Just need a little support..

Hi, I havnt been on here in ages - life is very busy - but as some of you may remember my little girl had a lump on her anterior fontenelle found at 19weeks she was born perfectly fine. the lump has grown now to a size of about 3cm by 2 cm its quite big, it is right about a main artery that lies between the 2 brain halfs and if they hit that vein we are in trouble...

well we are finally at the removal stage and although it will hopefully be a easy removal they dont know until they open her head up. she has a neuro surgeon and a cranio facial plastic surgeon doing the op (22nd Jan) they are probably going to do a huge incision that pretty much goes half way around her head then they will lift the skin and re position it. this they say will be a better scar long term for her. so ok we are pretty much trusting that they know what they are doing and what ever they think is best. she will need to wear a hat outside for 1 year and it will take 2 years to heal.

Now my problem. I am so scared she will die. I keep like playing out scenes in my head of telling her brother shes not here any more, and i keep playing out the sscene when they come out and tell us she didnt make it. Am I crazy or have anyone else been through this type of thing ... did you do this - i am so scared that i am forseeing what will happen... or am i just trying to prepare myself for the worst.

TIA
Meegm
:pray:

Hi Meegm
You are not foreseeing what will happen. You are reacting normally to something scary that is going to happen to your little one. Prior to becoming an Independent Midwife I spent many years working in hospitals. The thoughts and feelings you are having are very common. Your surgeons know what they are doing, trust them. They will do the best that they can for your little lady.

Oh hun massive :hug: to you and your little girl. I will be praying that the surgery will go well.

Regards,
Dianne

:yeahthat: What Alan said!
:hug: Oh hun what an waful situation your in! I am sending you and your family lots of love and light for your precious babys operation :hug: Be postive and I am sure she will be in safe hands and have angels watching over her xxx

:hug: :hug: :hug:
It's only natural to be scared, but I'm sure as Alan says the doctors will do an awesome job. Will be thinking of you and :pray: for you and your little girl on the day. Make sure you pop back in any time you need to xx

Huge hugs hun!!

I trust you DD is in safe hands, that being said i would also be scared about the outcome - it's natural, your her mumma and love her to bits!

Try to think as positive as possible and focus on the best outcome imaginable. What we believe we create.

:hug:

meeegm - thinking of you, your family and your special little one at this difficult time
xox

Will be thinking of you and praying everything goes ok for your little princess. It's perfectly natural to be scared and thinking of the worst case scenario, it's only human. If you are really worried do you think it would help to sit down and have a chat with her surgeons? No doubt they would deal with this all the time and may be able to provide you with some information to help put your mind at ease. Knowledge is power, and if you have everything laid out in black and white it might help you to deal with what your little one has to go through?

You know we are all here whenever you need us! xxx

:hug:

We are here to support you through this

Oh honey. My heart goes out to you and your family. I totally agree with Alan. You are reacting perfectly normally. Do trust in the medical team - they will do right by your daughter. I will keep you in my thoughts. Please come back and let us know how she goes.

I am praying that everything will be alright. Is there a counsellor you can talk to about your feelings?

Thinking of you, your DD and your family and sending you love, warmth and support. :goodluck: :hug:

My friend's DD had a brain tumour which had to be removed (a major op) and she went through the same feelings as you. Its fear of the unnknown and very normal. We are all here for you.
BTW friend's DD came through it fine and just has a scar under her hair.

Oh sweetheart, no wonder you are worried! :hug:

Will be thinking of you all.

thinking and praying for you, your DD & your family

:hug:

It is so natural to feel the way you do :hug:. I can't imagine how you must be feeling right now. Please know that the surgeons have your DD's safety as their utmost concern, I'm sure she is in very safe hands.

I will be thinking of you, your DD and your family and praying for you all :hug:.

:

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Oh hun massive :hug: to you and your little girl. I will be praying that the surgery will go well.

Regards,
Dianne

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Yes so will I.

I just wanted to wish your little one well for her operation. Will be thinking of you and your family.
Your reaction is totally normal and anyone in your situation would be doing the same. xo

Hugs hun. I'll be praying for you and your little princess.

Oh what a terrible situation to be in. No wonder you are so concerned - it would be terribly scary. I can't imagine what you are going through. Keep the faith and trust the medical team will do the best by your precious girl. We will keep you and your family in our thoughts and prayers, praying for her to come through her operation safely and have a speedy recovery.
I think the thoughts you are having are completely normal in your situation :hug:

My DD has had two anaesthetics in the past few months and one procedure. They weren't as full on procedure wise, but still scary.

I work as a vet nurse and see surgery's and handle anaesthetics daily, and I was still scared. I had bad dreams prior to the procedure the last time, and we had an incident at work with a similar procedure which did not end well.

I felt awful being so scared for her life. I wouldn't share with DH either because he was more scared of the unknown than I was. So I tried to carry the burden alone.

They do have people at the hospital who are trained in helping you through this emotionally as well. Use them, they are more experienced with what you are going through than you are and can help alleviate your fears. :hug:

It is perfectly natural to be so scared! My DH was very sick and for months I was terrified he was going to die. It was a constant state of anxiety so I really feel for you because it must be 10 fold with your own child. I will be praying for your little one. Remember to take care of yourself too. Big hugs.

You are not foreseeing what is going to happen. This is your brains way of working through the fear.

I will be praying for your little girl and for you. :hug:

:hug: Sending lots of positive vibes your way :hug:

Thank you all for your encouriging words.

Christy - im not sharing with DF either he stresses way more than me and so i am trying to do the same not make the sitch any worse. he doesnt handle these sorts of things well - i dont either but somehow i cope better...

actually im not sharing with any one only you lots HA....

the doctors are great they are keeping us well informed... i could not ask for better especially in the public system.. we have seen the top suregons in SA we are in great hands...

im still scared ..
Thank you again. X ill let you know how we go.