Multiple Pituitary Hormone Deficiency A little bit about my my son has

Hi

I have posted more in the special needs section but will share what my ds has here as it is not a very common medical condition.

When ds was born he had very low blood sugar's (so low in fact that he had no energy to wake up feed or go to the toilet) and was also born with a micro penis (which finally ticked the box for ds's specialist's to know what he had) the doctors and specialists were very concerned and really ds had them very worried as to what my ds could have it took them about a week to finally diagnose what ds has it took so long as they were giving ds every test under the sun.

Ds stayed a whole of 2 weeks in NICU and has been back to hospital multiple times due to illness and appointments.

Ds is a very brave boy he has to take 4 tablets a day (more when he is sick as he has no immune system so the tablets have to be his immune system for him) and one injection of growth hormone which he takes like a champ.

Ds i not yet walking and that is concerning everyone again as he is 20 months we hopefully will be seen by a physio very soon.