Miscarriage Investigation Program Sydney IVF

Hi

I have just suffered my second missed and UNEXPLAINED miscarriage. My first was estimated to be at 9 weeks. The second loss is estimated to have happened at 8 weeks. Both had healthy heartbeats and I took progesterone, just to be on the safe side, the second time around. I am 38 and have a DD, almost 3. Chromosones were normal for first bubba. Waiting on results for the second.

My OB is referring me to the Miscarriage Investigation Program with Sydney IVF. Was wondering if anyone out there can share their experience - did the program help, what was involved, has it lead to a successful next pregnancy?

Thanks - I really hope to hear from you!

WTH

Dear WTH

I am so sorry to hear of your losses. This pregnancy thing can be very frustrating!!!

I have had 3 miscarriages in a row and have had lots and lots of tests (though Repromed - fertility clinic in Adelaide), which I assume is similar to the place you will be going to.

Though it is so good to be armed with information, I know that the information others have given me regarding testing has been a big help.

The link I found most useful https://www.bellybelly.com.au/forums...formation.html has helped me to understand testing.

Hope this helps.
xxx Sue xxx

HI Syran - did they find anything? What additional info from others helped you.

DO SHARE!

Thanks!! ;)

Sorry I sent the response before I was finished.

See previous response for extra info.

No so far they havent found anything, except that my Chromosones (through blood test) have a small percentage of 45X (turners mosaic). Which the fertility clinic has done further testing on this (through skin biopsy - and still awaiting results) as I have none of the symptoms of turners mosiac (eg short, manly etc) and they dont think this is correct.

My hubby also had extensive testing (similar to mine) and nothing was found with him.

Other than that, I keep on going...... my 2nd miscarriage was also tested for chromosones and nothing was found.

Very frustrating as I feel like I am getting older and want to have my first child before it is too late.....

xxx Sue xxx

Thank you, syran. I have read over the link you recommended before and it was quite motivational for me to get this investigating underway. There has to be a reason this is happening.

Did they do an endometrial biopsy? Just wondering if that is standard. I am worried about that one as it may affect our TTC chances that cycle (we are keen to try again after first AF, but that is the cycle they will be testing).

DH and I have had a chromosones tested, and are waiting on the results of the most recent MC. Your turner's result is interesting. Did they recommend IVF with PGD (that may be the direction we take).

Cheers
WTH

I hope you don't mind me posting but I just wanted to recommend Dr Gavin Sacks from IVF Australia. He specialises in recurrent miscarriage and has an amazing success rate with women who've suffered many, many losses - google his name, I'm sure you'll find lots of info.

Hi Willow

Thanks for your recommendation. I have read a lot of positive comments on BB about Dr Sacks and am actually having an initial consultation with him next week. I am doubling up on opinions but this is the most important thing in my life and I will go to every length to get to the bottom of this while I am hopefully still fertile.

Has Dr Sacks helped you, Willow? Did he find anything?

WTH

Hi WTH - I have no info to offer but I just wanted to say that I am really happy that you are getting the help you need to fulfil your desire to have your baby. I followed your recent journey and was very disappointed and upset for you when you lost this little baby. I personally found that taking charge of things and getting a great dr etc really helped me with my grieving process. Take care and best of luck - keep in touch and let us know how you go. You have probably noticed that in the TTC after recurrent, late or stillbirth there are a couple of other women who have gone through similar recurrent early mcs like you - feel free to join us for a chat. :hug:

Thanks, Katiegirl. I am doing everything I can. My biggest fear is this is all happening too late. I would give anything to be in my early 30's again, I know women can have babies at my age, but I guess all these D&C's and first trimesters are taking a lot out of me.

My way of coping is to be proactive so that I don't regret that I could have done more, later on.

Thanks for the invite to the TTC thread. I am so glad this pregnancy is working out for you!

WTH x

WTH, I'm one of the people that Dr S has helped. He found that I have too many natural killer cells which caused my first miscarriage. We later found that I needed a lower dose of prednisone than he recommended because I also have problems with severe insulin resistance (PCOS) and the prednisone made it even worse. I'm just lucky that the lower dose seems to be enough for me. We stumbled across another possible problem with later investigations and aspirin was added to the arsenal.

For me, Dr S was brilliant and wonderful, but didn't necessarily discover the full problem. He was just too far away for us to be using as our FS. For me, we didn't get the full extent of the problem straight away (as I was using the medications anyway to treat other health problems they tended to hide things) or from one particular person, but I am a very strange and complicated case.

BW

Thank you, Butterfly warrior.

I was very interested in reading about your experience of Dr S. He comes so highly recommended on here I think I may be expecting too much from him. I am feeling so impatient right now.It is good to remind me he is only human and it may take a little time to get things sorted.

We have to travel 1.5 hours to see him so he will not replace my OB. I only hope I don't get myself into bother where my OB says one thing and he says another. Already my FS and OB have different ideas on what might be best for me, so I could be adding another spanner to the works. Oh well, they can fight over me ;)

Hi Where there's hope,

I wish you all the best in your journey. I will have my fingers crossed you get the answers you need.

I understand where you are coming from with different opinions, I have that with Metformin and whether to stay on it or off it, if I get pregnant.

It is so frustrating!!!!

Anyway come and join us in the forum of ttc after recurrent miscarriage, late loss and stillborn section, there is a great bunch of girls, who love to chat....

xxx Sue xxx

I hope you have success with this program. I know how hard it is to suffer losses when the clock is ticking. Just remember that it is still possible to have a successful pregnancy without assistance whilst waiting for investigations and/or treatment. Sometimes it just happens. It took 3 goes for me last year and even though at my age I only had a 5% chance of a successful pregnancy (age 42) I did succeed.

Hi Sue
Thanks for the invite. When I get back in the saddle I will certainly drop in for a chat and to share the support.

Satya - I have read some of your posts before and you have really given me hope. I am going through the WHY? WHY? WHY? stage at the moment and just won't let up until I have a better understanding. I am so happy that you got there in the end. You must be thrilled!

It was a two hour drive each way for us to see Dr S. For us it was a matter of finding all the pieces of the jigsaw puzzle. And I've never been in the situation where I've followed the advice of one doctor, it's normal for me to be under the care of two different specialists, my GP and the acupuncture lady I see tries to help me put the whole lot together to get a better idea of what the bigger picture is.

I hope my situation turns out to be rather different to yours and it's a matter of one simple solution. But when you are juggling a mysterious rheumatoid arthritis condition, severe PCOS, possible immune problems and possible clotting problems... which are all quite likely to be related to each other... it's damned hard work! Acupuncture lady believes there's an immune problem at the root of it all, but my body is freaking out and over-responding to everything. Blood tests may indicate a very slight problem, but my body acts as though there's a major problem.

I honestly believe we would never have found our way to the other pieces of the jigsaw puzzle without Dr S setting us on the right path. But yes, it is important to realise that everyone is different and a one-size-fits-all solution isn't going to work for everyone. Take the advice of the doctors, do your own research and go with what your gut tells you is the right thing to do.

BW