Hi guys - I was just wondering if any of you on here have had or know people who have had a bub with spina bifida?
One of my besties has just found out at the 20 weeks scan that her bubba girl has it and has a deformity in the shape of the skull /brain also, the spina bifida is around L1-L5 I am just interested in learning some more from real people.
Not google!
I used to play wheelchair sports with a number of kids and adults with spina bifida. Some of them could walk and others used a chair for mobility all the time. Some people had to use aids for toiletting and others had full bladder and bowel control.
Some of the differences are due to the level of the lesion, and it also depends on how severe the lesion is-whether it affects just the bone or whether the spinal cord is also affected.
I also have a friend with very mild spina bifida (occulta) where it wasn't diagnosed until she was a teen, and she has very little symptoms.
Most of the people i know are now adults and drive and work and do all the 'normal' things people do.
Spina bif can be associated with other conditions such as hydrocephalus (water on the brain), which is a treatable condition.
Spina Bifida
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