Sick of crying about reflux and why are Dr's so bad at treating it?

This is a bit of a vent really........

My DS has reflux (of course diagnosed by me, Dr's appear to know nothing). After having initial success with Zantac we are now on Losec as the Zantac became ineffective (paediatrician had to look up her book to decide to try Losec and told me to crush tablet - thanks to BB I realise this is not how the med should be given :angry:). We have only been taking Losec for 24 hours but have noticed an improvement in his sleeping. Still have a baby who screams when being fed and after feeds (even though still hungry, hits at the breast and cries). I hate the feeling that my baby is in pain and I can't feed him without making him cry and we both end up in tears everyday. Once settled after a feed (usually half an hour to an hour later) he is all smiles - bit like a muliple personality disorder! Can you believe that my paediatrician told me my DS's sleep issues and unsettled periods were behavioural (at 3mths)? Grr....Anyone have a good paediatrician in Melbourne?
While I'm venting, I have to admit that I am so jealous of all the babies who feed and are full and content after their feed. I won't feed DS in public anymore as people stare wondering why/how I am torturing him. Mother's group IS NOT THERAPUTIC. Ok, I'm done!!!!!

Aww Jac:hugs:
Its so hard isn't it. Reflux is a shocker. Ive looked after lots of babies with reflux and it is both frustrating and upsetting. Now my bub has it, which I was dreading! At the moment we have the same battles with feeds. And I completely hear you in regards to feeding in public. What an ordeal. We have app with the paed. this week so we will see what he says.
I hope you find a solution soon (and a better paed.!)

Caro - I have just had the tablets made up and was only given a script for the one packet (30 tabs) so I suppose I need another script if I want the liquid form. The tabs are troublesome to administer so I would like the liquid made up. Should I ring the paediatrician ofice and ask for another script (I hope I don't have to make another appointment to get it). Does the script need to specify liquid for it to be made up as liquid? SO MANY QUESTIONS!!!
Rang the pharmacy today but Stephen not in so was told to ring on Monday.

Thanks Caro - I will find a chemist that will do this on Mon then ring the Paed and insist on getting another script (well, I'II ask). Does Michael take the liquid Losec OK (he's VERY cute BTW)?

Let me get this right. Are you saying that the chemist uses the tablets or capsules to make the liquid? So you pay for the tabs, then pay for the liquid to be made up. Why is this so confusing.........? It shouldn't be this hard to get the medicine!!!!! What an ordeal.
Sorry to go on and on about it but I want to get it right. Do I ring the chemist (I think the Royal Childen's Hospital chemist does the liquid) and ask them what script I need - tabs or caps, then ring the Dr and get another script????? Good grief I'm going mad. Do you have to go to the chemist fortnightly Caro and if so is this with a repeat script?

Since so many children suffer from reflux these days doctors really should know a lot more about it. My son had reflux and was given zantac and never offerred anything more for a very long time, again they told me to stop the medicine and that it was behavioural, but Parker wasn't my first child and I knew something was up.

Unfortunately a lot of the knowledge that I have on reflux now, is because I have had to research it and not from any doctor helping.

Caro has given some really good advice about the compound. Quite a few pharmacies make it, you are just going to have to do the ring around, also some will make it with the same script as the losec tablets and some wont. Try the childrens hospitals, or hospitals where paeditricians work out of privately, this is your best bet for fresh compound.

I will tell you that if you have stopped the zantac and started the losec, things are going to get a lot worse before they get better, I would keep up the zantac for at least two weeks while giving the losec a chance to work, the zantac will get out of the system in a couple of days and the losec may take two weeks to work, so somewhere in between the baby is unmedicated, this is when it gets worse, and also a prime example of how a doctor should know about this.

Both these medications do different things and can be given on the same day (but spaced at least an hour appart, so it doesn't interfere with the other)

Give the losec at least 2 weeks to see a difference, it is hard but you have to wait it out, generally by 2 weeks, you have an idea if it is going to work, though sometimes it will take longer, also a lot of doctors will tell you it will work straight away but it won't so you give up before it has a chance to work.

I would also ask your GP for a referral to a paed who specialises in reflux and if it gets a lot worse, get a referral to gastroenterologist, they are very good at working things out too.

Good luck, if you need anything, please post, I don't mind answering anything.

I can sympahise we you as we too had a hard time of Severe REFLUX.

They all say it I know - it does get better, but that is so hard to believe that there is any light at the end of the tunnel. I was one of those, until we went to hospital numerous times and saw less fortunate kids that DO NOT grow out of their condition. This was the turning point for me, as more often then not I was so down and out about it all and stressed all the time. But hey who wouldn't be when you child refuses to feed. We went through a really bad patch at 5mths where Lachlan would not feed and would only feed half ok when asleep. He would kick and punch me and would not attach to my boob at 8 weeks, it was so upsetting. So for 2 months he was tube fed due to the fact he was failing to thrive, but not dehydrated because of what I was doing through the night. From tube feeding we were then over extending his belly, so then we have been through an extended period of over extension of his belly. He would power vomit his whole bottle of 120ml. This is why we were in hospital, because initially they were not sure why these power vomits were happening. But looking back this was the reason and it definitely seemed like a never ending battle. You tube feed them, they are sick and still loosing weight, what tha..... We had to play with qty and timing just to get it right = no vomits.
The continuous feeds overnight were a shocker, we had to set our alarm through the night to change the bottle in the machine and even then it was scarey because he has never vomitted in his sleep and this was making him choke and gag in his sleep. He slept in our room for months on end until I was confident he was ok again.

To date, we have had a barium swallow and xray and ultrasound on his tummy, blood tests galore and an endoscopy. Luckily no fundo, but they were talking of it.

Anyway I feel like I could talk all day on this issue, to this day he is still on 30mg of Losec and 40mg of Domperidone (Domperidone is a drug to help them stop vomitting). We give him 1ml of Losec in the morning and 2ml at night and that helps, but he still wakes through the night at times. We proabably have 3 good nites a week. The domperidone is 1ml x 4 times a day.

He is still a bad feeder with solids, but I guess he is always going to be small and I am sick of fighting him. He weighed 8.24kgs at 12 mths and he is nearly 13.5mths old and think he weighs 8.5kgs. It is strange though my paed always told me that Lachlan just mustnt like milk and that he would be great on solids. That time came and no still not good on solids (although we have had peaks - must have been growth spurts), but now more then ever loves his milk, go figure. What makes it worse / harder is that he has always been cows milk protein intolerant too and is on a prescription formula and we have not been able to have dairy. Which makes food very limited for this very fusy child.

I also do think that the Losec takes a while to work, but I would definitely get it in a suspension, that is the only way too go. Lachlan was on Losec at 3 weeks of age and I still didn't feel like I bonded with him until he was 3 mths. But I do believe there was a bout of colic happening there also which made the screaming horrendous. So that could be possible with your little one too. I do think most babies suffer with a little bit of wind up until 3 months of age. Lachlan had terrible trouble with bringing up his wind and when he did he would vomit. An ultrasound showed all the wind in his tummy.

We use to put Lachlan in a tri pillow in between us in bed, it kept him elevated and helped with his night sleeping. But day sleeping was shocking and still is!!!

I have a kid that hates to eat and sleep. Grr...... But I love him all the same.

I know how you are feeling, but I just wanted to assure you that it does get better. I am just lucky that Lachlan is such a happy kid considering, because the anger he showed as a bub (he use to kick and punch me), really scared me that, that was his nature. No doctor can say that is behavioural at that age, I was worried too, but no no no way....

GL and if I can offer anymore help, please let me know!

Shereejoy, I am so sorry to hear what you are going through with your little Lachlan, my son Parker is a very similar story to yours, and he is now almost 3 and sad to say will not grow out of it. BUT like you said it does get better, he is sleeping now, and he will tell me when it hurts and where, and in general he is pretty good on the medicine.

I do have a question though about your losec and that is that you give 1ml in the morning and 2ml at night? That to me works out at 6mg a day and he is needing 30mg, unless they are compounding the losec at 10mg/ml that may be why he is so bad.

If they are compounding it at 10mg/ml you should know that this would mean that there is not enough buffer to omeprazole ratio and the compound is likely not to last longer than a couple of days before becoming unstable and useless.

If you need any more info on this please ask or I can email you.

Caro you get the compound from the same place as me, they make it 2mg/ml. Which is great. So if every ml you give is 2mg, then 2.5ml is 5mg.

Total 10mg a day. So it is fine.

Jac, we had the same problems...our GP, ECN and paediatrician all said that DS didn't have reflux yet he was SCREAMING the place down after every feed, wouldn't sleep, was generally unhappy almost all of the time and was throwing up lots. Finally the paediatrician diagnosed reflux (around 12 weeks I think) and put him on Losec. Things changed after that...it's AWESOME stuff!!! We just dissolve the tablets and use an eye dropper to feed it to him...after a month or two he started taking it quite easily and now he opens his mouth ready for it. :)

Recently the paediatrician told us to take him off it (because "they tend to grow out of it by 6 months") but all those horrible symptoms came back...needless to say, he's back on the tablets again.

I was in tears every day until the Losec started working and no one seemed to understand how bad it was... I am STILL jealous of babies who sleep heaps (DS still isn't a great sleeper but he is better) and particularly of young babies that can be put down to play quietly by themselves then put themselves to sleep on the floor... It's just such a bizarre thought since we never had that.

Good luck, I hope that something works for you soon!!!! You're not alone in this 'fight' although sometimes it feels that way... And I know it doesn't help now, but it WILL get better eventually.

I had Steph on Zantac, then Losec (tablets dissolved in water, then give 5ml), neither of which worked. I have been slack and not tried Caro's magic juice from her chemist, or rather called them up first, since I am in Vic too. I have taken Steph to Sunshine hosp, and RCH a couple of times each, and they were both useless for her reflux and screaming.
We see a really nice paed here in Sunbury, who gives Steph acupuncture. I think it helps a little, but Steph finds him relaxing (the only dr she will smile at more than once), and I find him terrific to talk to. He has been the only dr that has seemed interested in what I have to say and how I am feeling.

Have any of you that have long term reflux babies considered alternative medicines? I was at a clinician on Friday, a friend of ours who specialises in acupuncture (chinese & japanese) and homeopathy. I asked her how effective homeopathy was in treating reflux because I hear of so many bubs here that have it and she told me it was really effective. My SIL also used an osteopath and had good results. She went there after several recommendations from friends. So there could very well be more hope then just the meds you have already been prescribed. HTH.

Lachlan is on 30mg a day, use to be 40mg. It is 30mg/ml, is that what you were asking Scarlet?

Thanks krssalyss I have tried both kineseology and homeopathy with Parker, both have not done much for the reflux, thought he homeopathy does keep away other things like colds and flus and that helps in the long term with the reflux.

The homeopath I see is really good and she has had a lot of success with refluxers especially infants, but Parker she has said she can't help for his reflux.

The kinesology was a muscle testing course which was mean't to eliminate allergies and thus help the reflux it did help with him being able to have other foods, but did nothing for the reflux.

I have a friend who did accupuncture which did not help at all, and one of my really good friends regulary goes to a chiropractor and she says this helps immensely. I think that it is a great idea to try alernative medicines, but at some point you realise the only thing that takes all the pain away on a long termer is medications unfortunately.

Shereejoy, I was wondering what the concentration of the losec is on the bottle, in mg/ml. And if you are still only giving him 3ml a day.

I took Jovie to acupuncture for her reflux. I found it did relieve some symptoms but not all. I took her for 3 months and then the symptoms resolved. I didn't have to use medications with her though, I did use some chinese herbs for a month prior to everything resolving.

BUT Jovie's reflux was actually caused by an intolerance/allergy to cows milk and soy. From me drinking or eating anything with those products. So when her symptoms resolved I had been off those products & breastfeeding for at least 3 months. Its hard to say as well which was the reason for things resolving, all I know is if I drink milk or soy milk she breaks out in a huge rash & has reflux symptoms for a fortnight afterwards.

Yes exactly what I said, 30mg/ml and yes we give 1ml in the morning and 2ml at night.

If the compound was made to 30mg/ml that means that you would be giving him 90mg of the losec a day (because every ml would contain 30mg of ingredient). Generally losec is compounded at 2mg/ml which would mean that to get the 30mg a day he needs 15ml a day.

Losec can't be compounded at 30mg/ml as the buffer to losec ratio would be wrong and the medication would essentially be eaten up on the way down the the stomach, which would make it not work at all.

I am sorry if I am confusing you, it is hard to explain on here sometimes. I am just concerned that your little one may not be getting his full dose in and thats why he is still having so many problems.

Jesus I just realised my mistake, I was thinking 10mg/ml and typing 30mg/ml. I was wondering what you were on about, derrr... I am so sorry, lachlan was at my heals and whinging. Sorry I must have been equating the total amount in my head and typing it. And I didn't think I had baby brain lol.

LOL that makes more sense! Do you find a lot of relief on the 10mg/ml solution? And do you get it for the whole month and do you notice a difference when you get a new bottle etc?

I am just wondering if you got it compounded to 2mg/ml which is the recommended dose then it may help his symptoms a lot more.

How the compound is made is the losec and a proportion of sodium bicarb, what the role is to neutralise the acid on the way down so that the crushed losec doesgn't get eaten by digestive acids on the way down, if the proportion of sodium bicarb to losec is too high, then the losec starts to become ineffective way before its time, so although you think he is getting the 30mg a day, he is actually getting a lot less and that is why even on high doses he may still be getting symptoms of reflux.

Its just a thought, if you wanted to try tweaking it.

It is something to think about since his symptoms and sleeping are bit everywhere at the moment.

We have been on this dose for atleast 10mths of his life now, geez I never even thought it may not be working. He is fine in the pain department, well I thought he was. He doesn't sleep well at all during the day and at night it is a bit hit and miss, we could have 3 good nights and then it goes back to 1-2-3-4 times a night waking. But who knows it could be teeth too! His eating aint the best but I really just think he is fussy now and not a big eater because he has never extended his belly well enuf to eat like normal babies. I know for a fact the losec even on the lower dosage from 3 weeks to 3 mths didn't entirely work and then we found we did get some relief until 5mths and that is when things went hay wire. But we have been on the same dose for ages now. I remember my paed saying when the CHN gave us the losec and we finally got to see the paed at our 6 week checkup, that the low dosage she gave us (and I think it was 2mg/ml) was not at all high enough and that is when he put us on 30mg per ml.

I am hesitant to play with the dosage as I don't want to make things worse. For the simple fact that we have moved towns and changed paeds and she has not changed his dosage either, makes me think that she is in agreeance with our previous paed anyways.

What are your thoughts?

Caro, I must say that for us Losec is TOTALLY effective. All babies are different and all reflux problems are probably different in some way too. Losec has changed our lives for the BETTER and when we went off it, all the horrible problems came back. After going back on Losec again our little man was back to his happy, healthy self. He has been on Losec now for almost 7 months (with that horrible break of a month in between) and he will continue to be on it as long as is needed. :)

So in my opinion Losec DOES work and it works WONDERS!!! It is AMAZING stuff and has made my life go from a living hell to fantastic. :)

Lachlan hasn't appeared to cry from the pain for ages and and that is what it is meant to do, neutrilise the acid, so in that regard we are not having any problems. But if you think that the sleeping and eating could be better, I will give it a try????????????? I am so confused now. I have tried so many things in his life time and it just becomes so hard to work out what is working what is not!

Sheree I think thats the pain of reflux, there are no set answers for every individual. Its all different. Babies react differently to different meds & sometimes they change & the meds don't work etc. Matilda had silent reflux and was diagnosed due to the burns on the back of her throat due to the acid. We used mylanta with no success and then zantac worked wonders... this is 3 years ago. BUT she was on zantac for 9 months... everytime we tried to stop or decrease the dose we met with the pain of reflux. We still had sleeping issues and other behavioural things, but not the pain.

Jovie... well... she's different again. I kept having people tell me she had reflux & I would say "No, I've seen & lived with a reflux baby & this isn't one" She had heaps of the symptoms but not as badly as Matilda. It took a few health professionals to convince me, then I searched for alternative therapies and went to a LC who showed me information on milk intolerance & we were on our way to finding the answer. She hasn't had any meds & shows no signs of reflux at all anymore.

They are all different. I think trialling something for a few weeks is best. You can see if it works & adjust accordingly. Most medications can't work effectively until the intestinal lining has a chance to repair itself from the damage of the acid. So it does take a while. You may see relief from pain straight away but the longer term healing doesn't really show for a few weeks.

Thanks Caro, LOL

Sherrejoy,
The dose as such wouldn't change, only the amount you give him. So if you are giving him 3ml a day of the 10mg/ml compound you would give him 15ml a day of the 2mg/ml compound.

I totally understand what you are saying about not wanting to play with it, and I am not suggesting you just change it, but just ask some questions, first of the pharmacy and make sure they compound it to 10mg/ml and NOT 2mg/ml, honestly you would be the first person I have talked to who has it compounded at that strength and from what I know about compounds I would doubt that it would last out the full month, this could be why you are getting good and bad days so often.

Also on a dose that high, with FTT and from what I have read no other significant problems (pnemonias, apnea, infections etc) then it should be helping with his feeding, I honestly think that he is still in a lot of pain and that is why he isn't eating properly. My son Parker was very similar to your son, and it wasn't until he was about that age and I started asking questions that we started getting some results and he is no longer FTT although we still struggle with his weight some times.

I think that whole 2mg/ml and 10mg/ml may be confusing you, the dose would be exactly the same, it would just be the way the compound is made that could help out more. So you aren't playing with the dose, just making sure that the one you are on is working. I too agree with your ped that with those symptoms 30mg a day, would be a good dose for him.

If you don't feel confident ringing the pharmacy let me know which one you get it from and I can ask the pharmacist for you, just to check if they are doing it to regulation.

Again, I am adding that I don't think at this stage you should change the medication I do think it is working, I just beleive it could work better, changing the medication to a different type could make things a lot harder.

SSmiles, I am pretty sure that Caro wasn't saying it was ineffective just that the way some pharmacies make the compound is ineffective and the product doesn't work properly. For the record I love losec, it has truly saved my babies life (and he is no longer a baby, so sad, he is almost three)

I'm really sorry your having such a tough time...it must be so hard for you and your little man.

I looked after a friends baby who had reflux when she was about six weeks old once. I had her for about six hours and I swear to god the poor little thing screamed all day. It was a nightmare, I don't know how mum's who have to watch their little ones like this day in day out can cope...hugs to you and I hope you can find someone to help him.

Jac, just going back to your original post, how are YOU feeling about all this? You mentioned that you are sick of crying all the time.

My little one has reflux too, and I, like you, spend most of our feeds (and the rest of the day) in tears. For me, it has gotten to the point where I have sought treatment for myself, not just for my baby, as I was worried that all my stress/depression/anxiety with respect to the reflux was (1) seriously affecting my milk supply and let-down and (2) affecting my ability to bond with my baby.

Are you getting any help for you? Not necessarily pharmaceutical help, but help? Talking to someone? Practical help around the house? Maybe pharmaceutical help if you need it.

I've asked my MCHN nurse to refer me to the child health psychologist, who I'm seeing for the first time this Thursday. Jambin's paed also has referred ME back to my GP to discuss my depression, as she says it's not her expertise, but is obviously becoming a problem because of Jambin's feeding problems and reflux issues. My in-laws also drove down to stay with us for a couple of days, to give me a break and help out with the practical stuff, such as laundry, cooking, minding Jambin while I had a sleep. Having someone help me with the domestic chores helped me have more emotional stamina to deal with the reflux challenges. In my experience, Jambin's reflux has affected me as much as him, and I think it's important to have a 2-pronged attack to managing it.

Hugs to you sweets :hug:

Scarlett/Caro - I have finally got the losec in liquid form but wanted to ask your opinion on dosage and cost. We are on 5mg/ml and so he takes 1ml per day. The chemist has made 1mth worth as they assure me it will last a month (?) so I have 30mls in total. This has cost me $49. It seems quite expensive for only 30mls and is it usual to allow for no error in administeration (ie. if I miss his mouth or he spits it out I only have 30mls, exactly enough for one month)? Why don't they give me a little extra just in case? Does this sound normal to you and does the dose sound OK for a baby new to this medication? I just don't trust the paed.

Cherie - Thankyou for asking about how I am feeling. When my DS has a good day (like today) I feel totally fine, but when he has bad days (which are far more frequent lately) I feel that I am not coping and get very upset. My feelings totally relate to how my baby is going so I don't think it's 'depression' as such (?). I have heaps of family support so am lucky in that way. I just want my baby to be happy and pain free then all will be well. I wonder if that's asking too much.

Well, if that's asking for too much, then I'm asking for too much too lol. I hope both our bubbas end up pain-free soon.

Meds can be so confusing, and so can the pharmacies as well. Your compound is 5mg/ml, that means if you are giving 1ml a day, you are giving one 5mg dose a day. So this is correct. Your 30mls is the same as 75mls of mine.

The price also is about correct for a months worth. The reason that you have a lot less liquid than say me, is because your losec is stronger. So that is all fine.

First try it out and see, you may find that the compound for the month is fine, and yes it is a little wrong that they don't give you a bit more, but different places do different things. Watch out for the 2 weeks and see if there is a decrease in symptoms around the two weeks. If so, it is best to get it refilled.

The one thing that I could suggest is to try finding a pharmacy that compounds to
2mg/ml, this strength seems to do a better job, compared to the 5mg/ml because of how it is made and how much longer it lasts. The other is that after the two weeks (around about) generally you start to notice an increase in symptoms, and this is because with time, and opening and shaking etc... the losec starts to become unstable and not work as well, so although it still has some losec in it, the strength of the compound starts to fade a bit, we get ours done up every two weeks, and sometimes sooner, I just go on what he is doing.

The other thing would be the dose, 5mg a day would be on the lowest end of the doses so if he has been on it a while or you are seeing a lot of pain, you may want to look at getting it at least doubled, and see how it goes.

Ring around the pharmacies, the ones at childrens hospitals or hospitals with paed consulting rooms generally make it up, ask the price and whether they do it every two weeks if you want, and try and find one that gives a concentration of 2mg/ml.

Good luck with the meds, let us know how it goes.


This has cost me $49. It seems quite expensive for only 30mls and is it usual to allow for no error in administeration (ie. if I miss his mouth or he spits it out I only have 30mls, exactly enough for one month)? Why don't they give me a little extra just in case? Does this sound normal to you and does the dose sound OK for a baby new to this medication? I just don't trust the paed.

Cherie - Thankyou for asking about how I am feeling. When my DS has a good day (like today) I feel totally fine, but when he has bad days (which are far more frequent lately) I feel that I am not coping and get very upset. My feelings totally relate to how my baby is going so I don't think it's 'depression' as such (?). I have heaps of family support so am lucky in that way. I just want my baby to be happy and pain free then all will be well. I wonder if that's asking too much.[/QUOTE]

Thanks guys. I thought the dose was correct as the Dr said 5mg per day and liquid was made up at 5mg/ml so I ml a day seemed correct. However it does seem a low dose. Scarlett, I found this on an internet site;
Low dose range is 0.7 - 1.5mg per kilogram per day.
High dose range is 1.5 - 3.0mg per kilogram per day.
Very high dose range is up to 3.0 - 3.3mg per kilogram per day.
Does that seem right to you? If so, we are on lower than the lowest range (DS about 6kg). I suppose I should see how it works over the next month. I see the paed (the one I respect and like this time) end July so will take it from there. DS already sleeping better and happier in general.
One other quick qn scarlett, I am giving 1/2ml in morning and 1/2ml at night instead of 1ml a day as I was hoping to extend the time it works for - is this the best way to go about it with such a low does or should I just give 1ml in the morning??? Seemed to work OK yesterday......

My son Zane has silent reflux. The local doctor put him on Zantac 2ml to start with and that did nothing, and it was so strong it took his breath away. So we went to paed when he was 6 weeks old and Zane was put on Losec 5mg once a day dissolved in 10mls of water which I syringed into his mouth, I use to give at night but tried mornings as he was unsettled during the day and that did the trick. He also was put onto Soy milk formula and he has been perfect since about a week after paed appointment. He is now just over 7 months and I stopped the Losec about a month ago and he has been fine. I know how you feel its terrible seeing how your baby is in pain, screaming and unsettled and then you feeling like your the only one going through it,I think back now and remember how it was and don't know how I would have got through it without my families help. But it does get better once you have sorted out the medicine and what works for you and baby.

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Thanks guys. I thought the dose was correct as the Dr said 5mg per day and liquid was made up at 5mg/ml so I ml a day seemed correct. However it does seem a low dose. Scarlett, I found this on an internet site;
Low dose range is 0.7 - 1.5mg per kilogram per day.
High dose range is 1.5 - 3.0mg per kilogram per day.
Very high dose range is up to 3.0 - 3.3mg per kilogram per day.
Does that seem right to you? If so, we are on lower than the lowest range (DS about 6kg). I suppose I should see how it works over the next month. I see the paed (the one I respect and like this time) end July so will take it from there. DS already sleeping better and happier in general.
One other quick qn scarlett, I am giving 1/2ml in morning and 1/2ml at night instead of 1ml a day as I was hoping to extend the time it works for - is this the best way to go about it with such a low does or should I just give 1ml in the morning??? Seemed to work OK yesterday......

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What you have posted does seem right, but you will find most doctors won't work it out on weight, but more to half or a full tablet kind of thing. Personally at three months old, I would be looking at 10mg a day, especially if they have been on it a while and haven't gotten much better.

The great thing about the med change to the suspension is that it is already in his system so half the battle is won, so maybe that dose will be perfect KWIM?

With the splitting the dose, I always recommend to split it, it makes a huge difference to Parker, so I think you are doing the right thing.

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https://www.bellybelly.com.au/forums...ad.php?t=38401
ABsolutely
And yes Joondalup pharmcy as far as i am concerned made it inffective and ripped me off in the process

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Sorry Caro, I thought you were saying that Losec was no good for anyone. I don't get my DS's Losec made up, we just use the tablets and it works fine (dissolved in water) so that's the reason for the confusion (that, and lack of sleep on my part). :) Duh... ;)

Just a quick note about dosage. The "correct" dosage is the lowest dose that is effective and controls the symptoms. If your bubs reflux is under control then I wouldn't worry about what dose other bubs are on or what the recommended dose is. If they are not under control and bubs is on a lowish dose then I would see your doc about getting the dose increased. Also since dose is based on weight, as our bubs grow the dose may need increasing if it becomes less effective.

Hi there
I'm in Melbourne too. You can get compounded losec at the Royal Childrens Hospital and also at Monash Medical Centre.
I get mine from Monash, it costs $31.50 for 300ml. You have to make sure your doc writes the script in a particular way to get it at that price though - you need two scripts. If your doc isn't sure get them to ring the pharmacist.

I would highly recommend Don Cameron, he is Mr Reflux in Melbourne. He works at the RCH but it is really hard to get an appointment there, much easier at his rooms in Clayton - let me know if you want the info.

I've just done a long post in another thread - https://www.bellybelly.com.au/forums...t=38401&page=4

Good luck!