Help with endo please

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August 9th, 2007, 09:44 PM
Mooky

Help with endo please

Hi All

I am new to this forum, and am very excited I have found this thread. I am hoping you lovely ladies can help me.

I am having a laparoscopy in approx 6 weeks time to investigate possible endometriosis. Hubby and I have been TTC for a while now and my Dr suspects I may have endo. I have done some research on the net regarding endo and feel up to speed with the implications, diagnosis etc but am just not sure about the symptoms.

Essentially what I am hoping you will be able to help me with is some more specifics on the symptoms you experience with endo. I know the lap wil reveal all, but 6 weeks is such a long time to wait and this is now the only thing I am thinking about!!!! Everything I have read seems fairly general in terms of symptons (in pelvic pain, pain during after sex etc, leg pain....etc), and I seem to be able to tick the list on quite a few symptoms. I also understand that different individuals are affected in different ways, depending on where it is located, how bad and general body makeup of the individual. But, its one thing to read all this generic stuff on the net, but another to hear the symptoms and pain described straight from the horses mouth.

I have actually been experiencing pain for approx 3 years now, but it has become significantly worse in the last 12-18 months, sometimes unbearable to the point of tears, and each time I have raised it with Dr, its been brushed off.....

Would appreciate you sharing the pain/symptoms you experience with endo and helping me put my mind at rest over the next 6 weeks. No detail is considered TMI, but please feel free to PM if you prefer (not sure if i have to click something to activate PMing?)
August 9th, 2007, 10:59 PM
dusty

Hi Mooky and welcome to BB

Firstly I hope you don't have endo, but I expect you are anticipating some answers when you get your lap. I know I did.

Unfortunately I can't help much regarding symptoms as I didn't have any except for infertility, but I was riddled with it.

I am a bit tired tonight and have to get some shut eye, but I wanted as a starter to point you to a few posts below this where gals have shared their stories including symptoms and outcomes. Also if you headed to the TTC threads and asked some general questions there you may get a quicker answer. There are also some older posts that may be useful.

Good luck with it all hun.

dusty
August 10th, 2007, 11:50 PM
YDI

Hey Mooky

I have had symptoms of endo since i was 17 (now 25) recently had surgery for it where i had a bowel re section. My symptoms included fatigue, VERY painful periods wher ei would be in agony 2-3 days before hand and barely able to move. I had intestinal endomteriosis so majority of my pain was severe stomach pain mostly after i ate and it would feel like sharp stabbing pains that would radiate to both sides of my stomach. i also had lots of leg pain and boday aches and cramps.

gas pain and bloating as well and alternating diarrhea and constipation were what i suffered from as well. i hope this helps a bit. feel free to PM me or email me if you like :)
August 11th, 2007, 10:13 AM
Astrolady

Hi There

For me the symptoms were very bad period pain, that was so bad I would often pass out especially during my teenage years, and painful intercourse. They were my only symptoms till I had a cyst twist upon itself causing severe pain, that led me on the path to getting diagnosed with Endo.

Love
August 18th, 2007, 09:14 AM
Mooky

Thanks for the replies ladies and the advice to post this in the TTC section. I got a couple of replies there also.

I am a first time user of this site, and was so excited to find a endo/pcos dedicated thread, but must say, have been disappointed with the lack of response (despite over 60 views). Not sure if its because i didnt outline my pain/symptoms enough (did this better in the other thread) or if its because i have posted into thread with close knit members. I know there is heaps of other info in this thread, but cant say i have all week to read through all the threads. I actually got heaps more replies from a general thread on another site in just one day, so apologies for the moan, but I don't think this forums for me. Goodbye.
August 18th, 2007, 05:17 PM
joel's girl

:

Thanks for the replies ladies and the advice to post this in the TTC section. I got a couple of replies there also.

I am a first time user of this site, and was so excited to find a endo/pcos dedicated thread, but must say, have been disappointed with the lack of response (despite over 60 views). Not sure if its because i didnt outline my pain/symptoms enough (did this better in the other thread) or if its because i have posted into thread with close knit members. I know there is heaps of other info in this thread, but cant say i have all week to read through all the threads. I actually got heaps more replies from a general thread on another site in just one day, so apologies for the moan, but I don't think this forums for me. Goodbye.

Sorry you feel this way Mooky. The information is here, and perhaps you would need to do a bit of reading of old posts but believe me it would be worth it. I for one don't get a chance to come on here very often due to the pain etc of endo and my troublesome pregnancy. Your post hasn't been on long either. There are wonderful resources on this site, I owe finding my solution (Dr Cooper of the ECCA) to this site and hope that you are able to find a solution that's right for you.

I wish you the very best.