VENT!!!

I need to get this out!
Argh why does it take so long to get a diagnosis!
ive had to take so many sick days from work my boss is really putting the pressure on and i feel my job is on the line but its taking forever to figure out whats wrong with me im so exhausted, dizzy, short of breath etc...
Ive just had to recover from 3 years of Postnatal depression then i get hit with Uterine, bowel and bladder prolapses and then find out i have Ehlers Danlos/ Joint hypermobility sydrome were slowly getting closer and might be chronic fatigue syndrome but i have an echocardiogram tomorrow to rule out heart problems
Honestly i feel like im just hanging in there and it annoys me that i feel like im failing my family and work

Couldn't read and not respond… That sounds really tough and frustrating :( I hope you have some answers soon.

Thanks

That just sucks JB. Really sucks.
Big hugs honey xx

Thanks off to heart dr today to double check there's nothing wrong

How did you go JB?

I'll get results on Monday I ended up dropping the kids and off to my appointment before coming home and sleeping 2.5hrs before my exam I was absolutely wrecked

Hope everything is okay xoxo

Feeling really breathless today I can't do anything except lie down

And it seems I have a stomach bug just can't seem to catch a break

How are you now? Did you get any news yesterday?

im better today just the normal exhaustion and breathlessness poor DH has the bug now now im struggling to care for him and the kids, I had to cancel my Dr app yesterday i couldnt even sit up lucky my inlaws could look after the kids for half a day, i have a uni exam tomorrow morning (which ive barely studied for) and the kids will be at daycare so i can rest.Then thurs morn ill have a 24hr holter monitor fitted but im not really expecting any abnormal results from hear studies its just to rule out.
I feel like im going crazy i feel sick all the time but all the tests are negative and by all medical standards so far im normal so thers no explanation

There has to be an explanation for your breathlessness? Did you have the results from the ultrasound? Have you had respiratory function tests? It must be so awful to be feeling so unwell with no explanation, maybe see someone else for a second opinion? :dunno:, hugs.

I saw another dr and as soon as i saw him i knew he would be no help he started arguing with me as if i was an idiot and said there was nothing wrong and he was so rude!
Im not stupid I have an advanced diploma in Pathology and have been working in a hospital lab for 6 years and studying my registered nursing

one thing we have drummed into us in nursing is if a person is in pain only the patient can say how much pain their in you cant assume they arent in pain but here everyone is assuming im fine just because my vitals are normal, they keep blaming it on me being a tired mother
i really need to leave work to rest and recover but i cant without some way to survive financially centrelik would just cut short for us.

I know that feeling when you know straight away that a doctor is going to be no help and you might as well have set fire to 60 bucks :(

I was wondering about your echocardiogram results and how the right side pressures were.... thinking pulmonary hypertension or embolus, but I guess they have ruled that out. I wonder if you could ask to be referred to a specialist i.e cardiologist? I have looked after patients with heart disease who present with similar symptoms, especially women who have been fobbed off for some time prior to hospital admission. I don't mean to alarm you, but you know something is not right. I'd keep pushing for answers x

Im guessing if there was anything abnormal in the echocardiogrami would have had a phone call from my dr to come in by now im thought it might be more related to Ehlers Danlos I was wondering if a rhemuatologist might be able to rule that out at least

Feeling any better?

I don't know Ehlers Danlos?? But if you think the shoe fits, maybe get a referral to rheumatologist....

Hope things are looking up :)

Hugs. Just wanted to let you know I've gone through a very similar journey and really understand your struggle though thankfully I got sick as a child so didn't have to worry about work and looking after the kids.
I had unexplained arrhythmias chest pain dizziness and exhaustion for about 10 years before they finally worked out the correct diagnosis which for me was postural orthostatic tachycardia syndrome. Turned out it was only discovered shortly before I was diagnosed and it's only recently they've worked out any treatments that help. I saw so many doctors and had so many tests. Many doctors decided I was making it all up or that I was nuts because they couldn't see what the problem was. Almost all of them just gave up.
I really hope you get a good diagnosis soon and they can treat you! Best wishes
You may want to look into dysautonomia. What I have is one kind and I think ehlers danlos is connected with dysautonomia so maybe it will help with finding the right tests.

Hugs honey. I read an article on HEDS yesterday. Google MTHFRheds. Also have you been tested for MTHFR?