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I was wondering if anyone has any expereince or information about this??
I have noticed lately that Felix has been sholding his breath while asleep, and as we co-sleep I shake him softly to get him started breathing again. I'm not sure if this is contected to his condition or it is something separate, but I was wondering if anyone knows anything about it?
I have a Paed appoint on Tuesday so I'll ask then..
I actually had a sleep study done a few years ago as they wanted to rule out sleep apnoea. I used to snore atrociously apparently (when I eventually got to sleep) but sound like I was gagging or something (I don't snore as much now, but I apparently do have my freight-train moments LOL).
I didn't have sleep apnoea, but was told I was a primary insomniac LOL.
I don't know a lot about sleep apnoea, but just thought I'd share that LOL.
Thanks Tootie, he is going in for a sleep study soon, due to his oxygen requirements..maybe they can put a apnoea monitor on him then and check?
Katanya found this info:
Thought you may already checked out some stuff, but thought it interesting. I don't know anything about sleep aponea, sorry. But I will let you know that Alana's CF paed also deals with sleep disorders. He is a respiratory and sleep medicine paed.:
What are the symptoms of sleep apnea?
The symptoms of sleep apnea are more likely to be noticed by the partner than by the person with sleep apnea. It is usually indicated by snoring and accompanied pauses in breathing which may last between 10 – 60 seconds. Each pause ends with a very deep gasping or snoring noise and a brief awakening as the person struggles to breathe. Mostly these brief arousals are not remembered, but some may remember waking with the sensation of choking.
Often the person with untreated sleep apnea wakes up feeling like they are hungover, possibly with a headache, a dry mouth and a sore throat. The daytime sleepiness that may result from poor quality sleep can give rise to difficulty in concentrating and functioning during the day, forgetfulness, irritability, anxiety, depression and other personality changes. It can also have dangerous consequences if you fall asleep or lose concentration while driving or using heavy machinery. Research has shown that people with sleep apnea are 2 – 5 times more likely to have a motor vehicle accident.
Other symptoms that can occur in untreated sleep apnea are impotence or reduced libido, high blood pressure, heart disease, stroke, excessive perspiration during sleep, increased frequency of urination at night and a dry mouth and sore throat upon awakening.
Who gets sleep apnea?
Sleep apnea can occur in people of all ages. It is most common, though, in middle aged males who are overweight, particularly with excessive fatty tissue around the neck. In people who are not overweight, it is likely that they have been born with a narrow airway or a facial structure which leads to a narrow airway. The incidence of sleep apnea in women increases after menopause. In childhood, apnea most commonly occurs as a result of enlarged tonsils or adenoids, or from some facial bone abnormality.
I reckon if he's going in for a sleep study, then that aspect will be looked into.
I was hooked up to a whole stack of stuff which was a bit uncomfortable (in that it made moving around a bit restrictive) but apart from that the whole experience was fine (felt a bit odd though knowing someone was watching me/monitoring me sleep!)
Thanks Lara that is great info
His previous sleep study was just a oxyometer..that records the amount of oxygen getting around the body, they just hook a wire onto his foot..he needed a print out for his home oxygen..this one will be the same except it will be to try to wean him from night oxygen..
I just wonder if perhaps there is more to his breathing than just his lungs, maybe this is another aspect..means more wires probably and probably that I can't co sleep him there..anyhow I'll try to time he stops breathing for..
Sorry I cant help you sweetie, but I just wanted to wish you luck for tuesday.
:grouphug: For you and Felix.xx
just wanted to post back about this and let everyone know that it is NORMAL for babies up to 2 years to have up to 10 seconds breathing breaks..why don't you TRY what 10 seconds feels like and tell me if you don't freak out too..I hvae been told that with all Felix's tests they should have picked it up an aponea of significance..but next time it happens' I am to time the aponea, and if it goes over 10 second, not to stimulate him until it goes over 20 seonds..and then call the paed..can you imagine waiting for 20 seconds..it is really really long to time not to breathe..the paed thinks because I am recording his breathing rates ATM I have just picked up on it..anyhow I learnt something new..
they can do a apnoea test with his oxygen sleep test, so i will talk to Dr farncis (felix's respiratory specialist too about it) in a few weeks time..
Wow, I had no idea that it was normal to have breathing breaks of that long!!! Gosh.......
Katanya
Emma had sleep apnea when she was younger! She used to hold her breath for up to a minute at a time!!! That was kinda freaky, I would check her before going to bed at night and stand at her door and whisper to her breathe, don't forget to breathe!!! She was a terrible snorer and she could be heard from the other end of the house without a monitor!!!! She also had a constantly runny nose and would always be rubbing her nose. I took her to the doctors about it and he ordered a nasal x-ray (normal x-ray) and gave use some nose spray and medicine to try. We went back a week later and were immediately sent to an ENT specialist ... Emma's adnoids were 3 times the size they should have been and she had enlarged tonsils too. We went and saw the ENT specialist and he booked us in for immediate surgery (still a 3 month wait) once he heard about Emma holding her breath for up to a minute and seeing her x-rays. She ahd her tonsils and adenoids removed (what a drama that was ... Emma is not good when she is sick!) and to this day we have had no more sleep apnea issues, including the snoring!!!!!!! She still snores occassionally, especially when she has a cold but it is much nicer to check her before bed and here her breathing normally and not waiting to make sure she is going to take her next breath!
Good luck with it all!
Cheers
OMG Kelly a minute..how scary!!! 10 seconds seems like an eternity to me!! I actually read an article in this month's coles baby on the exact issue, and it convinced me MORE to worry about it..I just believ in asking questions first now and I don't acre if I sound overeactive, because with his respiratory issues I waited so long..