Jessalyn's Health Issues #3

Thinking of you & wishing Jessalyn all the best.

Take care.

Didn't get a notification for the updated info last time, Grrr I hate that.

Shannon- sorry you guys miss out on the trip, that's a bummer, but I guess it is important to do everything at the optimal time for Jessalyns sake. It is good that things are going so well though!

Best wishes Michelle

Sorry to hear that things aren't going to go quite as you had been expecting, but there a couple of great positives in there to enjoy. One is her own liver :cheer: & the other is no colostomy bag at Christmas. I'm sure things will be happening before you know it & all will be well.

Big hugs to you all :hug:

Shannon that's great news about the continued progress of Jess' liver function. I can totally understand the tinge of disappointment at the op being put back. I think we brace ourselves for "X" to happen on a certain date... we sort of think, "when that's over then this can begin" and we see it as being a step closer to the end (of the struggle).

I hope your overseas trip can be postponed.... that would be good.

Bummer about everything being put back, Shannon. It must be so hard to get psyched up about something only to have it all changed again. It's a pity that you guys may not be able to go to America anymore. Yay for Jessalyn's liver going so well tho!!

I only just saw this post. I'm sorry to hear about Jessalyn's problems. How is she going now?

That's great to hear she's doing really well! I wish you both the best of luck for the future.

Glad to hear Jess's reflux is under control, poor little mite.

Oh wow Shannon that is fantastic news, those times in between the medical madness and you get to have a "normal" baby again are so precious, I am so happy for Jess and you that you've been getting the good outcomes from it all!!!

IKYWM about the doctor appointments, we seem to see 1 doctor or specialist every week or fortnight, it just seeems crazy even when he is doing fine..of course I am happy to have them monitoring Felix progress but it's time spent doing that stuff that takes away from other things you could be doing..

Just wondering if you knew about the Carer's allowance? it isn't means tested and is tax free? Jess would be eligable as she has a long term condition? I'm not sure if I mentioned this or not to you before???

:hugs: to you both!

I know it's a nice little bonus isn't it! I only wanted the HCC to pay for his oxygen and they said "Oh you are eligiable for the payment and back dated to when he was born" we got it when he was 11.5 month old..so you can imagine how welcome that backpayment was! The HCC is great, of course only for him, not us as we don't meet the criteria for low income with us both working..it was a bit of drama getting the paperwork done, but well worth it!

LOL now you can buy those MOE inserts !!!

Sounds great Shannon. I'm so pleased Jess's liver is doing well. Must be such a relief. :D

That's great news! So glad she is doing well.

That is fantastic news Shannon! I'm so pleased to hear that her liver operation has been a big success! :D

That's great news, Shannon!

When does Jess have to go for the u/s on her hips?

That is great news Shannon.

Let me add my congratulations, too! Well done Jessalyn... she's got the liver under control at the moment, so now for those chubby-bubby thighs. Come on Jess, you can do it.... I'm sure I could supply a picture of me in togs if that will provide inspirtation 8-[ :-#

Oh Yay! What wonderful news, I am so very happy :D

Hugs and smooches to Jess

Glad that the news is all good with Jessalyn's liver. Now for the chubba bubba to get happening!

So good to have such positive news Shannon, hugs to you all and esp to Jess. May the weight stack on!LOL

cheers michelle

That's great news Shannon. Hug that beautiful brave girl for me and then I'll get a real go on Thursday.xx

(Not you though, I'll try to remember you don't like the hugs, it'll be hard though coz of the admiration I have for you sweety,you are just an amazingly ,insiprational woman and so very strong). So you may just have to deal with 1 hug, though Im sure Im not the only person who thinks of you in htis way.xx O:)

Great news Shannon \:D/

Shannon - You`ve been in my thoughts for days while you`ve been mia from BB and I had a strong feeling it may have been because of Jessalyn.

Glad to hear that you`ll be coming home tomorrow and that Jessalyn is fine, thinking of you all :grouphug:

Take Care

Deeanne

Great to hear that Jess is okay now Shannon!

That must have been a bit of a heart-stopper for you at first! Glad to hear she's ok. Hope you caught up on some magazine reading while you had the time :D

Hi Shannon

Glad to hear you should be home soon. What a bugger, especially since things have been going along so well. I hope that the blood work comes back all clear. I can imagine it is pretty annoying being stuck in hospital esp when Jess is ok, but better to be safe...

Thinking of you all
Michelle

Oh Shannon I hear you with the boring time spent with a well child! It is hell!!! God what a nightmare for you!

Felix spent 4 extra days (after 5 days sick) in the RCH waiting for his home oxygen approval (well actually his HCC so he could get his Home oxygen) and I thought I'd go mad..

Hope you are sleeping better now your both home!

I've been thinking of you Shannon. Hope she recovers well enough to come home today [-o<

Hi Shannon

Are you guys home yet? How's Jess doing now? There hasn't been any adverse effects from the infection on her liver has there? It hasn't set her back any has it?

Hope all is well now :D Take care and remember we are all here

I hope Jess is doing well now. Poor thing. I hope you were able to come home today. Thinking of you both.

Sending hugs your way & I hope that Jessalyn is continuing to improve & that she comes home like planned.

So glad to hear Jess's liver is good. That's excellent news!

So pleased to hear things are going well with Jess.
That is excellent news about her liver :)

That is terrific news about Jessalyn's liver results, you guys must be stoked. Hope that her recovery continues on such a good trend.

=D> YAY fantastic news about her liver results!!

Shannon that`s wonderful news about Jessalyn`s liver \:D/

Shannon... could hear the excitement in your post and could just about see the grin on your face as you typed those words.

Thanks for letting us share this journey as it happens. Miracles are inspiring to watch.

Well done Jess =D>

So pleased to hear things are going well with Jess.
That is excellent news about her liver ,boy she's a survivor WTG Jess.
kisses and hugs to you both!! O:)

Ooohhhh YAY!!!!! :cheer: I"m so happy for you guys that's such wonderful news :D

YAY Shannon, that is such wonderful news about Jessalyn's liver results!!!! \:D/

Oh Shannon that is such marvellous amazing wonderful news, calls for a celebration! Lets hope things stay on that track then.

Best wishes michelle