I apologize if this is not the correct forum for this post but I am looking for some advice. My cousin has just had a little girl, Sianna, in April who was recently diagnosed with Cystic Fibrosis. I have started reading up on it as I am not very informed about the disorder but would like to respond to their email and offer some support. The problem is that I am unsure how to put that into words or of how we can assist them. I am encourage by the reading I have done but I still know that this could be a very difficult journey for Sianna and her family. If anybody knows more about this and has some advice as to things we could do for them that would be helpful, I would very much appreciate that. I just really want them to know that we are here for them. They are trying to be positive but have expressed how hard it is for them to come to terms with the fact that their daughter might be faced with a shortened life and how they are struggling to see past the worst case scenarios at this stage.

I really hope I have not offended anyone with this post.