endo plus more

[ekh]

Hi. I'm only 20 y.o. but had my first treatment for endo over 2 yrs ago and am due for another lap in a few months. i don't remember the last time i felt 'healthy'. My problem isn't just the heavy periods and pain and all of that fun but also constantly feeling sick, vomitting, blacking out, lethargy. I have been told by many GP's that this is caused by the endometriosis. I am also having trouble with my sex-life. After intercourse with my fiance I am struck by a burning sensation that is so strong it makes me feel ill. The doctors are also blaming this on the endometriosis. Sometimes I feel like they just use the endo as an excuse because they don't really know. Has anyone else had these symptoms or have any idea what could be going on? I've tried many different pills and also had a stint off the pill altogether. Any information would be appreciated!
Thank you

[KJS07]

Hi

I am newly diagnosed with Endo and yes, I experience the same sensation after sex. Sometimes worse than others. It usually lasts a few hours. I am not sure if it is related to the endo or not. I find that using a lubricant has helped. Also make sure you go to the toilet before and straight after intercourse.

hope this helps.

[Cassius2]

Hi there!

I have suffered from Endo and all its 'joys' for quite a few years as well. i too suffered a lost sex drive simply because of the pain. and it totally sucks, so i hear ya!

what other strategies are you using to try and ease some of the symptoms? i found for example that if i had decaf coffee around the time of AF and ovulation that the symptoms would be less severe.

also many women with endo have INSANELY low iron levels. which usually accounts for the lethargy and blackouts. i take quite a large amount of iron with vit c (i think my GP prescribed 3 times the normal dose ). i recommend asking for a BT just to check what the levels are doing...

there is a thread on here that discusses some of the 'alternative' therapies that ppl have used to complement traditional methods of treating endo. it is commonly known that endo is something that is in fact, only manageable, rather than curable through traditional medicine. i think you are right in that many in the health profession just fob off the symptoms and treat it like no big deal because it is caused by the endo, and therefore not much they can do. not realising the huge, physical, emotional and social impact it has on us that suffer from it.

I decided to take myself off the BCP simply because my FS at the time told me that it is good for pain management only and exclusively because it masks the symptoms. i felt uncomfortable with that as i wanted to know what my body was doing and how bad the endo was getting ITMS. it wasnt pretty, but in a way kinda made me feel like a had a bit of control back. I also saw a great homeopath when i was in italy visiting family, that specialises in fertility and all things reproductive and i can attest to that method of working wonders...might be something worth considering?

wishing you all best xx

[rmanwa01]

Hi there,

I've been treated for endo for the last 6 years and have suffered painful sex like most of you. However, I have recently found out that my uterus now tilts backwards due to the endo which is causing all the pain I am having.

Perhaps something you should ask your doctor about.

[ekh]

thank you for the replies, it's amazing how strangers can help you to not feel so alone. i have previously had low iron but at the moment it is under control after an iron infusion. hopefully i will see some results after my lap in feb. but i just keep saying "what if"!