Through tears, please give me hope

I recieved terrible news today and I havent stopped crying since hearing these words. I want to be a mummy. Thats all I have wanted in such a long time. I have planned my life around it. I am with children everyday, that is my career and my life. We have always planned to have children and finially made a decision to start TTC in July.

In preparation, I went off the pill in Dec. After having my last 2 AF that are painful and severe that I have to live of pain killers for days and sleep on the floor where everything is still.

I decided to go to the Docs for a chat, only to be told that I have very high chance of having endometriosis. With what I decibed to him of my history of menstrual cycles, it was a given to him. I am now booked into the Gyno to then go and have a Laparoscopy. He gave me all the info of what the best case to the worst case is.

All I can now think about is; I might not be able to have babies. Its killing me. I am heart broken.

Please...if anyone has any stories they wish to share or advice, that can help me PLEASE PLEASE share. I need hope...................................

Sorry I don't have much in the way of advice, but I couldn't read this and not post.
Massive hugs to you. I know the pain of wanting it so badly, and I really pray that you get your little baby, and soon!

The girls in here and other support forums will be able to give you lots of info and advice, but have faith in your body. This is not the end!!

A friend of mine with bad endo started trying really early cos she had been told her chances were reduced. They fell pregnant straight away and have the most adorable little boy about to turn one. My cousin had endo too and now has three little boys :)

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I had severe endometriosis which was removed by laparoscopy and extremely blocked and damaged tubes. We required IVF to be able to conceive and it worked first time and our baby girl is 11 months old.

It's devastating to hear those words though, I can really empathise and know where you're coming from. Be kind to yourself and allow yourself to grieve, make sure you have good support around you.

It's horrible news but not the end of the line, it's reassuring to know that there are options after endo!!

Huge hugs :hug: :hug:

Sue x

My friend had severe endo - had a laparoscopy which they explained was a "clean out" and she was advised to ttc straight away as it would be her best chance before the endo possibly came back. She fell pregnant within a few months.......... I hope this gives you some more hope. Xx

Honey, don't despair - endo does not automatically mean you may not be able to conceive. It can, but not always. Your tubes may be totally unaffected and therefore you will have no issues conceiving. The lap is the best route to take, your doc will be able to clean out any endo and flush your tubes at the same time and at least you will know what is going on in there!
There IS still hope, don't despair!

first of all HUGE hugs to you! I know what it feels like as many of the girls on here do to be told "sorry you cant have children" but this is just wrong. I remember in 2004 being told this and just crying myself to sleep (I have PCOS) and thinking ill be alone an have this huge hole in my life. But really just get some advice, look on different forums and get as much info as you can.
Dont just settle for what a GP says and there are options for us all out there

xx

Please dont give up hope on the advice of one doc. I have endo and had two laporoscopies to clear it before starting Ivf. My second full drug cycle I fell pg with my beautiful twin boys. I felt so blessed! Six months after my boys where born I was shocked to find out I was pg NATURALLY with another little miracle I am now 15 wks pg with another natural miracle so sometimes your body just needs a kick start! Don't give up hope endometriosis is not the end of your baby dreams. Xoxo

ah sweetie, I so know where you are coming from. I remember how difficult it is to hear that you may have issues having a baby. I was told 15 months ago that I had PCOS and it was devastating! During the ovarian drilling surgery the docs found a lot of endo and blocked tubes. When the doc rang me after the op and told me that it wasn't just PCOS but more serious than that I thought it was all over. DH and I had just got married and I thought he should leave as he deserved to be a father.

Anyway- long story short, we started IVF and fell pregnant straight away, first cycle. Our daughter is now 3 months old and the most gorgeous thing in the world. Please don't lose hope, there is always options. My best friend also had endo, after her lap, her gyno said it was the worst case he'd ever seen. She fell pregnant naturally after her lap and now has a 4 month old.

Hang in there babe, it's a hard road but there is light at the end!

Oh hun, I know how it feels to be told this. Please don't give up hope. I have had 2 laparoscopys to remove endo and I also have PCOS. The funny thing is, in the end it wasn't endo that made it hard to have kids it was the PCOS and all I needed was some fertility drugs called clomid to make me ovulate to fall pregnant!

I can give you hope - I am an EX sufferer of PCOS and endometriosis - and was told at just 21 that it was highly likely i'd need artificial assistance in conceiving. Thanks to a fantastic Naturopath, and some sacrifices and radical lifestyle changes on my part, I am now completely free of all my symptoms and went on to conceive 2healthy boys. I went around and around in circles within the mainstream medical system first - taking drugs, having repeated invasive surgical proceedures etc.
Natural Medicine helped me to see the light at the end of the tunnel. I hate to say it hon, but the pill has likely caused a great deal of these issues by suppressing your natural fertility rythyms, and you need to get quite strict and tough in your approach if you wish to beat the aftermath - but you can.

I suggest you contact ANTA (Australian Natural Medical Association) to find a Naturopath near you who specialises in Natural Fertility Management, and will be able to conduct an array of non-invasive tests to assess your toxicity, hormone and mineral levels etc. Then you need to follow all the dietary advice and take all the supplements, herbs and gross tasting stuff that is recommended for you. I also highly recommend the book The Natural Way to Better Babies; Preconceptual Care for Prospective Parents. A great read - so much info in there which explains the root causes of infertility and how to tackle it from the inside out.
Happy to help and give you hope- ask me anything.

I'd like to thank everyone for your stories and wll wishes. I am feeling a lot better today. I have spent the last few days crying but now have taken a small step forward to making plans on how to attack this!

I'd like to particuarly thank JellyBean. Your story confirmed my plans. I went to alternative medicine last year when I had Ross River. With some research (done by my husband, Supportive and Productive man!) I have booked with a friend who is a Natropath/herbalist and has treated woment with Endo before. I am just so glad to hear that someone has gone through this and has used alternative medicine to help. Im a bit upset that my old herbalist who specialised in chinese medicine and fertility moved to Sydney last year- I could have really used her skills right now! But lets see how it all goes!

Thanks again to everyone!

:hug: J-Lo

DF and I TTC for around 18 months with obviously no luck. Had a small issue with a 3cm ovarian cyst that prompted another gyno visit! All my BT's came back perfect and i was told IVF was my only option by one particular gyno (never will see him again) Was very difficult, however, after seeing another gyno and him suggesting Lap I was scared (such a big word, but not a bit procedure really) because I was a little afraid of what they were going to find or what hurdles we were going to have after the lap, plus it was my first surgery :)

While I was in there, the gyno seen I had endo, I did not have the typical symptoms of what women with Endo normally have (Ie painful heavy periods) and a stenotic cervix (which means my cervix was closed/partially closed) he had to very gently stretch my cervix and drained the cyst while I was there. He also done the blue dye test and all was clear :) The endo i my situation was due to the cervix being closed. 2 cycles later I am now 17 weeks pregnant NATURALLY!

Dont give up hope though! At least if you have a lap, they will clean you out see if there are any other issues, they may be able to deal with them on the spot and give your baby making bed the perfect chance to rest & grow a gorgeous little bubba! It is very easy to get caught up in it all and I am sure you will be really anxious until after the surgery.

ETA - We wasted 6 months and $2500 on a naturopath too!

Good Luck with the Lap and TTC :)

Hey hun, i have been there! I joined BB just days after i learnt i have pcos and was told that the chances of concieving naturally were very slim as i only ovulate maybe once every 6 months and pinpointing exactly would be hard. Both ovaries were covered in cysts i was in constant pain. I was absolutely devastated, i cried for days on end and even begged my DP to leave me as he wanted kids and i felt i couldnt have them.

I was told by him and some lovely ladies on here to stay positive and that there is hope, of course i didnt believe them. But i also learnt that i have an insulin resistance and i was put on metformin for it, i was told that it made women VERY fertile but i just shrugged that off and didnt believe the doctor. So ater being on metformin for only 3 months, i lost 9kgs. One accident later we fell pregnant.

My advice to you is wait until you find out exactly what is wrong, there may not be a cure but there is certainly treatment available. Stay positive (as much as it will be hard to do)

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My Mum had severy endo. There is a 6 year age gap between myself an my brothers. She also has a lap and fell pregnanty soon after. She then went onto to have my brother 18 months after that he wasn't planned and she was breastfeeding so think that might have helped keep the endo away.

Good Luck with it all, there is hope though.

Whilst I agree that Natural methods help, I have to say that each case is individual and not to disregard the opinion of your treating medical team. Natural methods do not make endo disappear so it might be worth getting your endo removed and then using the natural methods to assist with conception.

I had acupuncture for a year before I started my IVF, and then all the way through my IVF cycle and pregnancy and I feel that it helped tremendously - especially with my stress levels.

Please don't give up hope! As you have heard, there are definately quite a few of us that have had sucess after Endo. My 2 sisters both were diagnosed with it & went on to have 3 children each. Myself on the other hand was diagnosed with PCOS after trying for #2 for a few years. Eventually being told I would never have any more babies naturally. I could not afford IVF so tried the natural route for 11 years (and about 10 different natropaths even the Sharkeys!) With severely painful periods my mother always believed i also had Endo and finally almost 13 years later I could finally afford IVF. DH & I went to see a fs and he was gobsmacked at what I had been told many years before and waisted no more time in helping me. (I was told I was young & had plenty of time to have babies so come back in 10 years when I genuanly need fertility help. 10 years later to the day I was standing in this fs office again asking for help) Not the same FS I should add. Anywho, Dh & I decided to wait the couple of months so my medibank private waiting period was up. In the mean time, I was getting painful cysts & acne (as I had for many years) but was completely fed up with them so insisted my doc put me on some long term antibiotics to combat them once & for all! I also found out my day spa facial lady also did this ipl laser treasment thing & this other electrical thing so while I was getting my acne & cysts treated, I asked her to put the healing laser one on my stomach to help with my upcoming IVF.

My very next cycle after 13 years of trying & I was pregnant with DD1! Never made it into IVF!
But the story doesn't stop there! Unfortunately, I needed a CS & while my OBGYN was in there, he said I had endo scarring but was now completely clear of it. He couldn't believe It was gone with no operations to remove it at all! Only a couple of months later & I was pregnant with DD2 and with another CS, still no sign of endo!
I now have no pain with my periods, my skin has cleared, my moods are normal & even the PCOS is GONE!!!.

You can definately have sucess after endo, I thought I would never in a million years get my much longed for little girl & now I have 2!
Good luck !

I know how u must have felt being told that, and i hope these stories have given you hope :) i was told at 15 i had a 50/50 chance of having children, i had my "clean ups" over time and tried for 2yrs concieved natrualy now 3yrs later we have finally concieved again only just very early yet but its posative. Please stay posative