Ectrodactyly

[mad4e]

DD was born with Ectrodactyly in both feet
was wondering if anyone has this condition or knows of anyone who has it, as DF and i would love to meet people in the same situation as us.
TIA.

[~TT40~]

Hey, ijust had to google to find out what it was (id heard of it but didnt kniw that was its name). is it just her feet? Or her hands too?
Nothing here from me except a big hug and support however you need it. =).

sent via my vortex manipulator

[mad4e]

Just her feet, but she is missing a fingernail on one index finger. she has to have some X-rays done once she's off the cpap (FX it will be by tomorrow arvo)

[HotI]

Not me, but a mate i used to swim with did. She has some surgery and some were left alone.

P.S. i love your daughter's name, just beautiful.

[Charlotte91]

Couldn't read and not post a massive massive

Thinking of you, sweetie.
xoxo

[~Kim~]

mad4e, if you contact the Kids Hospital at Westmead, I'm pretty sure they can point you in the direction of a support group. They definitely used to have one.