My DS has probably got kidney reflux, just wondering if anyone else's kids have or have had this? He is 9 weeks, had a UTI at 7 weeks, further testing in 4 weeks. He's on bactrim at the moment. Thanks ox
You've read my mind as i was just getting on here to ask the same question, my son is 9 weeks and probably has the same thing. I have a history of kidney problems so he had an u/s at 6 days and then 6 weeks and things have got worse, so he's on bactrim as well and we're heading into Melbourne to have scans done next week. Depending on the results as to where we go from here. I'm not sure what the next step is if he does have it do you? Also are you worried having your bub on antibiotics? Are you taking anything like probiotics to help bub? Sorry for all the questions i'm just so happy to kow someone else is out there going through the exact same thing. Would love to keep in contact with you and share this journey. I'm trying not to freak out and just take it one step at a time.
Cheers
Hi Jen, sorry to hear you've got the same prob. Not fun is it!
I guess your next test will be the MCI (I think it's called that, forgive me if Im wrong. It's the one when they insert the catheter and see if there's refluxing in the kidney, via xray). That's our next step, followed by another test to see the extent of the kidney damage. At this point we have no idea. With kidney reflux it is graded from 1-5, 5 being worst. I think up to stage three they treat with ongoing antibiotics, (maybe nothing if stage one or two) and further on can be surgery but not always.
My GP has been good and explained that mostly they grow out of it (here's hoping).
I have to say the whole antibiotic thing is so not what I wanted. I know of course no one wants it, but we see a kenisiologist for the whole fam, so DDS was actually already on probiotics just because I have all my kids on them for good immunity. So antibiotics was really against the direction I was headed!! Anyway i give him probiotics once daily. They are called Lifestart the company is Natran i think. Maybe health food stores stock it, we got ours thru our kenisiologist.
I only know what the Doc's have said but let me know if you have anymore questions. Then after you have scans next week i'll prob have heaps for you. Good luck and hope it's all ok. It is good to have someone to go through it with, hope we both get good news!! xoxo
I am sorry to hear you little babies are having problems with kidney reflux, my DD has a horseshoe kidney and suffers from kidney reflux.
She was on Bactrim from birth and I weaned her at about 9 months of age as she still had no problems with infection and also as I did not like the thought of her being on these meds for so long, (the Dr had told me that it is recommended to be on the meds until 12 months however if there have been no problems with infections then you can stop as early as 6 months) my DD still has never had an infection. The lastest scan shows there is some scarring as a result of the reflux however we do not need to go back for another reflux/xray test (sorry DD has had so many tests I forget all of the names) until December so I am really happy.
Sorry I am not much help to you, but I thought I would pop in and say hello.
Thanks DD for that! I noticed you have a Matilda! So do I! And congrats on your pregnancy!!
Sorry to hear your DD has had probs, but great she's off the meds. I find it very hard to take thinking my bub will be on antibiotics for so long. Also it can run in siblings, so the thought my DD1 and 2 have it is scary as they've never had symptoms, but you dont necessarily need to.
DS seems to have a bit of gastro and Im finding it so hard not to panic, with the kidney reflux I feel like Im jumping and overreacting to everything, but how do we not? I dont want to keep him home if he needs medication but I do not want him to go on stronger ab's if it's a gastro thing and he doesnt really need. IFYKWIM. Doc said if he gets temp he goes on ab's regardless, as testing urine takes 24-48 hours and they wouldn't want to wait incase.....
Oh the joys...
it's alot to take in I think. Hang in there mums, you're doing a great job!! xo
My sister had it when she was very little. I was only 2 and a half, so don't remember what happened. There was some invasive test that I had to have, but Mum did it because it can run in families. I don't remember it.
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Kidney Reflux
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