Brendan's Journey from Birth>6 weeks.
Hello :) I have finally written down Brendans Hospital Journey in full. Sorry it's a little long.
Brendan was born at 30 weeks after my waters broke at 28 weeks. I contracted an infection during labour which meant Brendan was born with an infection also. Brendan's Apgars at birth were 2 & 4. I went into labour at 7:30am Saturday the 24th Feb 07, Brendan was born at 3:15am on Sunday the 25th Feb.
Well, the labour is over and my small bundle entered into the world at 3:15am on Sunday, 25th Febuary 2007 weighing just 1545gms. The first 5-10 mins after birth were the scariest of my life. I saw him be born and watched the cord be cut, I then watched as a neonatologist and NICU nurse rescusitated my son. He was born with an extremely low heartbeat and he wasn't breathing. The whole room was silent as they were counting compressions to get his heart beating, Brendan was given a shot of adrenaline to help. He was ventilated, then stabilised. 15 mins after birth I was shown my son. He was wrapped in bubble wrap and blankets, I was so relieved that I finally met him and he was alive, although not breathing himself... he was alive. He was then whisked away and taken to the NICU.
Day 1, after having a nap, I am wheeled down to the NICU and wheeled up to a plastic box (humidicrib). By this time Brendan is 8-9 hours old, just started on CPAP and under Phototherapy lights for Jaundice. Inside the box is a scrawny pink thing, hooked up to wires and machines, there's beeping everywhere and I can't see much of what is my baby. I am crying, not knowing what to think and just wanting to cuddle him. I could only stay for a few mins before becoming overwhelmed.
The first few days after Brendan's birth was a blur, I had to come to terms with the fact that my little boy was going to be here a while. I also had to learn how to express my milk and live away from all my friends and family. I stayed in accomodation next to the hospital, as I lived 4-5hrs away. The accomodation was basic, the room was no bigger than the average bathroom, containing a bed, desk and a built in cupboard. We shared a kitchen and a bathroom/toilet. I tried to make it has "homely" as possible, but there wasn't much point, I only slept there. I ate most of my meals in the parent lounge in the SCN and spent all my time next to Brendan's humidicrib. I remember coming in on day 3 to visit Brendan only to find he had gone, his humidicrib wasn't there anymore. I was devestated, what had happened whilst I was asleep? Had he died, what had happened, where is he?. thousands of questions are buzzing through my head, I finally get noticed by a nurse. But she can't find my baby either, the floodgates open, she was asking other nurses and no-one knew what was going on. Had they lost my baby, and how?? I was told to go and ask the co-ordinator of SCN2 , there I was pointed in the direction of my little boy. He had improved and been moved to the next level of care. A huge relief!
It seemed Brendan was doing really well, being in the SCN level 2 I was able to stay with him longer, change nappies and start being somewhat a mum. I was so happy that my little boy was doing so well. This was to change and quickly, on day 9 Brendan contracted two infections and was back onto another round of anti-biotics. Day 10 early morning, I receive a phone call from the co-ordinator of SCN2. Brendan had "given up" he'd stopped breathing and had to be rescusitated and was back in the NICU. I think this was the quickest trip I ever did from being asleep in my room and getting into the NICU. He was on CPAP again. I was devastated, he had been doing so well, progressing nicely and then we were back to square 1. After a little over a day in NICU (SCN level 3) Brendan was moved in level 3B. I was overjoyed that he was better and off of the CPAP. I was even happier that after less than 12 hrs in 3B he was moved into SCN level 2A. Hurray! I was so happy that Brendan was back in 2A, I began to feel a little more like his mum, rather than just a milk machine. The nurses were nicer and I was able to cuddle Brendan more often, sometimes once a day!!!
I wasn't as stressed anymore, knowing that Brendan was doing well I was able to sleep a little better at night. On day 16 Brendan was moved into SCN level 2B, WOOHOO! Although this move was good, as Brendan was doing so well. It was very hard on me, I sat and watched as babies came and went. Some babies only spending 4-5 hours in the SCN, it is very good for them, but hard for me as we'd been there nearly 3 weeks and still had quite a journey to go. On day 18, Brendan had been holding his temperature well for a few days now and was transfered to an open perspex cot! I was delighted. I even spent the night of day 20 away from the hospital, my fiance came down for a visit and took me to his parents. I didn't sleep well that night though, I was upset and depressed. It is so hard to walk away and leave my son in the SCN, and even harder to spend the night away from him. I cuddled him before leaving.
When I returned on day 21, Brendan had been moved to an extended section of SCN 2b, Satellite Nursery. I arrived there to be told that only 30mins prior to me arriving they had to rescusitate Brendan. I was a complete mess, I had only spent one night away from him and I almost lost him. Within minutes of me arriving Brendan was being moved back down stairs to SCN 2b. Once I got my cot space down there, I immediatly cuddled him. I noticed that his little shirt seemed a bit tight so I undid the button to find that he had a very red ring around his neck. After speaking to the nurse looking after him, we both came to the conclusion that the shirt had put too much pressure on Brendan's neck and airways. From then on I was in control of dressing him. I went down to Target with my mum and we bought some more 5x0 outfits for him to be dressed in. On day 22 Brendan got his first bath. Before his bath we got his hand and foot prints done. I was delighted as I watched the nurse from the SCN give my little bundle a bath.
Day 23, It's been just over 3 weeks since Brendan was born and I have been away from home for 6 weeks. I was upset and depressed, I missed my fiance terribly even though he visited every weekend. I was depressed and really upset. I went home to Marvel Loch for a few days. It was extremely hard the first day and I rang the hospital whenever I felt uneasy. While at home I got my nursery a little more set up. After a few days of being at home, I headed back to the hospital. I was more relaxed and very happy to be back with Brendan. The next few days were easier, I was happier and felt better in myself. On day 28 I gave Brendan a bath. Day 29 Brendan was moved back up to the satellite nursery. I was relieved and glad to be going up there. Brendan was 1 of only 2-3 babies being monitored. It was much quieter here and far more relaxed too. Brendan still made music with his monitor and I was edgy every time his monitor would go off.
Day 38 is an excellent day for me. Brendan's Nasal-Gastric tube is removed!!! Brendan is now on all suck feeds. The next few days were frusterating. Brendan was on all suck feeds and was gaining weight, but we weren't allowed to go home as he was still on the monitor and still desaturating. I knew that he was so close to going home and I kept getting excited every time the drs came round. Excited and then deflated as the days were still passing and Brendan was still monitored. On the afternoon of day 40 one of the drs came around and was looking at Brendans chart, she asked to get the montior taken off! Brendan still had to stay for at least another 24 hrs to make sure that he would be ok. I was so excited, we are so close to going home!! Morning of day 42, the dr did his rounds and did the discharge check for Brendan. Brendan passed and we were able to go home! Brendan was 5 weeks 6 days old and weighed 2190gms when he was discharged, my fiance picked us up from the hospital just before midday. I finally had my baby and was heading home.
Thank you for taking the time to read Brendan's Journey.
Your story brought it back....
Hi Brendans mum!......I truly understand what it feels like to go through the SCN progressions and step backs, the crashings and rescucitations....it is hard, hard, hard. I also know what it is like to finally come home.:clap: Its interesting to think we were in the hospital at the same time.I was across the world in Jamaica. Kira was born Jan 10, 2007. We had our last admission in May.
We are so lucky.......makes me so sad that every baby cant come home. I dont know if i'll ever not think about how lucky i am.
Anyway....congrats.
Misha
