Jessalyn's Health Issues #2

Thinking of you all through this trying time xo

Thanks for keeping us updated Michelle...

Shannon, I am sending all every single get well vibe and all of the hugs in the world to little Jessalyn. I hope she is able to recover and heal from this fairly quickly... though what a huge operation for such a tiny little girl.
Thinking of you both heaps,
All my love and hugs,

Shannon I hope all has gone well and that Jessalyn is recovering well also. Big hugs to you both.

Hi girls,
the latest from Shannon is :

Jessalyn slept the day away (thanks to the morphine) which is the best thing for her to do at this stage. I even managed to get an hrs rest. Things look and feel a bit better this afternoon as a result. The big girls (Ziana and Brielle) are doing well but missing Mummy!

So that is good news all round. Hopefully it is a restful night as well.

Best wishes Michelle

Your doing a great job at keeping us all updated Michelle.

Shannon - It is wonderful to hear that she came through her operation relatively well. It is also good to hear that you are feeling a bit better today as well after some much needed sleep by the sounds of things.

Our family continues to keep you, Jessalyn and the rest of your family in our thoughts.

Love

Shannon - another hurdle jumped! Well done Jess. Praying for a speedy recovery and the best possible prognosis.

ps hubby thinks I've developed a secret addiction because I have to come and check for updates on Jessalyn every couple of hours.... I explained it all to him and he now sends his best wishes.

pps thanks Michelle for passing this info on to us

Oh that is wonderful news that she is doing so well!

Poor Shannon- I can imagine her on the parents fold out bed, I hope they gave them a single room..so she can at least sleep properly when she is able to sleep..Poor little Ziana and Brielle must be hard on them too!

Thanks again for the updates Michelle, you are doing a great job!

Great news! Jessalyn is such a brave girl.

Great news Shannon, we are all wishing the very best for little Jessalyn...

Shannon, that is wonderful news. I hope you're able to give her a feed as soon as possible. Poor little bubby - big scar right across her belly I hope that Jessalyn is one of those that can take her liver right through to 20years++.

Hugs to you all Shannon, particularly little Jessalyn and of course your big girls at home.

Pleased to hear Jess came through the op well. Can't wait to hear the news of her feeds.

xx

I`m so pleased that Jessalyn is recovering well. Sending you lots of love and hugs and as each day passes Jessalyn will get stronger and stronger.

Take Care

Deeanne

I'm really pleased to hear that Jessalyn is doing well. I am sending her all the get well vibes I can muster, and am sending you and your whole family lots of love.........

Shannon - good to hear that all is going well. Jessalyn is a tough one! I hope all goes well with her bowels and she can have a feed soon. Are you having to express whilst she isn't feeding?
Anyway... thinking of you

Thinkin' of you Shannon. Glad to hear that Jess is doing so well. What a strong little mite she must be...

Hi Shannon,

I should say first of all that or third baby, Rose, was born with biliary atresia in April 2003.

I've been doing some research for a bit of writing about it, and last night typed "biliary atresia" into a google search. One of your discussion posts about Jessalyn came up in the search results. So I have found your story entirely by accident.

I then spent ages reading all of your posts, and they took me back with vivid detail to where our family was 2 years ago. I found your writing extremely moving and clear. When I read about the cut right across Jessalyn's belly, I remember how we felt when the nurse in recovery pulled back the sheet to show us Rose's belly after her "Kasai procedure" (the op Jessalyn will have just had).

The path you travelled on to arrive at Jessalyn's diagnosis was much more convoluted than the one we travelled on, and you had the added stress of the initial, separate problems that were discovered. I could relate though to the way the biliary atresia information seemed to be dawning on you, with each subsequent post you wrote.

Anyhow, we have a very long story, but I just wanted to tell you that Rose is now a completely healthy 2 year old, with normal liver function. She received a liver transplant at 12 months of age, and had a mighty rocky time of it. I'm only mentioning that rocly time because of the fact that you would just never know it now to see her. I want to give you hope in the stress and exhaustion of your current hospital circumstances. These babies have incredible resilience!

Do let me know if you need any info at all. At the same time, I have no desire to bombard you with information. Just to let you know that we have got to know very well the Royal Children's and all its quirks, and also the entire gastro team. Also, I don't know whether anyone from the gastroenterology team has got around to letting you know yet that there is a specific support group, based at the hospital, for parents of kids with biliary atresia. I wouldn't be surprised if they haven't yet mentioned it though, because I know that this early surgical time is pretty busy, with the focus being on getting that section of intestine hooked up to the liver! There'll be plenty of time for all the information in the world, once Jessalyn recovers from her surgery and the dust settles - and it sounds like she's doing all the right things. You'll have her home in a flash! (Are you on 4 Main? Or on another ward?)

I've told my other half, Shane, today about my having discovered your story, and we're both thinking of you. If you ever have any questions about how to navigate this biliary atresia experience, let us know! (I'm sure you're discovering your own ways already. We all do it differently too.)

Kindest regards,

Lynne

(mother of Rose, 2, Hannah, 7, and Lewis, 12. Pregnant with 4th baby, due October)

Welcome to Belly Belly Lynne, what a wonderful support you'll be for Shannon, I'm sure she'll be thrilled to hear your daughters story!

Amazing news to hear after all little Jessalyn is going through there is light at the end of the tunnel..

Hi from me too Lynne. It's great that you found this site and that your little one is doing so well

Shannon great to hear another day has passed without any setbacks =D> =D> =D>

One day at a time, my dear. One day at a time.

Hope tonight and tomorrow are smooth sailing, too.