Hi,
Exactly month ago I have birth to a little boy who unfortunately passed away only 8 days after.

It is impossible to express how this made me feel…I wish nobody would have to go trough something like this ever again, yet I know that I am not the first, and unfortunately and certainly not the last.

First diagnosis was trouble breathing because the lungs are poorly developed, so doctors put him on breathing machine. After couple of days they discovered that my baby has Polycystic Kidney disease and that this caused poorly developed lungs.
At this point everything went wrong. He was worse and worse everyday and finally he stopped urinating and his lungs could not endure this…he died on October 31.

In past few weeks I have learned that PKD is hereditary disease but in some cases, PKD is not inherited, but occurs as a spontaneous gene mutation. Since my husband and I do not have this disease (at least we do not know about it), I think that my baby got gene mutation right after the conception.

Does anyone of you have any information on PKD? How to prevent it? How to discover it in early pregnancy?

I appreciate any information since I do have plan to have another baby, but am scared if the same happen again…
Thank you…