thread: Hirschsprung's Disease

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  1. #1
    Registered User

    Jun 2010
    594

    Hirschsprung's Disease

    Hi,

    I know this is a long shot but I thought I would try here anyway.

    I'm looking for anyone who has a child who was diagnosed with this condition. How it was discovered and how their treatment and recovery have gone?

    We are at the beginning, the symptoms fit perfectly for our princess.

    Any information will be very appreciated either here or in pm.

    Thank you for your time.

  2. #2
    Registered User

    Dec 2007
    Hork-Bajir Valley
    5,722

    Hi hunny, ive never heard of it but thought id reply and give you a hug. Hope someone can help you out.

    sent via my vortex manipulator

  3. #3
    Registered User
    Add eza on Facebook

    Mar 2010
    beachmere, qld
    305

    My niece (1 year old) has Hirschprung's. When she was a week old, I think her symptoms started when she wouldn't breastfeed, then didn't poo. She got flown to Royal Children's when she started vomiting faeces. Was rushed into surgery and had part of her colon and/or intestine removed and ended up with a colostomy bag for about 4 or 5 months, whilst she was healing inside. She then went back to surgery to reattach her intestine/colon.

    I could ask my sister if it's okay to give her number to you?? She can explain her whole journey alot better lol.

  4. #4
    Registered User

    Jun 2010
    594

    Hi Eza I tried to reply to your pm but your inbox is full!

    Thank you very much for your reply. It means a great deal at the moment so thank you

  5. #5
    Registered User
    Add eza on Facebook

    Mar 2010
    beachmere, qld
    305

    inbox empty

    no worries hun

  6. #6
    Registered User
    Add eza on Facebook

    Mar 2010
    beachmere, qld
    305

    Hi BlackCat,

    Just wondering how your neice went. Did it turn out to be Hirschsprung's? Hope all is well