Complex Endometrial Hyperplasia - Is there hope for a baby?

Hi All,

I have been on a long journey in effort to fall pregnant, and after a stint on Clomid, it was suspected that my endometrial lining was thickening as a undesirable side effect of the Clomid (sometimes seen in long term Clomid therepy). An ultrasound confirmed a thicken endometrium and a polyp, so a Hysteroscopy and Polypectomy was scheduled. My OB/GYN didn't tell me at the time, but he suspected cancer as soon as he got a look in there, but to his releif, the pathology didn't yet indicate cancer, but Complex Endometrial Hyperlasia w/out Atypia.

After three months of Provera and a repeat Hysteroscopy my uterus looked healthier, but there was still some hyperplasia. Pathology suggested Atypia this time, but that wasn't certain. I was sent for a Sonohysteogram, which just 6 weeks after the second surgery showed another mass, which the Dr assumed was a polyp, however the growth was in the same area as the hyperplasia removed in the surgery just 6 weeks before.

Long story now, I have been referred to an oncologist, and my FS won't treat me any further without the oncologists "blessing". My appointment is in 3 weeks, and I am left anxious and concerned. Originally it seemed that this was just another bump in an already bumpy road, however now it seems that maybe the road is ending altogether. The FS said that while the hyperplasia is persistant, even with IVF our chances are slim to none, and if the oncologist has more success in resolving the hyperplasia (at least temporarily), then I still need to lose more weight before IVF would be effective and I might not that that amount of time before needing to have an Hystorectomy to ensure my own health.

Is there hope?

I didn't want to read and run. I have no info on hyperplasia but I wanted to wish you well. I hope you get your baby soon.

i've just had some experience with the scare that goes with hyperplasia and the is it/isn't it cancerous scare and wanted to send you some hugs and support

have you had a full d&c through all of this? i know you've had the hysteroscopies, and sounds like you've had several biopsies - but have they actually done a full clean out to help you start from a clean slate? this i the last treatment i had (just last month) with an aim to get rid of the thickened lining completely

hopefully the oncologist gives you the all clear on the atypia (from research, it is a small percentage of atypia cases that develop to anything more) and you can take the steps to start a family.

Just wanted to send you some goodluck x

Just sending a :hug:

Thanks everyone for all the support!

briggsy's girl - Yes, I had a D&C with the first Hysteroscopy, as originally the hyperplasia covered my entire uterus and they removed a sizable polyp also. With the follow up surgery and hysteogram, for the most part, my uterus has remained clear, but there is one part that showed up again and even after the repeat curettage of that section during the second hysteroscopy, it is persistant and already showed up again just 6 weeks later on the hysteogram.

I know I should be worried about cancer, but I am so pre-occupied with wanting a baby that all I can think about is how I can get around this without a hysterectomy! My FS has already started talking about freezing eggs and surrogacy, so that certainly doesn't give me much confidence as it seems like he's already given up on my chances of pregnancy!

Please tell me there is someone out there with a similar story that ended with a baby...? Just one baby...

Funny, when we first started trying, because of PCOS etc I was concerned about miscarriage and losing a baby, but as far as anyone can tell, I never even got that far and if I did, it was far far too soon for anyone to tell. It just feels like someone is taking away my destiny. Just once, let me feel morning sickness, have an excuse for my expanding waist line, do the ring test, feel little kicks and later feet inside my ribs, get more stretchmarks, but this time for the right reasons, complain all the time for one reason or another, have strange cravings and then finally go through the most painful, but amazing experience of my life... Followed by sleepless nights, agonizing over will I ever get the hang of breastfeeding, changing a million nappies, being chucked up on, deciding whose ears, eyes, nose and chin he/she has, watching them grow into a little person and worrying will I ever be a good enough parent? But at the same time loving every minute of it all, the good and the bad, and knowing that I wouldn't trade any of it for anything is the entire world.

Why is that so much to ask?

I just came across your post after doing some online research for complex endo hyperplasia and was wondering how you went and whats happened since your post?

I have found myself in the same situation as yourself... and am really unsure of what to do..

I am waiting to find out when I go in for a D&C to see what exactly is going on inside but have been told that my lining is abnormally thick & showing signs of atypia..and I may be looking at a hysterectomy... something I desperately dont want yet..
For now I am stuck in the 'unknown' and until I go back to see my gyno, which is not until the 8th Nov my mind is going crazy not knowing what I am to expect to hear...!!

I hope the last 12 months have had some good news for you!