Has anyone else had to deal with anencephaly?

I would so appreciate talking to anyone who has been in this or a similar position :(

Just wanted to give you a:hug: sorry I can't help you more.

:hug: hun, I'm so sorry you are going through this my heart just breaks for you. Please feel free to talk or ask questions :hug:

Regards,
Dianne
Emmanuel born sleeping @24wks
Trisomy 13

Oh Ally I am so very very sorry to read your story. :comfort:
I personally have no personal experience with anencephaly but there are members who have. I will flag this post for one particular member to read & I am sure she will be happy to support you.

This is one of those impossible events in life that seem too awful to even begin to unpack I can only imagine. I have supported women through their baby's having this condition & I do understand through them some of what you are experiencing.

Do you have a good understanding of this condition?

I am assuming you have been given some choices to make about continuing your daughters pregnancy or interrupting it? If so, how is that process going? Are you feeling like you know what you would like to do?

Some women do continue their pregnancies & you are right anencephaly is not compatible with life. :comfort: You would also kmow the process for interrupting your pregnancy as well. These are such hard choices. :hug:

Some things I would like to suggest are these:

If you make the choice to interrupt your pregnancy prepare yourself as best you can. You can choose to birth your baby or there are other options that you can then have a dilation & curretage due to this being after 12 weeks. Think about weathr you would like to name your baby. Weather you would like to have a second opinion. Some Mothers choose to have another u/sound whilst the baby is still alive to say their goodbyes & take some more images. Choosing a plant to plant to remind you of your baby - perhaps music to listen to as you go under anesthetic if you choose the curretage route. Or to birth to if you choose that route.

What town are you in my love? If I can help you in any way I will. I am here & I feel so deeply for your news & this shock you are feeling. :hug:

oh sweetie I am here for you tell me what I can do its 7 years since I gave birth at 21 weeks to my tiny daughter ...feel free to email me I shall PM you my email addy ask any questions you need to I will answer as best I can :comfort:

ok I can't PM you my email is harrydog@internode.on.net please please feel free to email me I will help you all I can :comfort:

Thankyou Rach :comfort: I am only sorry that you can feel all that Ally is too. :hug:

thank you ladies. i will email when I can. this morning i just can't :(

:comfort: Ally

Big :hug: Ally :cry:

I haven't had to deal with anencephaly myself, but I do know what it's like to lose a precious baby. Sending you all the love and support I can spare right now, okay? I feel I need to say more, try to take away the hurt somehow, but I don't have the words :(