Congenital lung/esophagus abnormality anyone?

[loulabelle]

Just wanting to know if anyone's children have been diagnosed with anything related to with structural lung abnormalities or H type fistular between the esophagus and trachea?

Ds2 is currently undergoing tests for these things because of frequent chest infection and wheezing from 3 days old. Obviously, we don't know yet and it could be something much less sinister, but I'd still like to gear anyone's experience.

Also if you've had a young baby have a barium swallow and meal or an endoscopy?




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[~Kim~]

no, but couldn't read and not reply.
Poor little guy. Hope it's the not so sinister option.

[~me~]

My DS2 doesn't have what you have described, he does have a problem with his oesophagus though (Eosinophilic esophagitis). It was diagnosed with him having a endoscopy. A barium swallow was not going to find what he had and he had to have the endoscopy as he needed to look with a camera and take biopsies.

The worst part of the endoscopy was the going under and coming out of the an anaesthetic, he had to be fully sedated due to the endoscopy. The procedure itself didn't take long and he was only under for 30mins or so. He was particularly grumpy and disorientated for a while after coming out of it. Once that wore off he was fine.
He was 3 at the time of diagnosis so his understanding of what was going on was not great.

Hope your little man gets some answers.

[Little Chicken]

I've helped with barium swallows on newborns if that helps?

[loulabelle]

Little chicken, I just wondering a few things about the barium, like how will the get him to drink the fluid as he's fully breast fed and I've heard on babies they can take over an hour. After fasting three hours beforehand too. I'm just worried how he'll cope, do the scream through the whole thing? Will I have to hold him down etc? I don't like him crying much anyway as he ends up in coughing fits and almost choking after only a minute or so of crying.


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[loulabelle]

Thanks heather and Kim.

Heather I'm glad to hear your ds coped as well as possible. Was he uncomfortable afterwards? They are only going to do the endo if the X-ray and barium fails to come up with an answer.

I


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[Little Chicken]

They would probably prefer that he suck it, especially if they are looking for a h type fistula, though they may use a gastric tube. How long it takes depends on what they are looking for, how fast the barium moves through the digestive system, how cooperative he is, an the quality of the pictures they get. It is not uncomfortable for them, but they do have to be reasonably still. If they need to rotate the table (to move the barium around), he will be strapped to the table very securely. Ask the radiology centre if you are allowed in as some don't let parents in procedure rooms where radiation is used.

[~me~]

No he wasn't uncomfortable at all. The hospital had lunch waiting for him when he got back up stairs and he was fine. They did explain to keep an eye out for bleeding or that he may have a sore throat feeling. He was fine. Kids are amazingly resilient, I was worried he would be in some sort of pain due to the biopsies they took.

[loulabelle]

They would probably prefer that he suck it, especially if they are looking for a h type fistula, though they may use a gastric tube. How long it takes depends on what they are looking for, how fast the barium moves through the digestive system, how cooperative he is, an the quality of the pictures they get. It is not uncomfortable for them, but they do have to be reasonably still. If they need to rotate the table (to move the barium around), he will be strapped to the table very securely. Ask the radiology centre if you are allowed in as some don't let parents in procedure rooms where radiation is used.

Gosh, I might ring tomorrow and ask if I'm allowed in. I hope I am, I could bare having in there all alone if he's upset. Really doesn't sound fun at all


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[Little Chicken]

He won't be alone, there will be staff with him all the time, where I work the radiologist stands right next to the patient plus there is a nurse in there as well.

[loulabelle]

Sorry, another question. Ds2 also has a constant stridor and weeze. According to the specialist if it was an adult breathing like that they would be half dead. What is the difference between weeze and stridor though?

I really should have asked more questions yesterday...


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[Little Chicken]

A strider is a high pitched sound usually heard when breathing in. A wheeze is a rattling or Whistling sound in the chest.

[loulabelle]

Thanks LC! You've been so helpful xx


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[nickle730]

Stridor originates in the upper airway. A wheeze is from the lower airways.

Good luck, I hope your little man is settled for his procedure and the results are good.