Jessalyn's Health Issues #2

Shannon... I admire your & your families stregnth & love for your darling wee girl.... I dont think I would cope in your position....

My thoughts are with you & I hope that every day wee Jessalyn improves bit by bit

Shannon- I am sending you the biggest hugs the world has ever seen, I wish there was something I could do, but I am always thinking of you and Jess and things sound good. Lynne is a great resource and has some terrific stories.

You are definitely going to have lots of down days but I am sure that there will be just as many up days. Looking at your darling baby girl's smile shoudl help to brighten your day. As much as it is hard I guess it isn't the best thing to think so far ahead, living each day as it comes and making every day as good as you can is important. And getting as much info as possible will help you I'm sure. the 8 week wait is a long one, but so far so good, keep your chin up. I know sometimes you must feel like things are so dark but I like Lara's attitude, looking at the positives will keep you going through those times. None of us know what is around the corner.

I feel so glad top be here for you and I think it is important that you get out the negative feelings as well as thwe positive. Try to catch up on some sleep, thinking of you
Michelle

Shannon I'm so glad to hear that Jessalyn's operation went well and she is now at home.
Big hugs to you and your family. I'm sure you'll find the strength you need to help her overcome what the future brings. :hug:

That is excellent news that things are still looking good, I understand you have to wait but if your feelings are positive then hopefully that intuition is at work ;)

It is great news that they are keeping it through the children hospital, in my expereince I find it more enjoyable there than my local hospial, apart from the fact it is easier for Friends to acess it! They have great resources at the childrens~!

Good luck at the appointment tomorrow, seems like everything is going ahead as planned which is excellent news! \:D/

That's great Shannon- I hope things stay that way. I agree it is best to stay in the one place for all Jess's stuff, cos at least they are knowledgable about her history then, and the children's is the place to be....!

Best wishes michelle

Great news Shannon! Keep being positive!

Good luck with the app tomorrow.

Shannon,

I have been keeping up with yours and Jessalyn's amazing story of strength and courage.

I want to send you both my love and wishes for a bright and happy future, thinking of you both.

That's great news, Shannon! What a little trooper your baby girl is :)

hi shannon just letting you know im still thinking of you, your hubby & your gorgeous girls - you are an inspiration & i hope everyone is going well for jessalyn :)

All wonderful news, so long overdue, Shannon.
Keep strong & take care
Lindsay, Yvette & Family.

Oh Shannon I am so happy for you and your tribe. :D

Lots of wishes, thoughts and prays for you all, hope things keep going in this direction...up up up!

Yay :confetti: That's wonderful news. I hope her poos stay a nice healthy colour lol.

Hugs to you, Jessalyn and the girls :hug:

:happy4u: :happy4u: :happy4u:

there's one thing to say about the "lows" on this ride... they make the "highs" all that much sweeter.

This is the best news I've heard all day. Enjoy your mini-celebration tonight \:D/

Shannon what absolutely terrific news for you! You deserve a break, so so happy for you, I will be keeping my fingers crossed for further improvements!

Give Jessalyn a big hug and kiss from us!

Best wishes Mcihelle

That is awesome Shannon !!! Great to hear everything is going well for you all at the moment.

Love

Well Shannon- I bet that made your day, and it made mine too, I am soooo happy for you. it just takes a bit of pressure off for the moment.
Best wishes michelle

Oh Shannon, that is such fantastic news!!
I'm so happy that things have taken such a positive turn for you and little Jess!!

Fantastic news!!!!!!!!!!!!

I am so happpy for you and Jessalyn. WOO HOO!

You're right Shannon, just keeps getting better :D

Yay Shannnon!!

That is wonderfulnews, it has made my day too!! Hopefully things just get better and better for little Jess, I can't wait to see some pics of her crawling around (although she's a little young yet ;))

I can imagine things are getting easier to handle now!

Hi Shannon - two lots of GREAT news! (You'd be a bit sick of the drive in to the Children's this week, wouldn't you?) How long before her next liver clinic?

Great stuff - now time for Jessalyn to get on with being a baby again! Grow, little one!

Lynne

It's great to hear some positive news about Jessalyn, you must be feeling so happy Shannon!!

Shannon, much deserved good news. =D> for Jessalyn being such a brave little girl and such a fighter. Love to you, all your girls oh and your DH.

I've just had a marathon catch up session on Jess, I'm so pleased for you all. It must feel so good to get a positive outlook after the last few weeks.
:cheer:

I really hope that things continue this way. :crossfingers:
You are such a special person and so strong to be dealing with all of this and still be able to offer support to others! ( ;) )
Keep up the great work and give Jess a kiss from me!

Shannon, that's wonderful news!! I am so happy for you guys. Very positive news - that's for sure!! YAY!

That's BRILLIANT news Shannon!!! Jessalyn is such a little legend, and she has one VERY special Mum!!

Oh Shannon, I'm so happy that things are starting to get better for you all, Jess in particular. It's so wonderful hearing that all is good and that she is getting better. Big hugs and kisses for you, you're such a trooper, no wonder Jess is too.

Take care

Sending big hugs and kisses to Jessalyn. She's such a little trooper - I'm so glad to hear that things are going so well.

Great to hear the good news =D>

Great to hear the fantastic news Shannon! Keep fighting them Jessalyn - you are going soo well!! :D

That is fantastic news Shannon =D>

great news you guys are having some time out for Jess just to be a baby..I feel so lucky now that we are having so much time to get into other things (and I can focus my energy into eduaction things for him not health things) we still have our appointments all the time , but they aren't as stressful anymore..

Hope things continue like this!

So glad to see you getting some good news for Jessalyn. Here's hoping it continues & things just get better & better for you guys.

Huge hugs to you all.

Awwww Shannon :hug: sorry to hear that things are being drawn out. I guess try to look at the good things though. She's doing so well, and so are you. Great news about her liver and good to hear that Christmas will be without a colostomy, I'm sure that will be good for all of you.

Sorry to hear that you won't be able to go to America, will there be a chance to go some other time?

Take care, looking forward to our meeting next week :D

That's great news about her liver Shannon =D>

I understand how you must have been expecting the surgery sooner but it good that they have her best interests at heart and want her to be bigger and stronger for the op.

Big hugs for you and your little Jessalyn :hug:

I can understand part of what your going through..I guess part of what you might be feeling too is that you want it to be all back on the road to normal sooner than later...I can defiantely relate to that..

For Jess's point of view the older the better, mots babies don't have operations tilafter 6 months for a general, I guess because the risk of complication is higher (the dose of anthesthetsia for a start are so minute for a little bub) obviously if the live condition wasn't a factor then then things would have taken place sooner..

I think you've probably got things settled in your brain now, of waht is ahead (or what was ) that is how I dealt with all Felix's tests, I kind of prepared my brain, by saying"okay just get through this and then it will be okay etc" of course his were only tests and not operations to correct anything..

It's a shame you wont get OS right now, I think your rather game for wanting to travel there with 3 kids myself LOL!! I hope it works out that you can still go at some point..your not being selfish, it's a normal thing to want..shows you have a good coping mechanisms and you are getting on with a normal life..

It is SUCH great news about her liver..I am just so glad for her that something is going her way..that is amazing about the other 2 cases in one weekend..what is going on there?? Do they know whether it's casued by any environmental factors?probably just one of those things I forgot whether it was this that is genetic or not?


Anyhow I'm glad to hear good stuff about little Jess..hope it all keeps getting better and better..!

I don't know about always knowing what to say..but I guess having had a few experiences of a similar type this year I have been able to have more insight into what other parents go through..I always think that of you and Lara, that you say the best things LOL

Ah I think I was confusing it with the Alpha condition that is genetic...I guess things like this must happen occasionally, I too feel for the surgeon..what a huge responsibility for him, to do 2 such enormous procedures.. Felix's biopsy sugeon was amazing too, I have nothing but amazement for these skilled people..

Shannon sounds like there is great news with the liver. At least there will be no immediate concerns with transplants. Thats the last thing you want.

I can understand the 'lets get over with now not later' feeling. But like you said, for Jess its probably better to wait. You have time to get her nice and fat, so she can recover quicker.

I remember when Alana got diagnosed and on the same day another bub did. They were shocked by that, and CF is 1:2500.

Anyway glad everything is going well.

New thread HERE.