I've been told my beautiful baby boy has Alpha 1 Anti Trypsin deficiency which is a genetic disorder (not sure which side it's come from). He's had stacks of blood tests, and have been told the latest one will be at least another 5 weeks. It's been sent off to a specialist at another hospital, who has forwarded it on to someone else. I haven't been told too much by the doctors and am starting to get worried.

I've read up about it on the internet, and while it can be not too much of a problem, it also appears that it can be quite serious. The longer it gets dragged out, and passed around, the more concerned I'm getting.

Just wondering if anyone else has had a baby (or knows anyone) with this diagnosis, and how they're going and how you cope/d?