Itchy eczema allergic toddler - not settling after 6 months. Ideas? (long)
So my DS was a very VERY itchy baby, diagnosed with exczema at 8 weeks and has never stopped having it to some degree. He spent his first 6 months wearing mittens/socks on his hands cos he would just scratch himself to pieces. At 10 months he was diagnosed with allergies to egg and treenuts (he'd never been given them directly, only exposure was through BM). Once I changed my diet, the itching and the eczema settled BRILLIANTLY. He also drank better and "snuffled" less.
Then last Sep (just before his 3rd B'day) he started repeatedly waking at night, scratching, crying, very distressed. (and this is a kid who was always a cruisy happy sleeper - EVEN as an itchy baby!) We saw the GP, we moved up our annual skin pr ick test, and we ended up having to put him on Zyrtec around the clock. The allergy paed that we said advised us that there were no new allergies (very uncommon to get them apparently) and that sometimes something just sets them off, keep him on Zyrtec 24/7 for 3-6 months until it had settled. We also had been using phenergan AS WELL when needed (bathing a toddler at 1am who is howlingly itchy just really doesn't get my rocks off for some odd reason). He also commented that the eczema was well controlled.
Last month I was STILL having trouble with him waking/crying/scratching - 5 mths down the track. Finally a BIG penny dropped and I realised how many of MY skincare products contained either macadamia oil, almond oil or shea butter (also a treenut). None of his did, but quite a lot of mine did... and they list them with the latin names, so you have to go googling to even find out it out!! :wall: so annoying given we'd had NO medico of any sort ever suggest to watch out for it, and I really don't understand how even baby and toddler products can include them but don't have to declare it! (anyway that's a separate rant from me!). So I've removed everything (yes that seems to include my lipstick - boo), and we've definitely had improvement. Yay. No more phenergan required, we just continued the zyrtec.
So this month, I've been trying to drop the zyrtec. But almost every attempt and suddenly I have a boy waking at night, scratching and crying. I made it to 4 days zyrtec-free last week. But then he woke 7 nights in a row. We're at the stage that we can try a food challenge with egg.... but of course I can't do it while he's on the zyrtec.
I went to my GP today who has her own very itchy boy and we're off to see a paediatric dermatologist on Mon (waiting list was till June, but got in on a cancellation WOOT!). This guy is apparently very good with allergies & digestive stuff too. My doc agreed that my normal allergist probably isn't going to have any further insight. As for me, well i think sometimes Dr Mum's solve more than Dr $$$'s do, so I'm trying to put on my thinking cap. Historically, this itching is just like what he had as a baby - which suggests to me the same culprits. It could be a food he's having is contaminated - as we do eat some commercial food and virtually everything says "may contain traces blah blah blah". I do try to cook a lot at home however as we have multiple food restrictions in the household.
Also, DH and I DO actually eat eggs and nuts ourselves (and tbh with my limitations from a nutritional perspective I really shouldn't be avoiding them)... but I've rearranged the pantry, we try to eat them at night when he's in bed, wash face, hands, clean teeth etc afterwards. Surely he couldn't be that sensitive that having them in the house would set him of? Could he be?
The other option is it's a sensitivity and not an allergy per se. So he's just a sensitive flower and I should cut some other common irritants from his diet and see what happens. Meh. Really not keen. Plus he's fed at FDC two days a week which makes it hard to control his diet. (And really I shouldn't get started, but i have restrictions, DH has restrictions and we're currently trialling DH on a diet for his vertigo... I don't think I can handle more diets honestly).
There's another thing, maybe it's the FDC food? So saying I think she's even more paranoid than i am - she won't give him foods that say "may contain traces" whereas I do!
Or i look for other sources of irritation - washing powder, chemical cleaners etc... I could change all that kinda stuff (which I haven't changed recently - and my DH rudely said I don't clean enough for it to be the cleaning solutions bwahahaha cheeky git), but honestly to me it seems more consistent with somethign that's going in him IYKWIM not outside him. I know that sounds silly when he's itching, but he has particularly itchy zones. Around the eyes, and back of the head in particular. Knees and legs cos he often has access (summer shorts).
Oh and my GP thinks in both our boys' case it is the eczema - but we're both told it's mild eczema, but we both have insanely itchy boys.
Anyway, that's my rant & rave. Love to hear any other ideas. Are other kids with "mild" eczema this itchy?
TIA for reading :)
Itchy eczema allergic toddler - not settling after 6 months. Ideas? (long)
I'm having "fun" with a 2 3/4 yr old whose itching is driving me insane as well. He's scratched raw elbows, behind knees and ankles. We've seen an pediatric allergist (sesame - mid reaction, egg white and dairy - very mild reaction) and that temporarily cleared it up along with a steroid cream. Eczema came back last Oct and hasn't gone so got a referral earlier this year to a dermatologist, several blood tests later and we're about to start a third type of steroid cream and be referred to a dietician, I'm kind of over it all. When we first saw the dermatologist we were told to put ds on a restricted diet without some things being explained why they were on the list but not others (eg ice cream was not allowed but other dairy products were) and to use a stronger steroid cream than we had been. The diet was supposed to last for a month as it was supposed to clear up DS's skin and then we'd be allowed to reintroduce foods back on slowly. Well ds skin didn't clear up totally in the 3 weeks we did it (including at CC) when we went back to see dermatologist but she said we could reintroduce foods again and it's gotten worse even with dropping back foods. DS ends up going around with crepe bandage on both elbows to stop him scratching at night - refreshed daily. Band-Aids are leaving welts on his skin if we try to cover the worst bits:wall:. His legs are now starting up as well - came home today from CC with crepe bandage tied around both ankles because he scratched so much that they were bleeding.
I soooo get you on the scratching thing. If ds could just leave it alone for 2-3 days it'd nearly be healed!
I've tried the eczema moo goo cream (nut oil based); tried hemp cream/oil from the body shop; tried sorbelene cream (ds has screamed when putting this on and we've tried different brands); tried other moisturizers.
Currently also trying a natural based moisturizing cream called mums secret - started that last night - friend recommended that - can send link to info on that one if you like in a pm later. That one at least smells nice and feels nice rubbing it in. Can't remember all the ingredients of that one but I know it's not nut based at all as I checked thinking I might send it to CC for them to put on during the day.
I would have tried the third steroid cream (this one also has an anti-fungal cream in it) but I only collected it from the hospital pharmacy this evening while DH was getting DS ready for bed & I was on my way out for tea. We'll start that one in the morning.
Apparently the dermatologist is referring us onto a dietician in a couple of weeks to see if we can work out if it's diet related.
I've ordered a new mattress for DS in case it's dust mites or something in the mattress- he has a second hand mattress on his bed - asked DH to sort that out and I was still waiting 2 weeks later so gave up and sorted that out today. Also need to work on washing his sheets more often :redface: as I'm not good at changing his sheets - old bendy mattress doesn't make sheet changing easy in the third trimester of pg and DH doesn't think to do it :rolleyes:
Itchy eczema allergic toddler - not settling after 6 months. Ideas? (long)
I found a vac packed single mattress for about $200 delivered on the oo .com (I think its .au too) site. It's supposed to help with allergies and only take 1-2 business days to deliver and about a day to reach normal size again. Hoping it's here by Tuesday (monday would be great) so ds can be in it by Wednesday night. Might mean its easier to change sheets too :crossfingers:
Itchy eczema allergic toddler - not settling after 6 months. Ideas? (long)
I've used the regular and sensitive bandaids (& not just the bandaud brand) and had reactions to both and paper tape when using that to hold non stick dressings over the latest raw patch.
Thanks for that insight pholi it helps to understand a but but it's just so frustrating watching it. I think what ds currently is reacting to is more like a fungal infection as its not presenting like his usual appearance of eczema. Rolled up our carpet mat in the lounge tonight and swept the floorboards under that - hoping that helps too.
Seriously starting to think I need to find out about wet wrapping too.