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OLEM great to hear Olivia's surgery went well, but I'm so sad to hear about the following days, she must be so tough, but it must be so heartbreaking to see her in so much pain! FX the next two are a lot better. I hope you're getting more and more smiles each day! Love that Olivia loves the socks on your arms, that's so cute!
Go Emily! Brace only at night! She must be loving it!
Hi ladies,
Olem - hugs for you and Olivia! she sounds like such a brave girl! I'm glad that Emily's treatment is going well. My heart goes out to you and your two girls :hug:
It is so nice to hear about everyone's progress.
There is another little bub with hip dysplasia in my tiny little rural community - who wasn't diagnosed until 8 weeks, and another (12weeks old) being investigated. I still can't believe how many children there are with this problem, I had never even heard of it before our DD. I mean I had seen kids in the plaster, but didn't really understand what for of how common it was. I think it needs to be more widely known and someone previously mentioned ultrasounds at (well soon after) birth. I am going to be demanding one if we have another. At least with our DD she went in her harness right away.
Well, DD now likes to bath and splash her legs. She seems to kick her legs more than she uses her hands - I guess it's still novel for her LOL! She still sleeps in "frog leg" position (after being out of her harness 7 weeks), and still isn't much interested in trying to roll or spend too much time on her tummy, I think because she can't kick in that position.
Our review is in March, and I hope everything is OK. Has anyone had their little one "finish" treatment only to have to recommence treatment again?
milly I'm with you, we'll be demanding an ultrasound at birth as well- I wonder if you can find out beforehand??? Especially considering it wasn't picked up for so long with Jacko (12 weeks, and because I knew something was wrong and asked for an ultrasound), and he doesn't really fit the bill except for a difficult birth. Glad we picked it up at 3 months and not 3 years though. Good luck with your review- it's creeping up!
We have Jack's 6 week appt on Tuesday. 6 weeks in his DB, I can't believe it's gone so quickly! It seems to have gone way faster than the 6 weeks he had in pavlik! He doesn't need ultrasounds anymore apparently, we just go in for an xray now. Does this sound normal? It's hard not to get my hopes up about them extending his harness free time, but I know I should be prepared for anything. He can get his toes in his mouth though, so that seems like a good sign that he has good rotation at least?
One thing that is bugging me about the brace is a small bruise he has just below his ribs that I'm sure is caused by the waist strap. I don't know when it's happened, but I can't imagine it's been caused by anything else. Have any of you experienced this?
Hope everyone's hip bubbas are going well and are happy :)
From what I have been told, is routine once you have had a bub with hip dysplaysia to scan any subsequent children before they leave hospital or within the first week (breech babies are normally routinely referred for a scan too) - with this one I will be making sure get scan as soon as possible (I am hoping it is a boy as chances of hip dysplaysia are reduced if so) - I have also been told that any children DD has will also be routinely scanned. I don't think is possible to tell beforehand because the hips have to be at a certain angle for them to tell in an ultrasound and I can't see that, that position would be possible while still inside.
Krystals - moving from ultrasound to x-ray at around 5-6 months old depending on bubs size sounds normal to me - that is what happened with my DD - apparently once bubs are a certain size due to amount of tissue need to see through can't get accurate results on the ultrasound.
Krystals - x-rays from around 5 months is normal. Once bubs starts developing bone the x-rays are more accurate and ultrasounds can't pick up as much detail.
As for us - Emily is no longer in her brace at night, but no results as yet as she isn't having another x-ray for another 8 weeks. She has started commando crawling and is trying to get into everything.
Olivia is going really well. She does get irritated about the spica and often says she's all fixed and it's time for the doctor to take it off. She can get around on both her belly and her back in the spica and has even got herself up onto her feet twice. I'm so glad this summer is quite mild as she hasn't been getting too hot. Which I'm sure is helping keep her a little more comfortable than if we were having a typical summer. Two weeks until she has her spica change, yay.
Guess who's brace free during the day!
When we were in the doc's and she said he only needed his brace at night my response was 'Are you sure???' I thought she was talking to the wrong person! Is it wrong that my first thought was "YAY he can wear pants!!!"? Am very proud and pleased and excited. Next check up isn't til May.
One thing the doc did mention is that he still might need the brace for his day naps as well. That's fine by me! I really thought the treatment was going to stay at one hour free a day. WOW!
Does anyone know if hip kids can use a jolly jumper when they're not wearing their brace? Or while they ARE wearing their brace?
Hi Krystals - we let DD use her jolly jumper while in the brace. She didn't really bounce around in it though, more turned around to look at things from a different angle. We never had her in it for very long, but it was nice to see her able to be "standing" somewhat.
Thanks PacRakMG, we've decided not to get one, we're not so much worried about the jump 'up' but the landing. Over-protective much? LOL
Hey I've got another question to throw at everyone- How did your kids go falling to sleep without their braces??? Jack's been out of his during the day for just over a month and he's still wearing it for naps as well as sleep. I'm noticing he won't sleep without it though, whether we're out and about OR when we're at home. The out and about could be something unrelated (he's way more interested in what's going on!) but I'm pretty sure his probs at home are about me trying to put him down without his brace. Any thoughts or advice? He's in the brace at night until at least May, so no rush, but would love to know how you all have gone x
DD wore hers for about 6-8 weeks just at night after got the all clear to take it off in the day - probably the first week without it on at night she was more unsettled than previously, but after that was ok overnight until she worked out how to stand up in her cot, which led to another week or so of unsettledness. She was always in sleeping bags and I think this helped with the sleep association - I know at one point I had to start putting her in a sleeping bag for day sleeps too and that seemed to help.
thanks wysiwyg (it took me forever to figure out your name! LOL) Jack uses a sleeping bag too, so I'm wondering if he still has the bag, but no brace, he'll do ok. Maybe when he's missing both, it's just too much for him. Still a way off yet, but interested to know what everyone's experience is :)
Hi ladies,
I just wanted to share our good news - DD had her review 3 months after coming out of the pavlick, and all is good :cheer: she just needs to go back for review when she starts walking! (? in about 6 months or so???)
I had been so frightenend, almost expecting the Dr to say she would need more treatment, it was such a relief to hear that she is OK!
The doctor is not concenred by her slowness with rolling etc, and said it was to be expected having been in the harness, so that's also a relief.
just catching up on posts now ...
krystals - I haven't heard about a bruise, but DD still has a dry patch on each leg from the velcro rubbing on her legs from the pavlick. I think it has caused a scar for it to still be there after 3 months.
wysiwig - thanks for that info re scans and xrays, very helpful.
Olem - how is Olivia going now? she sounds like such a brave and strong little girl.
:grouphug: to all the HD bubs and their mums!
yay!!! that's such great news!!!! you must be so relieved!
How old is your little one? I'm sure once she gets moving it'll all come soooooo quickly!
Thanks for answeing about Jack's bruise, it went away after a couple of days, no problems now!
But mostly I wanted to post.... YAY!!! Great news! :)
Hi everyone
Olivia's journey has moved to the next stage. She had her spica removed last week and is now in a Rhino Cruiser. Having the spica removed was terrifying for her and she has had a lot of trouble getting over it. She has been very unsettled at night and misses her plaster. She is slowly getting more movement in her legs which is improving her mood and as the stiffness and dry skin reduces she is also becoming a little happier.
The surgeon has decided that Olivia shouldn't have to wait 6 months between her next two operations. He is hoping he'll be able to operate on both hips at once, but if he can't he'll operate on the other hip at the 6 weeks spica change. He is also 90% happy with how Emily's hips are developing so she is still brace free for now.
Olivia will have her next operations around her 3rd birthday in 3 months time and Emily will have another x-ray then.
I hope everyone is going well. It's great to hear that some of you have come to the end of your journeys and your little ones hips are developing well.
Hi everyone,
Yesterday I was reading your thread and now I am starting to worry about my 12 month old DS2. He has very assymetrical creases and when he crawls he points his right foot sometimes in and sometimes out (if that makes sense), his left foot always points in. He also refuses to walk while we are holding him. He crawls very well and very fast and is confidently cruising and climbing up on things, so I wasn't worried when I noticed the uneven creases a while ago. But after reading your posts I realise that I might have undiagnosed hip displasia myself as one leg is longer than the other and I do have a very definate clunk in my right hip. So now I am getting worried about DS2. I have booked him in with the GP, but the earliest appointment they have is the second of May (country town). I guess my questions are if I should push for an earlier appointment and if anyone has any experience with hip dysplasia diagnosed at 13 months and what kind of treatment we might be looking at? TIA!
Hi everyone,
It has been a few months since I last wrote a thread, so I'm not up to date with everyones progress but I hope all is going well for you all.
Emma has an appt with the ped ortho surgeon on thursday and hopefully he will discharge us from his care if the x-ray looks good. I have everything crossed as I don't think I can cope with her having more surgery and being in that heavy cast again! Emma is now walking and developing just like all the other kids her age in our mothers group, it is such a massive relief to see this!
Esme- I hope your concerns about your son's leg creases etc turn out to be nothing at all. You are doing the right thing by getting it checked out. My daughter Emma had uneven leg creases and that was the only indication we could physically see. Has your maternal health nurse ever checked out your son's hips for clicks? I would keep your appt for the 2nd of May unless it is really worrying you, like they say "mother knows best"! Let us know how you get on. Best of luck :)
If anyone would like or knows of anyone who may like a spica chair and table set for their child please let me know, my dad made one for my daughter (6 months old at the time) whilst she was in a spica cast. It enabled her to sit up and play with her toys safely and was also a great way to feed her as she didn't fit in a high chair. My dad made 3 chairs/tables and hired them out but now he needs more room in his shed! I have pic's that I can show anyone that is interested.
Hi All,
Can I join this group?
DD2 has been diagnosed with hip dysplasia and has appointments at the children''s hospital at the end of the month.
In a coincidence, and perfect timing (if these things can be perfect), the carers at daycare pulled us aside today and said they've been watching DD1 walk and run and think she might have it (and they didnt know that DD2 has it). We also noticed the tippy-toe limp when she walks but until recently thought it was something she was faking or copying from some other kid, becuase she never showed any pain.
So I called PMH and they said to get DD1 referred too. They also asked about my own hips - and yes I've been having hip pain in my adult years but just thought it was because I've been fat - and said that becuase of my family history of hip problems (both Mum's side and Dad's side) I should get xrayed just in case.
So...what a journey!
Edit: PS - if DD1 has it, what happens? She's 2 on the 29th so obviously can''t be put in a Pavlik harness.
Hi Angela,
It's been a while since I've posted in here, but firstly :hug:
To be honest, I'm not sure how they'll treat DD1. Kids can walk in the brace, so there might be one to fit her, if she needs it. I guess it will all depend on what her hips look like.
My DD was seven weeks when she went into her brace. The first brace they go in, for the first four weeks it's about getting their legs adjusted so they splay out, so if they're lying on their back on the floor, their legs are splayed out and touching the floor. Kind of frog looking (I'm sorry, it's not the nicest example). We had weekly adjustments to get DD's hips to this point, they can't force it in the first week, just do it gradually. Having them adjust to a brace in the first few days is absolutely heartbreaking and hard. All I wanted to do was take it off, it would make her distress go away. But I couldn't. DD's hips were bad, she was in the worst 10% of cases. At this point, the advice I can give you is to have lots and lots and lots more cuddles. Snuggles and skin on skin contact. PM me any time, our "journey" was a long one and I personally went to hell and back, so I'm here if you need a shoulder or someone to shout at. Massive :hug:
Oh, big hugs from me too Angela xxxx
It can be really hard, and I think the most difficult part for me was the time before I knew what was going on. You get all sorts of 'worst case' scenarios going through your mind. So big hugs and reassurance, that everything will actually be ok. Most probably different. But you can do it x
I'm not really sure what they do for older kids- there might be someone on here who knows (OLEM?). Well done on your DD's carers noticing it. DS was diagnosed at 11 weeks and so went into a pavlik. The first couple of days were awful for me. He adjusted way better than I did, but still spent a sooky day sitting there in his harness with his bottom lip almost down on the ground. Bless. PM me anytime, know you have support xx
Jack went in for his check up last week, he's in the DBB at night for another 3 months at least. He's not walking or crawling yet, so Dr Little said he wants to wait until there's that blood flow in there that will harden the bone. I'm ok with that, at night is easy peasy- in fact, I'm worried about when he comes out of the harness at night, I think it's part of his sleep association now!
I AM a little worried he isn't crawling or moving forward yet, especially combined with the fact that he doesn't roll. I've seen him roll, but maybe half a dozen times. I might call his physio and ask a few questions I think.
I've just put together a little FB album of Jack in his pavlik and DBB, in the hope that it'll help other people who are finding out their bubbas are going into the harness. It's HERE
Hi ladies,
This is my first time so bare with me!
I am the Mum of a beautiful 14 week old baby girl, Emma. Emma was diagnosed with "clicky hips" at birth. We knew to look out for it because she was breeched and I have a family history of the condition. Although we were aware of the possibility I was not prepared for how heart breaking this process has been.
Emma went into a Palvik harness at 2 week old. It took quite some adjusting but we got there and she adjusted to it quite well. We then had a ultrasound at 8 weeks to discover her right hip was still dislocated completely, her left is thankfully in place. She was then put into a fixed brace, which again took quite some getting useto. We had another ultrasound this week to discover that the right hip is still not progressing well. The Dr has given us another 4 weeks bonus (well that's what he called it but I'm not totally convinced) before we have another ultrasound and x-ray. If at that time it still hasn't progressed enough she will have the operation and go into the spica cast.
I was completely shattered by this news as I thought she was progressing well. She is much more settled and her legs aren't coming up like they useto.
Emma is now into her second brace and she no longer fits into our car capsule. I went car seat shopping but discovered that she wont really be able to fit into a car seat either. The capsule because her legs are too far apart and the car seat because she can't bend and her legs don't bend. Has anyone else come across this problem? Any suggestions?
I'm also open to any other suggestions/advise regarding the condition. I have found it hard and people don't really comprehend just how hard it is to watch your baby go through this. Plus, the thought of the operation and the plaster scares me sooo much.
Hi StaceB and welcome to BB.
My daughter also had clicky hips at birth and went into her first brace at 7 weeks. She was in that for 4 weeks, it didn't help her so she had an open reduction when she was almost 4 months old and went into a spica cast for just under 6 weeks. From there, she went into a rhino cruiser brace until she was almost 11 months old.
Our car seat remained the same. We have a safe and sound meridian which took her from birth, and she's still using it today (she turned 2 in March). There is padding in the seat that can be removed if needed. While she was in the spica, she didn't quite fit into the seat, but we were shown at the hospital how to bulk it with blankets. It wasn't ideal, so other than her surgeon's appointments, we pretty much stayed home. You can also get an extension strap for the car seat, to make her seat belt longer. We got ours at the Royal Children's Hospital (we're in Melbourne).
The operation was the most scary thing I think I've ever been through. The night before, I sobbed and sobbed, so frightened. We had a great surgeon and a great anethesist who had all the time in the world for me. They kept us informed throughout the surgery, with the anethesist coming out to us as soon as it was all over and our daughter was heading into recovery. One week after surgery, they have an MRI to make sure everything stays in place. One week after that, there's another x-ray and then we were left alone until the next step - back into the operating theatre to remove the spica (if all has gone well) or to replace it (if there still needs improvement).
Living with the spica isn't fun. It's heavy and bulky and after a little while, it really smells. We used newborn nappies with the tabs cut off, that slips into the gap that is left for you, and then a larger nappy goes around the spica. To clean up those nasty poo explosions, we used long stemmed cotton buds. The hospital gave us a special tape to stick on the edges of the cast to help protect it, and to protect bub's skin. We were told to make sure she wasn't on her back all the time to avoid bed sores, but there have been some others in here who haven't been allowed to give baby tummy time. We bought a bean bag to prop her up in for her to be comfortable.
It is horrible. But there are wonderful upsides. DD can talk amazingly well. We've put it down to her being unable to move around, she concentrated on speaking and learning. Everyone comments on how well she can talk. She knows the alphabet, she can count to 22 and recognises the numbers when we write them down and out of order. Today she told me off because she asked me to draw a 7 for her, I drew 9 and she said "No, try again!" At 14 months old, she could say over 100 words. seeing her learn to roll over in the brace was amazing. Seeing her learn to walk - well, I was beside myself. So yeah, it's a tough road while you're going through it, but it's amazingly sweet when you see them do the very things that you're convinced will never happen.
I found a huge amount of support here, total understanding and I found someone who has become a great friend too. And you're right. Until I started writing in here, nobody did understand and it was a lonely road.
Ask away anything you like, there's plenty of us here who will be happy to help. All the best :hug:
ETA - Krystals - how's Jack going?
Hi StaceB *hugs*
We also have a Safe and Sound meridian and have heard of other mothers who have used them :) It's tough road hun, but always know that you're doing the best thing for Emma (beautiful name by the way!). There's actually a great Facebook page for DDH- PM me if you want the details anyone! and there are heaps of mums and dads with some handy hints and tips with kids in all the different types of braces and spicas. This thread and the facebook page have kept me sane!
PacRakMG- thanks for asking hun, Jack's doing great- like your DD he's a lot more advanced in his communication than alot of his friends who are all running circles around him! LOL He's still in his brace at night, and will be until at least September, but we're fine with that as long as it's still doing it's job. We took him to the physio and she's not concerned about his lack of crawling or walking yet- but she is worried that he doesn't roll. I think it's actually because he's so bloomin' cruisey that he's happy in whatever position he's in, but now we have to practice :) In short, we're doing great x
PacRakMG - Thank you so much for your words. It was so nice to hear your story and to know that after all the horrible times your little girl does exactly what she's suppose to, plus more by the sounds of it (very impressive vocab for someone so young).
I haven't been explained much about the process with the cast and operation so your information/advice is wonderful. Atleast I now feel alittle more prepared (well as much as I can be anyway).
I had been looking at the Safe and Sound Meridian car seats so you've just helped me make the decision to go down that direction.
I am sure I will have plenty of more questions for you.
Krystals - Thank you also for your words. I will defiantly PM you regarding the facebook page. Just reading other peoples stories has really eased my mind about all this. :hug:
Krystals - It's amazing how much they learn to talk isn't it? Glad Jack's doing well. DD took a long time to learn to roll too, but she did it in the end, and in the brace too. She could roll in the brace before she could roll brace-free. Maybe she felt more secure giving it a go that way, don't really know. He sounds like he's going great :)
StaceB - Just had another thought too - our surgeon's office had a list of people who had been through it previously, that were happy to talk to people who were about to go through it. They got permission from their previous patients to hand out phone numbers for a support network. Your surgeon may have the same thing set up. Another thought - We bulked up on larger sized jumpsuits and pants. I didn't want to look at the cast, and I knew the clothes we had wouldn't cover it. So we bought larger jumpsuits and leggings, bigger socks too, knowing that if she didn't need surgery, the clothes wouldn't go to waste as she grew anyway. :hug:
StaceB, just realised you're new!!! You won't be able to pm me- HERE is the link to the FB page. I'm there, feel free to add me as a friend.
Oh, and the larger suits are priceless!!! Jack only went into a pavlik but the thing was so stiff and his legs were obviously so wide that even though he was only 3 months old, we had him in a size 2 for the first couple of weeks until the harness softened. Ebay will have some good bargains :)
Thanks again ladies. What a great idea about the bigger sizes. I did find the same thing with the harness but I'm going to have to do that again.
Krystals - haha I was wondering how I PM on here! I've found you on FB and the group. Thanks again.
PacRakMG - I will defiantly ask the surgeon for names of people in our area (I'm on the Central Coast). I've also ordered the safe and sound car seat today - I can see what you mean about having to pack it with towels etc.
Hi girls,
Think I'm about to start the hip displaysia rollercoaster! My ds2 is 14.5mts and the last few weeks especially I've really noticed him limping and doing a LOT of falling over. I've been taking him to chiro who have said his right leg is 2cm longer than his left, appts haven't been helping him with walking and falling over less plus his right foot is quite turned out. 2 diff chiros there have suggested I get an appt to a paed to get him checked out sooner rather than later. My neighbour who is also a physio has said the same thing.
Poor little guy, I feel so terrible I haven't noticed anything until now. :(
Does anyone have any suggestions on what I can expect with him being older? He's such an on the go boy putting him in plaster is going to knock his world about for sure. :(
Oh, also, does anyone have any recommendations of who to see in Perth? Thanks! :)
:hello: Hey ladies. Just popping in as DD was diagnosed today. Still feeling overwhelmed but I'll be back later to post more :grouphug:
How are you going, PZ?
HI ladies,
our DD is due to go back to orthopaedic surgeon for review now that she is walking. (She was in a pavlick from 4 days old for 3 & 1/2 months). I am a bit worried as she throws her left leg a bit, and her left hip was always her worst. Her appt isn't for another month, so I guess I just have to wait and see.
How is everyone else doing? it has been very quiet in here.
Hello Hip Experts,
DS is about 2 weeks old and I have to take him for an ultrasound on his hip in a month's time. They said it's clicky but not dislocatable. I don't really understand what that means and whether he's likely to need a brace. If he does, we'll get through it so I'm not super stressed - but I was wondering if any of you experts could shed light on this?
Thanks xo
Surprised - Congratulations on the birth of your son! I'm assuming he was diagnosed with a clicky hip at birth? My daughter was the same, and unfortunately they couldn't tell if if was dislocated - only an ultrasound can do that. She was checked by two pediatricians, the midwives at the hospital and our MCHN. The click was there at birth and then again a few days later (before we were discharged from her being born) but then it stopped and everyone agreed that it didn't feel dislocated. The earlier you get an ultrasound, the better. We had our ultrasound done at 7 weeks and it ended up being a long road for us. This time around, we're going to get baby checked at 2 weeks. A brace is usually used for a dislocation, so if your son's click turns into nothing, then he won't need one. Good luck!
Milly - Good luck with the check up! The first one for us was the most horrible, was convinced we were going to need further treatment. We didn't. Hope it all goes well :hug:
Hi Everyone,
Its been a long time since Ive popped into one of these threads. I was just wanting to pick your brains and hopefully some of the recovered babies parents are still around to help answer this one.
Many years ago DS was diagnosed with moderate bilateral hip displacia. It was corrected with harnesses and ever since he has had a yearly x-ray of his hips. I was just wondering if this is standard practice and if so how long it generally continues to? What age? I was under the impression that once it was fixed it was fixed for life, so not really sure if we are needing to follow this up each year? We have recently changed medical practices so not sure if its something that I should mention or not?
Thanks for your time. :)
Haven't seen this thread in ages.
Abigail - DD has yearly x-rays after having her Dysplasia corrected by a brace, not sure how long for, but is my understanding is really just a precaution to confirm is all developing as it should be.
PRMG - after DD experience we got DS scanned at 2 weeks, at that point looked ok was in socket etc but angle not great so had to have re-scanned at 6 weeks, and that looked fine. If I could have organised it I would have had scan done before discharge!!
Thanks wysiwyg. We spoke to the lady who did our 20 week scan and she said to go to the Mercy in Heidelberg and they'll do it there. She said if we get a referral marked urgent, we should have no issues getting in at two weeks old. We spoke about it yesterday and are a little bit resigned to it that we might have another baby with it, but I think it's more a defence mechanism more than anything.
Hi ladies,
I just wanted to share our update from the ortho with DD.
Great news is that her hips are fine. She is walking well. Ortho did say not to let her side sit and DEF no W-sitting (but she doesn't tend to do that). Ortho said she doesn't need to see her again unless we feel a review is necessary (eg - walking unevenly or anything like that) so she is officially "discharged" !! Yay!!
(so in response to the q's about the annual x-rays - can't help you there. DD had one at 6 months, with a u/s at 12 months, but that was it (or it may have been at 12 months and the u/s at 6 months - sorry fuzzy head).
But, the ortho did say that #2 (I am currently pg) is a high risk of having HD.
She said that they would examine bub at birth, and even if clear or indeterminite, they would do an u/s at 12 weeks just to be certain. I asked about doing it before 12 weeks, and she said that if it was "immature" hip development, and not HD (as in borderline/uncertain), they wouldn't be able to confirm it was HD till 12 weeks anyway, if that makes sense.
(and she also said that DD and #2 - especially if a girl - would be at high risk of their bubs having HD)
so, I guess our HD journey is not quite over yet.
Abigail - DS has been out of his brace for almost two years and we go back for our 2nd yearly checkup in May. From what our surgeon explained its common to have yearly xrays for a few years after as there is still so much bone growth and development in toddlers, I'm expecting that we'll have another follow up xray next year as well. When we go in May I want to talk to the surgeon about the risks for our baby girl due in July.
Milly5 - We are having a DD this time, and as the risk is so much higher in girls we will be getting a referral from our paed at birth for a u/s for her at the earliest possibility (I'll quiz our surgeon as above) - eg 2 weeks, if we have to wait longer in the public system I will just go private and pay whatever as if she is diagnosed I want to get on it straight away. DS did not go into his brace until 7 months and I don't want this to happen again if we are unlucky again this time.
Hello everyone,
I'm wondering if anyone has any advice on managing my nearly 5 year old dd who is about to have a proximal femoral varus osteotemy. She had an open reduction when she was 9 months old and went into a hip spica then a Rhino cast. She was also in a DBB and a Pavlick harness prior to surgery. Just to complicate things even more, she is having bilateral trigger thumb releases at the same time. Wondering if anyone can give me the heads up on what to expect. We live in rural Victoria and Hailey is having surgery in Melbourne-4 hours away.
Thanks :)