We eventually managed to get our son off the NGT at 25 months!!! He had had lots of heart surgery and was a very complex case so it was hard for him.

I was pushed to go for a PEG but didnt want more surgery and more of a reliance on yet another artificial feeding port.

I did what you are trying to do - basically stopped using the NGT during the day but still used it at night (do you use an overnight pump?) and then reducing the length of time of feeds overnight and then the amount of feed overnight until basically I stopped using the bloody thing. Another thing we did was actually take it out (against medical advice!). I was convinced that the tube was causing a lot of his vomiting (6x day projectile) and that it would be more comfortable for him to eat and swallow without the tube in.

I gave myself one week without it as a trial, he lost 250g that week (I cried a river as he is then and now still on the 3rd percentile of the growth chart). The tube stayed out!

We only put it back in 18 months later when he was too sick again with his heart to maintain his own body weight and so the tube came back when he was 3.5yrs old for two months before more heart surgery and then one month after as well.

How are you going with it now? Is she over her chest infection? What do her Dr's and speechy say?

Rachel