another fork in the road

So we had our Pead's appointment today.

Good first....He was ESTATIC :leap: that M's legs have straighted to normal as he put it. He said it must of taken alot of work ect and because of it M wont need to have shunts put in his hips :dance: :leap: can you tell im over the moon about it :D

bad news...we need speach therapy, and an OT. M would be lucky to say 5 words. He is highly intellegant dont get me wrong, he looks when you call him and he can follow 'commands' but he is unable to 'answer' and there is a defent block. He screams when he wants to be verbal an the words he does say are

Dinosaur
WOW
Mama
Ball
yay

I admit it..I do get alittle upset when I hear how well our baby buddies are talking but I have to remember my little man has brain damage still to what degree we still dont know :(

OT is for his 2 dimension seeing. eg doc puled out a puzzle that had a small and a large circle. Put out the cirlce cut outs and M put them promptly back into were they belonged, now take them circles back out and turn the puzzle around the other way and he still tries to put the circles in were he 'thinks's they should go the first time IYKWIM, He is also very unco and stumbles alot. He can open things and gets very frustrated and throws the item then.

I voiced our concern to the pead that we are worried that he may be excessively hypo...he hits, punches, screams, kicks and when you ask him to stop he continuous to do it laughing.

Thats it we've hit another fork in the road.....its a little depressing because all my boys now have had some form of speech therapy but I can so see the positive in what we're about to enbark on. I am also very happy to be doing it now, as I dont want to be doing all these 'things' and therapies when he's at kinder or at school. Its hard to do then and so much easier to get him into good habits now whilst he's so young.

Thanks for reading :) keep smiling and remember while you think your doing it hard...there is always someone in the world worse off then you :hug:

:hug: maz at least u have a little bit of good news and with this help he'll get better xoxox

Ccan I just give you some credit Maz and a :hug:

As a teacher i see a lot of children who do not get the help that they need and a lot of parents that refuse to have someone even mention the possibility that their child might need some sort of extra support.

What ends up happening is that those children suffer (mainly due to their parents pride) and it doesnt get anyone anywhere.

You are being a fantastic mum and getting support for your kids, to help them do the best that they can. You are being so proactive and giving him the best start. :hug:

That is great news about M's legs as well.

:comfort: Awww hun....

I wish I could draw a big hug here.... Like THIS big...

You are such an awesome Mum... :clap:

Great news about M's legs!!!!!

At least with speech you are getting help early so with any luck will be an easier journey as it was picked up early.

Hugs You are a great mummy.

xoxo

That's great news M won't need shunts and having OT now. You are an amazingly strong woman :hug:.

Regards,
Dianne

:hug: Maz - some great news, and some not-so good news there.

Keep pluggin Maz, you are an amazing woman and an amazing mum! And Tank is making such awesome progress :hug:

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keep smiling and remember while you think your doing it hard...there is always someone in the world worse off then you :hug:

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I don't want to creep you out or anything :redface: but I think about you all the time when I am having a 'moment'...
...you really are inspiring

:dance: woohoo about M's legs....

:comfort: about the OT but like others have said by getting in early has to be a good thing for M

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I don't want to creep you out or anything :redface: but I think about you all the time when I am having a 'moment'...
...you really are inspiring

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Me too!!!! :P

:hug: Deep breath Mazzy... I'm so happy he doesn't need shunts!!!! I'll keep :pray: for my special kids over there.

:o you guys think of ME as inspiring..:redface:

nah ya all crazy :ROFL:

thanks everyone for your support.....Im really not that overly upset about it to be honest..more releaved to be getting soemthing done. It does hurt though..and ive said it before when I hear of kids his age doing wonderful 'normal' things but it goes part and parcel with having a special need's kid dont it :( ...... and life wasnt ment to be easy :D now im gonna go eat some pie hahahah

:hug:

Great news Maz - you are an awesome Mummy ! :clap:

xoxo

Maz, You are an inspiration. And well done for helping M get to this point so well. We know that you are a big part of why is he doing so well. I hope that assistance you are going to get now will help him further. xo

That's great news on M's legs! I'm sure with some extra help he will progress just as well with his speech. And yes, you ARE inspirational Maz :hug:

You are doing a fantastic job, Maz!!

Fantastic news about Ms progress especially his legs. I know how much work you have done to get this far. :leap:
Don't be to concerned about his speech as R who is Vs age was still not talking much at Christmas, DD1 had an appointment with the speech therapist a few weeks ago and it's all starting to come together. She wasn't too concerned as she said some boys take longer than others.
He is also a very switch on child. :)

maz you really are a wonderful woman and mummy. theres always someone worse off is so true. im so glad that M's legs are ok and i hope the ST helps. xox

Maz that's awesome news about Tanks' legs!!! :happyforyou:

The Speech is fixable :) It can be worked on and improved!! And as you said you know it's all in there but he struggles to get it out :)

What did the paed say when you voiced about him being hypo? My first thought was maybe it's from his frustration of not being able to communicate?? Maybe this will improve as his speech improves?

Oh and anyways hun....he's in those terrible tanty two's..... ;)

xxx

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:o you guys think of ME as inspiring..:redface:

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Another crazy one here!

Speech therapy is nothing, you've done so well!
I have a hitter, kicker, biter, pincher & screamer here too. He also thinks its hilarious! Bloody boys! :rolleyes:

Thought I'd pop in and give you one of these !:hug:

Maz you are an inspiration, you are such a wonderful mum, i am sure you are appreciated more than you will ever know!

:hug: Maz I can definitely see how others see you as inspiring- you are an amazing Mum and you do such an amazing job. Your kids are so lucky to have a mum like you.

Maz- You have so much strength and determination - really is inspiring .... hey I think that I am falling apart with dd who just wont sleep at night and a super active ds -

I have nothing to complain about :redface: xxxx

Maz you are wonderful. Such amazing and happy news about M's legs. What a little trooper. He is so lucky to have his family and his mumma caring about him so much. Like you said, it's great that it's happening now rather than later. It might not make you feel any better, but there are lots of kids who aren't special needs kids who need speech therapy too. You must be so proud of everything he's achieved and the look on the paeds face must have been priceless. Big hugs to u maz xxxx

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:o you guys think of ME as inspiring..:redface:

nah ya all crazy :ROFL:

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We're not crazy... and yes - you ARE inspiring. If I'm having 'hard' day - I think of you and the goalposts move. Then I know that things aren't as bad as they seemed at first.

Not that you have an awful life or anything - but your 'bad' days are so completely unimaginable to me that it shifts my thinking.

We love you and you DO inspire us. Deal with it woman! :rofl:

M is an absolute champion. What number 'stick that medical profession' is this? You my dear Maz are the dictionary definition of INCREDIBLE. You know I luffs ya and I am dying to have enough $$ to meet you IRL.

Awwww Maz, I tried to post earlier today but it dropped out on me, but I do find you inspirational my sweet. :hug:

I'm so glad he doesn't need splints in his legs, and I know the speech thing is frustrating.... but you will get there and if speech is all he needs to work on, then woo hoo!!!

I went to speech today and was thinking how much better off we were than the family before us, whose 10 year old had 15 words. She was so frustrated, and he mother was asleep in the waiting room when we arrived... talk about exhausted. I thought, "geez, who am I to complain?" So I get you.

:hug: you can still inspire those around you.