Anyone using Haberman Special Needs Feeder Bottles?

If anyone is using Haberman Special Needs Feeder bottles (from Medela) - please let me know if you need any spare parts.

We won an auction on Ebay and have some spare collars, disks, membranes & bottles but no spare teats. We promised the woman we won them from that we wouldn't re-sell them for profit as she was giving a percentage of the profits to the American Cleft association.

We can't possibly use it all and we have not been able to find anywhere in Aus to buy spare parts so we thought that other parents may be finding it similarly difficult to get what they need.

I would ask that you pay for posting (cost only) but will not charge for the parts. Feel free to 'pay it forward' if this makes you uncomfortable! :lol:

Thats a gorgeous idea hon!!!:clap:

I dont use them, and were not using the old ones either now.... just to let you know, they have bought out a new cleft teat too.... and its just a teat!!!!! No valve, and we've put the teat on normal bottles and it works great!!! Took Kane a couple of times to use it properly, but its really good.

Maybe you could donate to your local hossy if noone in here needs them??? The only cleft bottle at our local hossy is FERAL, and we had 13 cleft bubbas one year :( ( I took my own in!!)

Hi There,

My baby is going to be using a haberman, she is 10 weeks old and is finally coming home on Monday after being in hospital since birth.

She has a cleft palate and a small jaw in which she had surgery last week to get her jaw lengthened and is still being feed by a tube until she is able feed completely by bottle. We are going to start trying in the next couple of days and the hospital has given me one haberman to start me off. I have been told it costs $40- plus to buy a complete bottle. The bottle they have given me however does have 2 teats.

If you do still have the parts it would be handy?

I will PM you if I can figure out how too.

Deanne.

Hello Deanna!

Congratulations on your little girl! Did you know before the birth about the cleft?

We've had no takers so far so plenty left to go around. How many were you after? LIke I said before, there's no teats, but Medela do sell the teats in a 3 pack but I don't know where from. You could ask your hospital if they can get them for you (that's what I'll be doing when I go there next week) as the only other places I've seen them for sale are overseas and it seems Medela have some sort of rule about posting their items internationally... seems silly if you ask me!

If you email me your details (address, how many, etc) to lewchips1@ozemail.com.au we can get something sorted for you.

I'd love to see a pic of your little girl if you have one to share - I bet you're excited to be getting her home after all this time!

My son also has a small jaw, but they're just letting it go for now to see how he develops. He will need surgery on the cleft in early 2009. Does Matilda have a cleft only of the palate or also of the lip/gum?

Look forward to hearing from you.

Regards

Toni (Nettie)

Can I slip and ask ladies, with the small jaw, do your little kidlets have Pierre Robin Sequence as well, or is it different to that?
Kanes jaw is fine, but 3 kids in our cleft group also have PRS and have small jaws.... just wondering how common PRS is with clefting....


With reguards to the teats, they are very thin rubber, and errode easily, so they are not supposed to ship overseas if possible, and are not allowed to sit on the shelf too long. I have to order our teats in sometimes!!:rolleyes: PITA!!! ;)

And welcome to our little cleft group MM!!! Glad to have you aboard. Good luck with your precious girl!!!:hug:

Yes, Jodie - Liam has Pierre Robin Sequence.

I thought you used some other bottle than Habermans?? Where to you order your teats from? I need some more and have no clue where to get them - so I'm going to ask the hospital (got our neo-natal follow up next week).

Also - you mentioned in your first post about new teats. Are these from Medela or someone else? Can you tell us here or if not - PM me. I'm interested ;)

Hope you & Kane are doing well - I see he's had a birthday! Well done little man!! Has he had his palate surgery yet? What's happening with him now?

Hi babe!! We dont use the habermans, we use a Cleft bottle and teat.

But the teats had a valve in them. Very annoying, but the bottle worked really well. They have bought out a new teat that has no valve, just a special shaped teat. And we love it!!

Its at the chemist, Chu Chu brand, for Special feeding, esp clefts. Our chemist doesn't even stock the other ones now, I checked today!! They order them for me if need to, and it takes just a couple of days.

Kane is going so well!!! He has his palate op in Oct/Nov, and there putting in gromits now too to help with his hearing. Also his surgeon is doing another lip repair to fix a small bit that sticks out a little. So he's having the 3 in 1, which saves him being knocked out 3 times... I'll post a new pic soon... hope all is well in your neck of the woods!!!:hug:

Hi There,

Toni, I have sent you an email in regards to the Haberman Parts - sorry it has taken me a while to get back to you, I have been busily preparing for Matilda to come home tomorrow.

I did not know of Matilda's cleft palate (she only has the palate) or small chin before the birth although they did look very hard for it in the ultrasounds as she has a chromosome deletion (which we knew about from an Amnio done at 16 weeks) and these two things can occur as part of the deletion.
Although the cleft and chin are the only things that seem to have occured. The deletion had a very large list of things that may have been wrong with her, so it was a big relief that these were the only things she was born with.

Yes, she does have PRS - I was given a pamplet which states that in Victoria alone there are approx. 10 babies born with this condition each year. Although in the hospital since we arrived there has been 4 babies (3 Boys and Matilda) with the condition and their birthdates are within 1 month of each other. Matilda is the only one so far that has required the jaw surgery - although 1 of the boys may need it done soon.

Better go and get some rest before the big day.

Deanne.