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I'm going for my last test tomorrow! It's supposed to be Weds, but work is too too hectic that day, so I'll go early. I won't get the results til later on - I haven't really bothered to phone up to get them since they've been zero, except one time when AF was late, and I was dying to know the answer!
How are you going Cookie? When's the next puncture?
Hooo-rah! for your last puncture! I hope you get the best result! My next one is Thursday.
Got a bill today - $500. "Specimen type - products of Conception".
Had a bawl over that one. How can losing a PMP cost SO MUCH MORE than having a healthy baby? :angry:
Hi Girls
Cookie - that sort of news really sucks, hey. Make sure you allow yourself plenty of time for wallowing. Eventually it happens less frequently and becomes less painful. I'm finding I'm just starting to think of myself as "almost ready to start ttc" rather than "PMP/miscarriage woman". You'll get there too.
Snugglybean - i'm sure you will get another zero. Have a fantastic trip - wishing you lots of snow and :pink-babydust: in Japan!
josijo - are you ok?
tac
wow, Cookie - i don't know how you got a bill like that. Everything was bulk billed for me - we were out of pocket about $15 for the scan, but that's it.
I still haven't called to get my last blood results (I went on Tuesday morning) the clinic is closed for the day now, so too late to find out. but they usually do mole patrol follow ups on Friday, so I'm sure they'll call tomorrow.
I know it's not really a silver lining or a bright side - but I feel so much more ready to be pregnant now than the first time. I had that 6 month window and I got everything sorted out - teeth, jabs, house, lost 5kg, and am so much closer to my husband now. There is no way I can ever convey to anyone else just how special it feels to have had this journey. OK, so it mostly sucks, and I wouldn't wish it on anyone, but I am SO proud of the way our family has emerged from it.
Hang in there Cookie! We're cheering for you!
Hi Girls
Just wanted to share my excitement - finally at the end of our 6 months and have been given the all clear from the OB to try again. Terrified as there is no way of preventing another pmp but trying so hard to be positive.
Day 2 of cycle today so counting down to O day and trying to eat well, exercise etc. Might try the boy diet - lucky I love bananas and apricots!
Hope you are all well - Snugglybean I hope you had a great time in Japan and maybe a BFP by now?
Cookie I hope the time is passing as quickly as possible.
Looking forward to bringing you more good news soon.
tac
tac - that's fantastic. It must be exciting, yet rather daunting. I'm sure you and Snuggly are sailing a very similar boat right now - you''l be able to give each other some much needed support.
I'm unfortunately going the other way. I found out a few days ago that my hcg's have started going back up. Which I find really ood, considering I got my first AF in 6 months 2 weeks ago. They're making me do another weekly test to make sure...but it looks like I'll be requiring some form of medical intervention. Not that anyone will actually tell me anything. That's one of the things I've found the hardest. My GP doesn't know anything, my OB doesn't know enough, and noone at the Women's mole clinic who actually knows anything is actually willing to talk to me!
oh Cookie i'm so sorry to hear that. i can't imagine how you must be feeling - devastated, angry and frustrated i'm sure. funny how nobody else ever seems to think these things are as serious as they are to us. i really hope you get some answers soon, and that whatever treatment you need happens quickly and effectively. maybe a support group would be helpful - sometimes the clinics run them.
tac
Oh, no, Cookie, that is the worst.
It really sucks when you're not getting told anything - when we found out we had a PMP, we were very underinformed too. I remember the feeling. The midwife who manages molars here never called me when she said she would. I ended up writing a letter to their management and things improved, although nothing was ever said to me about the letter. Yell at someone if you have to (I'll do it for you if you like!)and find out what's going on. Alternatively, drop the phrase "well, if you can't tell me, I'll just go home and google it and terrify myself." Keep us posted on what happens, love, plenty of people are here for you.
tac - :dance: yaaaaaay for your all clear! No BFPs here yet. Had a big scare while we were in Melbourne on the way home from Japan, but that was all checked out and I got my all-clear. So, we're trying, but like you, pretty scared! Good luck.
I keep expecting them to call and say, "you need methotrexate, you're coming in on Friday" which would lead to a large argument - my best friends are getting married that day - but that's just the way things seem to be happening at the moment, everything is just picking the worst possible timing.
I'm slowly developing a group of people who are going to start screaming at doctors for me - I can just see us standing outside the womens, with little protest signs...
Had a sudden surge of ewcm over the last few days - either levels are surging and my body is simulating another pregnancy, or it was the big "o". I'm trying to remain optimistic that it's the second! Get my next lot of results on Tuesday - maybe somebody will tell me something then!
There's nothing like Dr Google - I actually used that to figure out I was a molar when I was about 5 weeks, but noone would take my concerns seriously back then!
Hope all your ttc boats are sailing smoothly...
How are you going, Cookie, lovely? Thinking of you lots :hug:
OMG - I got this letter from Monash Medical a few weeks ago,
"A Consultation has been arranged for you in the Gynae Oncology Mou Clinic. On: Wed x March. Arrival Time: 10.30am. At: Outpatient area. If you are unable to attend this consultation, please call phone number".
?!?!? I spoke to Royal Womens, who were quite surprised considering they are the only hospital to have a molar registry, and they knew nothing about it.
I called up, and after about a week of phone calls, found the number in the letter was not the number I needed to call (:angry:). Found the right person, eventually. I was told that Wednesday mornings are THE ONLY time I can have an appointment. Someone in the Oncology dept referred me (I've never seen anyone at Monash before). I was also told that I *had* to attend the appointment because I needed chemo. Which got me fired up, as I pointed out on the phone, I'm being treated by the Molar Registry, and they don't seem to think that I do at this stage. So I cancelled the appt.
I've commented before on my frustration on not being about to get straight answers and not knowing what is going on. And it just gets worse. Apparently NOBODY is actually managing my case, there are just a whole bunch of medical professionals who are taking a little piece of the pie and not talking to anybody else!
I'm at the point where I'm thinking of writing an angry letter to the Health Minister, maybe HE will be able to just put everything on a straight line for me!!:protest:
/end rant
How are you going my snuggly?
Honey, totally do write letters to politicians. Your local and any others. At all levels. Nobody can fix anything if they don't know what's going wrong.
So how are things going with the Molar Registry? Good news that they don't think you need chemo - what are your levels doing?
I'm fine. Shagging like a banshee on CD 16 :D
Hey Cookie, I got my :bfp: Six months and one week after my official zero. I have been crying like you cannot believe - happy, excited, scared as hell.
How are you going?
Snugglybabe, I found out about a week ago that my cousin (who gave birth to her first a month before we started trying) is now pregnant with her second, and I was absolutely devastated (I know that's terrible...). I popped in to see you message, checked your signature, and went "OMG - is that a new date?!" And can I just say, that for you, I am so genuinely thrilled (and not just because I want good stories from PMP survivors)! :loveshower:
My world - I'm half way through my first cycle of Chemo. I have to keep having cycles (4 shots per cycle) until I hit negative, and then have 2 more cycles after that just to be on the safe side. So at best, I'll have 12 shots of the stuff. Then I'll have to wait at least a year before deciding if I want to try again. As much as it sucks, on the bright side I can possibly see an end to all of this now, which I've been waiting for since I found Peanut had died in October.
I've learnt a few lessons, about how something like this can strengthen relationships, and at the same time destroy others.
But OMG - my angel snuggly is UTD! I'll use you to be happy for a while, rather than wallowing in my own pity!
:hug::loveshower:
cookie- im so sorry for your losses and i hope the chemo is going ok, how long do u have left on it? i hope the year after it all goes quick for you.
snugglybean-a bog congrats to you! That’s fantastic news, how far along are you now?
me-im sorry i haven’t been on for a long time, i lost the website. i am now 29 weeks pregnant and everything is going fine. Since last being on my fiancé and i split but we're doing ok. Life just keeps throwing curve balls to see how we cope i guess. i hope you ladies are doing well and hope to hear from you all soon. There is a website i use, and there are so many ladies in our shoes. if you would like to chat to other mums, the website is birth.com.au, there are ladies from all over the place there and they are all a great support. Anyways best wishes to you all.
Hey cj's - thanks for dropping in with your news!
Cookie - how are you managing? Fingers crossed that the chemo works swiftly!
I hear you 100% on strengthening relationships. I cherish the time we spent during our 6 month wait so much. Particularly so because we're in Brissy at the moment and all our families and long-time friends are interstate, so we really had to rely on each other and reach out to our other friends for support. It has, somehow, made our lives richer.
Big hugs to you :hug:
Hi CJ - Haven't seen you before...
Chemo sucks, I don't recommend any of you try it. I guess the process itself isn't too bad...but the side effects, oh my! I have mouth ulcers. I have a throat infection (not so much the Chemo, as my bodys' new-found inability to fight infection) and it is PAINFUL! My eyes are dry/itchy. I sit around at work with my head in my hand, or even better, behind the wheel driving home, and think "would it really be sooo bad if I just had a little nap right now?". And that's not to mention all the cramping down there that we normally only get once a month.
I've finished my first cycle of Chemo, so I've got atleast 2 more cycles depending on how my blood test goes Saturday. It's supposed to start again on Monday, however I suspect it will all get put on hold until my throat clears up, and liver function returns to normal. another delay before my life can return to normal - awesome. :doh:
I keep trying to think of all those who have managed to fall preg after a PMP - although I haven't found many who have after chemo - but then I sit back and think "I don't think I can go through it all again", and part of me is trying to get used to the idea that I will never be a mum.
Hope you're feeling nice and pukey there Snuggly - when I was preg with Peanut, medicos would comment that I was lucky not to have ms - I shook my head and said that I wanted it, give me more of an idea that everything was ok.
Hope things are great with yours too cj's mum!
xox