I feel abit trite posting this in here when Jessalyn's in hospital after such a serious operation..but I wanted to update on felix's sitution too, which is pretty good ATM..

We had a specialist appointment yesterday at the RCH, with Dr Francis.

He still has his inflammation (crackles) in his lungs, they have moved around, but are mild ATM which is great.

He still has some recession and increased breathing rate. Dr francis said the in the next 4-6 mths I may notice him becoming breathless when he exurts himself physically. He will either stop himself or I may need to sit himdown and let him recatch his breath (it will just look like over exurtion)

The good news is being phyisically fit will be good for him, so he can play all sport including going back to swimming in the summer!!

WE are down on the waiting list for a sleep study in the next 4 weeks which will be to record his oxygen levels overnight and see what is happening whether he needs to be on .5 litres or can drop down to .25 litres..or not at all (which would be cool)

Talked about the sleep apoenia and he took it more seriously and said he has large tonsils that obstruct his breathing, it is not connected to his chest problmes, but he's going to keep an eye on it.. hbecause Felix snores too..

The decison not to medicate still stands while he is going well, he has a minor cough which hasn't developed so it is great that it has't gone further..

Anyhow so very good, now all we need is a weight gain (I don't count the scales in brisbane because they are grossly different to our base scales at the GC hospital) and we'll be cruising!!