Fibroid removal - what to expect?

So after yet another m/c in the 6-9wk range (where most of mine have been) it turns out my "tiny, in the lining, nothing to worry about fibroid" has grown considerably and is now sitting inside my uterus rather than the lining.

I have a referral to the FOG (fly in OB/GYN) but also have the option of going private if we want to travel the 6 hours to Brisbane. I've been seeing my GP plus the head GP of the medical clinic here for the last few weeks during the pregnancy and they have basically said I would need to look at having it removed if I want to keep TTC.

So anyone had one out? I'm reading lots of scaring and it causing infertility so I'm not too sure where to go from here. Would like to know all the option I guess.

Anyone had one out?

I've not had mine removed so am of no help unfortunately but I wish you all the best! What size are they saying it is? I think depending on size they'll either do a laparoscopy (less chance of damage) or a myomectomy (pretty major surgery and what the first specialist I seen wanted to do as mine was around 7x4x4 cms.) I was lucky enough to seek a second and third opinion and ended up having a lap just to suss things out, they then put me on Synarel to try and stop or reduce its growth. This did reduce it slightly but you can't take this medication for more than six months so once I stopped it, it started growing again. Mine is inside the uterus same as yours. I'm now 36 weeks pregnant and at my 32 week scan they told me they can't see it anymore, I had heard stories of fibroids degenerating during pregnancy but the first challenge is getting that BFP to stick.

I hope someone else can share their experience with removal with you, sounds as though you are in a remote area otherwise I would suggest a second opinion :) best of luck!!!

Thanks for replying, we will be getting other opinions really just wanting to arm myself with as much info as possible at this stage.

I didn't take home a copy of the report so can't remember, just remember they said it was now in the uterus instead of the lining.

Wondering why they didnt see it at my 5w6d scan a few weeks ago when we saw the sack and heart beat?

That is strange that they didn't see it then, if it was big enough to worry about surely it would have shown on the US. I'm glad you're getting another opinion and im really sorry to hear about your losses :( having a fibroid definitely can make pregnancy sticking a lot harder, I did find though that the more people I spoke to about fibroids the more positive stories I heard which is very uplifting :)

To be honest I've had a few u/s in my TTC time and I didn't pick it up either but it was plain as day when I had my follow up u/s to comfirm the m/c.

Sometimes the hormones of pregnancy can make them grow rapidly. Maybe thats what has happened to yours. They can also act as IUD's and cause infertility or m/c before they are removed so certainly positives to having them removed also.

Hi hun, I'm really sorry to hear of your m/c :hug: I've had fibroids myself so I've done a lot of research on them. I had 3 small fibroids for a long time that in time grew into one big one,, about 8 cm. I was just about to proceed with my first IVF treatment and my FS wasn't too worried about it, as it was growing mostly on the outsie of my uterus, and it was more risky to remove it than to proceed with the cycle. I did get pg in that first cycle, and even though it grew to 14 cm due to the pg hormones, it put too much pressure on my uterus and sent me into early labour at 21 weeks, and I lost my little boy. So after that, I basically I started to really look into them, and found out that most fibroids are harmless, even the bigger ones, if they don't alter the inside lining of your uterus. So women with bigger fibroids can still have a safe pg, except they deliver earlier at about 37 weeks. My case was quite unusual as the fibroid just went feral (where in most cases it just grows with the hormones but stays fairly dormant), I was just in the 1-2 % of people that had that worse case scenario. So basically, if you have even one tiny fibroid that is altering the lining inside your uterus, and the embryo happens to want to implant there, it won't. It's better to have it removed. You can have lots of tiny or average sized fibroids inside the wall of your uterus or towards the outer wall of your uterus, and they live there happily not intefearing with implantation. It's the ones that 'poke out' so to speak on the inside of the uterus lining that are the problematic ones. Hope that made sense! Get a second opinion at least hun, that way you can really be sure if the fibroid/s need to be removed. GL sweetie xox

I had read along those lines WAAAAY back when they first found it, I can't remember during which m/c is was but it was one of the early ones and I was ALWAYS told it probably wasn't the cause but yes it was in the lining. Which I thought would meant it changed the shape?

Stupid me has had a habit of throwing stuff out to avoid break downs when coming across stuff while looking for something else.... kicking myself now, might have to ring around some old Dr's and see if I can get some reports sent to the new DR.

It all boils down to the fact we either need to get serious and pull our fingers out, bite the bullet and start seeing the specialists or move on from TTC, I can't keep hoping its all going to fix itself I was just so scared of being told there's a problem but we can't fix it..living in ignorant bliss I guess.

Toomanyshoes - have you had your referral appointment?