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Hi Girls,
I know this is forum topic is meant to be endo, but from my research they seem to be closely linked.
So I was wondering if anyone knew about treatment for vag using botox? I am constantly coming up against a brick wall in more ways than one!
I am rather anxious to find info on this and treatment preferably in aus.
Hey there welcome to BB! Can't say that I've heard of botox being used in that way. What does the procedure involve? Have you heard of anyone having it done with any success?
Goodluck with your search!
*hugs*
Cailin
Hi cailin,
yes i have heard of it, it is becoming quite well known. And yes, can be very successful. In all of the trials I have read/heard about, it has had a success rate of atleast 85%.
The thing is also, if any of you know about vaginismus, the most common treatment is to use dilators etc. However, even after achieving intercourse you still have to keep up with the dilators.
With the botox treatment, they inject it into the muscles required and before any one asks, there is no loss of feeling or bladder control, and technically you should still be able to orgasm.. anyway, the botox injection lasts for 3-6 months where upon you can practice to your hearts content with your hubby and get used to the fact that sex isn't in fact painful.
Some people have required an extra injection for a longer period, but have been totally succesful afterwards, never requiring another injection or the use of dilators.
So basically, I am trying to find a gynae somewhere in the newcastle area or sydney that would be happy to perform this procedure.
Hi JoDan,
How are endo and vaginismus linked? I'm intrigued - I have both but didn't know there was a link.
HI Ethac,
I have no idea myself. But whenever I look up for vag it comes up with stuff about endo aswell. Like those that treat vag also treat endo.
I have also heard of botox being used to treat endo, but don't know how that went. But that's also where I got the idea for botox for vag. Then researched it on the net and voila!
I think they are linked due to both being about the vagina etc and also with the pain of them.
Hi Guys -
I believe they may be linked because one of the symptoms of endo is pain with intercourse which I imagine could lead to vaginismus if this situation continued over a long period of time.
I must have been one of the lucky ones because I had all the symptoms of endo except for pain with intercourse.
I am hoping to get some sort of breakthrough soon.
HUbby and I are thinking of TTC maybe about march next year. As I may be out of work by then so kinda makes timing perfect provided that we can afford it!
If anyone can knows about cures for vag, I would be way greatful, other than dilators as I have already started on them.
[-o<
Dear JoDan,
I just happened to stumble across this forum whilst looking on the internet.
I am currently involved in a botox study for chronic pelvic pain being conducted at the royal women's hospital in randwick, sydney.
The study was a double blind study so i am unsure as to weather or not i have recieved botox- i find out at the end of the year.
I suggest you contact the Department of Endo-Gyneacology at the Royal Women's and ask to speak to Sharin Jarvis. She is the physiotherapist there and she is the one organising the study. She also sees patients privately at her practice in the eastern suburbs.
Another avenue for you to try would be Dr. Michael Campion at either the Royal Women's Hospital or the Prince of Wales Private Hospital. He specialises in vulva pain conditions.
I have had vulvadynia and vaginismus for about 7 years now so i know a fair bit about the different treatments... if you want to share some more info with me i could try and give you some advice...?
Good Luck!!
:D
Hi Joolzies,
I have actually emailed Sherin Jarvis regarding this but didn't get very far.
Have you had any luck after having the injections?
Please feel free to email me as it may be easier.
Jo
Joolzies,
thought you would like to know that I have an appointment with my gp on the 2nd july and she has found someone in newcastle (finally) who deals with this. Not sure about much until I see my gp.
fingers are crossed though.
Good luck Jo! let us know how you get on.
*link removed by admin* Please read our forum guidelines on links & spam HERE
Sorry about that!
Anyway, I got a referral from my GP to a specialist who she was told deals with vag. Only to be told once I called to make an appointment that no she doesn't. So thankfully though she gave me the number of someone who apparently does. Although in the hope of saving time, I have faxed the referral and a note to her so as I don't waste my time and money by making an appointment and it turnign out she doesn't deal with it.
ARGH, the run arounds we have to go to.
Hi JoDan,
Did you have any luck finding an Gyno to help you?
Hi Ali,
No luck as of yet. ](*,)
I do know of one gynae in Sydney that does it after convention methods have failed.. so am trying to get my GP to contact him so that I can find out more and then go and see him. He is rather expensive at $200 initial consult!
So fingers are crossed but I won't get to see him until Sept sometime.
Thanks for asking...
I'd be interested to know how you get on..
I've tried just about every method over the past 10 years and seem to have more set backs than success.
ALi,
send me a private message.
Jo
for some reason it won't let me send a private message..
You need to be an upgraded member (Platnium Membership) to be able to send private msgs.
Love
Hi Astrolady,
I was just wondering, would you be able to make this a subject like the Endometriosis one. I think it would be great as it would allow others to be able to have somewhere to find help and supprt as much as the endometriosis.
Also, it would be good for helping others be aware and understanding of the condition. The more people know about it out there the better our treatments might get.
Anyway, if you could make a Topic of Vaginismus - I'd be very greatful.
Thanks.