptoms, that I wish they would just take it all away anyway.
Sending lots of cuddles to you. I really do understand.:hug:

Hi Fluffy
I have replied to your posts.
What have you tried hormonaly to help with your endo?? As I have tried quite a few hormone treatments.
Do you take any vit and min or any kind of supplements??

Cheers
Chris

Hi Chris.
Well, at the moment, I am not actually taking any "drugs" - hormone, natural or anything. I seem to suffer the same degree of symptoms no matter what, so I decided not to bother and we will see how this op goes and take it from there. The doc did put me back on the pill to try and ease things, but this hasn't worked either...also, it is a catch 22, as obviously, we have been trying to conceive for over 4 years and taking the pill sort of doesn't make any sense as this is obviously preventing me from becoming pregnant anyway! :wall:
The only thing I have done is try and change my diet. I am already a vegetarian (since childhood) and have now cut out most dairy and eggs too. I don't know whether this is actually doing anything, but I belive it can in the long run. My aim is to cut out the little bit of dairy I now have as I keep reading that this is a huge factor, so we will see.
Have any "drugs" helped with your symptoms? And what is going to be your next step???
How are your symptoms today?:hug:

Hi,
I have pain constantly at the moment. It is not so bad when I first get up but by 12 -1pm I am really feeling it. I don't like taking any pan forte or Naprasin because of the side affects I get from them when they are mixed with my other medication. I try to wait till the kids are in bed

On Friday I am seeing a Dr about my medications and their interactions with each other. I hope to find a mix that will let me have a better quality of life. :crossfingers:

You might find B6 (100mg), co Q10, flax seed oil and folate might help. Google them and see what benifits they can give you when TTC.

Take care
Chris

Hi Chris.
Thanks for the suggestions - I will definitely check them out.
Good luck for the doctors Friday...let me know how it goes for you.
hugs x
P.s Op is 3 weeks today...and counting!!!

Hi
I hope your opp goes well.. :crossfingers::crossfingers: and that your Dr helps you on the road to being pain free.

Take care
Chris

Hi
Just thought I would let you know that my GP sent a letter to the hospital requesting an earlyer app with the Gyn. I have a new appt in 2 weeks.

How is everyone else??

I hope everyone is going well.

Take care
Chris

Hi all,
I just saw your post & wanted to say that you are not along. I just been diagnosed with server endo & I'm booked in for a major operation next month. Since the diagnose, I been stress, sad & overall down. Since its still early days for me, people around me are trying to be supportive, but I think my husband already starting to be over the fact that I'm down & letting this thing consume me (doing research about endo constantly). I understand that its not fun to be around me at the moment, but in the same time I would expect more support (on all levels - emotional & with the house work). I'm also not from here so I don't have my family around (just my husband & in laws), so it feels very lonely at times.
If any of you are in Melbourne, I'm happy to meet so we can have a little support group. I think it will help if we can turn to each other when things get emotional. Please let me know if you are interested.
Hope we all feel better really soon. :)

Hi all,
I am currently torn since my visit to gynae on Friday. He wants me to take synarel for 6months to prevent endo regrowth after I had extensive amounts removed 6 weeks ago.
I am not sure whether this drug is the best idea for my body, but I guess the specialist knows best.