Pituitary Adenoma - Gonadotroph

Has anyone been diagnosed with a pituitary adenoma, and if so, are you able to share your story as to what you may have done in terms of treatment.

Basically I have been TTC for over 2 years now and diagnosed as having a Gondotropin Adenoma last Friday (a benign tumor attached to my pituary gland) and it is responsible for secreting LH. This has been the underlying cause for my amenorrhea and not being able to conceive.

Basically the OB has given me a couple choices, either to try IUI or IVF which he believes the chances of either working in my instance are slim, or have the adenoma removed. If anyone else has had an adenoma before and had it removed I would love to hear from you and if you experienced any side effects? Or, if anyone has any natural alternatives that are effective and quick working I would love to hear from you too??

Hi Janet, I am sorry I can't help you, but just wanted to wish you luck in your search for answers. Hugs

Hi,

I'm not sure if I can be of much help but thought I would share what I know.

A friend of mine had a pituitary tumour and couldn't conceive but I think it may have been a different type, hers was making her produce too much prolactin (the breastfeeding hormone) so she didn't get periods and therefore couldn't conceive. She was prescribed bromocriptine which slowly lowers the prolactin level and eventually she must have ovluated while on the drug as she managed to have one period and three babies in 7 years!

My husband also has a pituitary tumour called agromegaly which makes him produce too much growth hormone. Again, this is a benign tumour but it causes a lot of changes to the body, some of which are very extreme. He has had the surgery to remove the tumour. They remove it through the nose. He saw an endocrinologist (so did my friend) as they are specialists in hormones. If I were you, I would make an appointment with a recommended endocrinologist as they are the drs who handle this type of situation and should know a lot more about it than your OB. Hopefully it is something that can either be removed or treated with meds and then you can go on and have a gorgeous little bub!

I hope this has been of some help. Let me know how you go, I will be thinking of you :hug:

Bun xx